I just learned that, as a member of this community, I can give a maximum $1 donation to Ben's Friends and make a big difference for others! http://www.indiegogo.com/BensFriends2013
In just five years, Bensfriends.org has built one of the largest patient support organizations in the world. We run 33 discreet support communities that help 25,000+ people worldwide every month. The organization is run on a shoestring budget and is financed by voluntary contributions from people around the globe. And volunteer moderators, who are also patients, make the communities a warm and informative destination for patients of rare diseases.
YOU too can make a difference!
Please support our activities in 2013 by donating to our fundraiser. Without financial support, Ben’s Friends cannot exist. We really need your help! Any amount, however small, will greatly contribute to raising awareness on rare diseases, empowering patients and connecting them to needed resources.
As a member, this support group was built for you. Now you have the opportunity of helping ease other's suffering within just a few clicks. The biggest contribution you can make is to share our story, your story.
Follow this link to donate or to find more information:http://www.indiegogo.com/BensFriends2013.
Comment

@Armando - This site is so wonderful that I am glad we met our goal for fundraising. This site is so vitally important for so many people around the world:-) Hope you are doing well.
Comment by Hiro on January 19, 2013 at 12:01pm I'm very glad to have been able to donate $50. :) Hope Ben's Friends will keep going strong for the sake of all the wonderful users.
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Amyloidosis
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Ehlers-Danlos Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Guillain-Barre Syndrome (GBS)
Lupus
Lyme Disease
Multiple Myeloma
Myositis
Narcolepsy
Nephrotic Syndrome
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Sjogren's Syndrome
Synovial Sarcoma
Traumatic Brain Injury (TBI)
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
Help spread the word about our newest communities by sharing on your Facebook wall: Acute Disseminated Encephalomyelitis, ADD, Amyloidosis, Disabilities,Fabry, Guillain-Barre Syndrome, Lyme Disease, Myositis, Narcolepsy, Nephrotic Syndrome, Sjogren's Syndrome, Traumatic Brain Injury, Von Willebrand's Disease.
Posted by mamaginof3 on May 9, 2013 at 3:13pm 14 Comments 0 Likes
Posted by Fish on May 10, 2013 at 3:25pm 1 Comment 0 Likes
My husband has HHT . Daughter has been tested but no results yet. Praying God spares my children. I have two granddaughters. I have another daughter who has not been tested. We found the HHT Center in Chapel Hill after years of nosebleeds. He has…
ContinuePosted by Michael on May 2, 2013 at 3:14am 5 Comments 1 Like
Hello there,
how it's for you? In my case, I have the paralysis since last october 2012. Before that I was very active with cross country running, dogsport, and so on. The good thing: In my dreams I had no Paralysis. I run in my dreams,…
ContinuePosted by tdz103m on May 2, 2013 at 5:34am 5 Comments 5 Likes
I don't know exactly when it happened because I slept through May 1, 2012. All day.
May 2, I was able to move around a bit. May 3 a bit more but by May 4th I was feeling in the deepness of it and told my wife to dial 911 and it was into the…
Posted by Armando A. on April 21, 2013 at 8:00am 0 Comments 2 Likes
After being featured on a number of publications,…
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