We are AVM survivors, here for your support.
sugar coated RECOVERY
My Recovery....I haven't needed anything in my recovery the past 5 months. Here's the journey. Ill tell the easy breezy version as we know the hardship and struggles, the stress and the tears that come on this road of AVM. The best way to get somewhere is to just start going. I woke up 7 days after my 14 hour cranionomy and told my sister " Ok. It's time to go.". I got out of bed and walked the floor of the ICU at University of Michigan- Ann Arbor. It is the best. I ate whatever my sister told me to. I had my coworkers show up to visit that nite. We talked and laughed.Just so you know this was an out of the blue find. I haven't been to the doctors since Ive had my child 5 years ago. It was only a day later after showing the nurses that I was a fighter and im good to go I was sent to general recovery where i only stayed another day. My recovery went perfect. After my 6 week check and my doctor took me by the hand to say he was in awe of my recovery and how strong i am. I went to the ICU to applogise for being a fireball to them. I have not seen a doctor since. Ive had acute pain, if any pain at all and no problems. Its a miracle And now its my time to take the test. At 6 months I have an angiogram. ITs then that my doctor tells me im AVM FREE. Then I can go on with my life and marry my man.
Comment
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Moderator Comment by Barbara H. on February 7, 2012 at 10:11pm -
Super Hurrah!
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Comment by Linda on February 7, 2012 at 3:16pm -
So good to hear a success story as many seem to tell of a really long struggle. Your words have really given me hope! Enjoy your life to the maximum and thanks for sharing your experience.
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My story
Posted by chels925 on June 3, 2012 at 10:37am 0 Comments 0 Likes
Hello everyone. While I do not have a AVM, mine is only a VM. It is in my right cheek. I have been undergoing treatment for it since 2006. My first treatment was in September 2006. I had some complications (I got an infection and went septic). I…
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I moved on ... but I cant escape
Posted by Dansky on June 3, 2012 at 7:15am 0 Comments 0 Likes
The first rupture of my AVM brought me to total shutdown you could say. from normalcy to all of a sudden a twist of life.
I move on ... but I cant escape...
I was at work (luckily I was in office, crowded, people are present, the…
Continue Away for 5 weeks
Posted by ramona777 on June 2, 2012 at 3:51am 2 Comments 0 Likes
Hi to all my newfound friends . may not be online much in the next 5 wks but wanted to say to each and every one of you, many thanks for your welcome, friendship and support. be back soon. If anyone can advise me how to join AVM australia? Thank…
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the appioment went.......
Posted by Celina on May 31, 2012 at 8:59pm 2 Comments 0 Likes
it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.
Starting to understand everything...
Posted by Hannahpoppe on May 30, 2012 at 12:45am 3 Comments 0 Likes
Hi everyone!
I'm a new member here...
I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…
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Of Seizures
Posted by Jaime G. on May 29, 2012 at 7:32am 1 Comment 0 Likes
I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…
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Facebook Feature Supports Organ Donation
Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments 0 Likes
We never realize the value of organ donation, until we're on the receiving end.…
NUMBNESS
Posted by josh54 on May 28, 2012 at 12:20pm 2 Comments 0 Likes
My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…
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Coffee in Rockhampton
October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
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