Comment

Comment by Jenny Aiken on February 8, 2010 at 8:09am

I had a AVM below the nasal fold of my nose in 1998. The ENT doctor who did the CT scan told me he would love nothing more than to surgically remove the AVM, but that I wouldn't like the cosmetic results. He suggested I try radiation first. The radiologists had success with cerebral AVM's, but had never tried to treat one that was not brain related. You have to understand that this was 12 years ago and I don't even know what sort of radiaton was used. I had five treatments in one week and my AVM shrunk in about 6 months. This was at the University of Washington in Seattle. I had an AVM in my left jaw that was surgically resected in October 1987. The dfference between the two options are striking. I recommend trying anything to avoid surgery. I know are situations are different, but I hope this helps some.

Comment by Ilene Greenberg on January 12, 2010 at 3:15pm

My Radioloogist just suggested my son have a consult with a radiation dr too. What did the neuroisurgeon say about radiation? I called a gamma knife specialist and they can only do brain AVMS. Any help would be appeciated. thanks, Ilene

Comment by Janine on January 12, 2010 at 1:28pm

Hi I also had radio done i had linac treatment it takes up to two years to notice any changes at all its not 100 percent guarenteed but the radio helps the avm to close off and stop feeding the nidus, hope this helps, janine

Moderator Comment by Gordon D on January 11, 2010 at 9:09pm

Jessica I think we need more information about the treatment that the Doctors have offered you with over 1400 members I'm sure somebody can shine some lite on it for you . And by the way thank you for making me your friend . I was in Barstow in 1980 for about 3 days I love it there, the desert was wonderful ,people were so friendly. Cya Gordon

Comment by Linda Tasa-Andrychuk on January 11, 2010 at 6:20pm

Why do they want to give you radiation for irregular blood vessels and arteries that are a tangled mess? I thought radiation was for bad cells, I'd ask because with radiation it kills all your cells good and bad, and makes you sick and weak. And I know people that have had radiation. Bless You; keep asking questions

Moderator Comment by Ben Munoz on January 11, 2010 at 8:54am

They are talking about gamma knife. I had gamma knife in Feb 07 and avm gone now. There is some info under More>Links (above). It's a painless procedure but takes at least 2 years to work.