Have just been faced with and overwhelming issue with my fiancé "Kate". She had a ruptured AVM October 22nd and sense has had it removed and is recovering with some speech and right side weakness. She is now one month pregnant which is a wonderful yet scary future for us. Over the last year and a half before the onset of her AVM she couldn’t conceive without medication, now we are faced with the question can she so soon after have a child and with all the medications is there a risk of birth defects? We where cleared by her Neuro surgeon to resume normal sexual activity but never thought she would be able to become pregnant without the use of fertility drugs that she used to conceive in the past.
Comment
Comment by DeAndra on February 14, 2012 at 10:56pm Congrats and good luck. I do not know what meds she is on, but I was on every darn pain killer known to man and had MRI's, cat scans (I think that is what it was called), and a variety of other tests, and my son is great! There is always hope. Like Trish said though, definitely talk with an OB, though. You may want to actually refer the OB and her neurologist to one another. They may have different ideas of what she needs to be taking, and wires could get crossed. They definitely need to be on the same page to make sure they have the same goal, which should be to get her and your baby through this as safely as possible.

Congratulations to you and Kate! I would say go see her OB/GYN as soon as possible to rule out potential risks with whatever medication she is taking. She may have to switch some while she's pregnant. Having a baby is exciting yet I understand the fear. Don't worry, you both can do this!

This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Amyloidosis
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Lupus
Multiple Myeloma
Myositis
Narcolepsy
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Synovial Sarcoma
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
Posted by chels925 on June 3, 2012 at 10:37am 0 Comments 0 Likes
Hello everyone. While I do not have a AVM, mine is only a VM. It is in my right cheek. I have been undergoing treatment for it since 2006. My first treatment was in September 2006. I had some complications (I got an infection and went septic). I…
ContinuePosted by Dansky on June 3, 2012 at 7:15am 0 Comments 0 Likes
The first rupture of my AVM brought me to total shutdown you could say. from normalcy to all of a sudden a twist of life.
I move on ... but I cant escape...
I was at work (luckily I was in office, crowded, people are present, the…
ContinuePosted by ramona777 on June 2, 2012 at 3:51am 2 Comments 0 Likes
Hi to all my newfound friends . may not be online much in the next 5 wks but wanted to say to each and every one of you, many thanks for your welcome, friendship and support. be back soon. If anyone can advise me how to join AVM australia? Thank…
ContinuePosted by Celina on May 31, 2012 at 8:59pm 2 Comments 0 Likes
it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.
Posted by Hannahpoppe on May 30, 2012 at 12:45am 3 Comments 0 Likes
Hi everyone!
I'm a new member here...
I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…
ContinuePosted by Jaime G. on May 29, 2012 at 7:32am 1 Comment 0 Likes
I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…
ContinuePosted by Armando A. on May 28, 2012 at 8:02pm 0 Comments 0 Likes
We never realize the value of organ donation, until we're on the receiving end.…
Posted by josh54 on May 28, 2012 at 12:20pm 2 Comments 0 Likes
My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…
ContinueOctober 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
2 Comments 1 Like© 2012 Created by BensFriends.org

You need to be a member of AVMSurvivors.org to add comments!
Join AVMSurvivors.org