We are AVM survivors, here for your support.
Pre-Op Appointment
We had Elizabeth's pre-op appointment Monday and surgery is confirmed for next Friday. We will go in on Thursday for an angio/embolization and she will stay overnight either in ICU or a regular room depending on whether or not she can have the embolization. Dr. Grant gave her some good news, very little hair removal and dissolvable stitches instead of staples. She really liked he sound of that. They are going to go in through the back left of her skull to reach the AVM as there is a "clear" path left over from where the clot was.She is very ready to have this over, she keeps telling me, "daddy I'm not scared about surgery at all!". I believe her, too. Everything she has gone through so far has given her a strength beyond her years. Please keep her in your prayers, my wife as well. The first trimester nausea is in full swing and she really wants to be strong for Elizabeth.
Comment
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Comment by Susan Troop (Lindsey's Mom) on February 11, 2012 at 1:24pm -
It is amazing how little hair they have to remove! We were amazed!
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Comment by Susan Troop (Lindsey's Mom) on February 11, 2012 at 1:23pm
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Lindsey had her embolization the day prior to her craniotomy as well. She spent the night in the PICU and had her surgery early in the morning, for most of the day. We will be praying for an awesome outcome for Elizabeth, and a quick recovery! You are almost on the other side of this!!
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Comment by Marie Hudson on February 9, 2012 at 6:24pm -
So glad you have a plan in the works and soon the AVM monster will be taken care of. Many thoughts prayers and blessings to you all, we will be looking for updates.
Marie
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Moderator Comment by Suzy E on February 8, 2012 at 9:37am -
Best of luck on the upcoming surgery and make sure to hug Elizabeth. We're all thinking about her. ((((( Elizabeth ))))) Also like Trish said, I hope the nausea subsides...
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My story
Posted by chels925 on June 3, 2012 at 10:37am 0 Comments 0 Likes
Hello everyone. While I do not have a AVM, mine is only a VM. It is in my right cheek. I have been undergoing treatment for it since 2006. My first treatment was in September 2006. I had some complications (I got an infection and went septic). I…
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I moved on ... but I cant escape
Posted by Dansky on June 3, 2012 at 7:15am 0 Comments 0 Likes
The first rupture of my AVM brought me to total shutdown you could say. from normalcy to all of a sudden a twist of life.
I move on ... but I cant escape...
I was at work (luckily I was in office, crowded, people are present, the…
Continue Away for 5 weeks
Posted by ramona777 on June 2, 2012 at 3:51am 2 Comments 0 Likes
Hi to all my newfound friends . may not be online much in the next 5 wks but wanted to say to each and every one of you, many thanks for your welcome, friendship and support. be back soon. If anyone can advise me how to join AVM australia? Thank…
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the appioment went.......
Posted by Celina on May 31, 2012 at 8:59pm 2 Comments 0 Likes
it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.
Starting to understand everything...
Posted by Hannahpoppe on May 30, 2012 at 12:45am 3 Comments 0 Likes
Hi everyone!
I'm a new member here...
I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…
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Of Seizures
Posted by Jaime G. on May 29, 2012 at 7:32am 1 Comment 0 Likes
I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…
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Facebook Feature Supports Organ Donation
Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments 0 Likes
We never realize the value of organ donation, until we're on the receiving end.…
NUMBNESS
Posted by josh54 on May 28, 2012 at 12:20pm 2 Comments 0 Likes
My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…
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Coffee in Rockhampton
October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
2 Comments 1 Like
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