Comment

Comment by beansy on October 9, 2011 at 1:18pm

Has anyone heard how this guy is doing now?

Comment by Adrian on October 8, 2011 at 2:42am

I actually went out & bought his Eagles jersey the day i found out about this news....its the least i could do for a fellow AVM'er

Comment by Dean on August 16, 2011 at 11:58am

This just shows all of us that anyone can have this birth defect and not know it. Here is an individual playing a violent sport where I'm sure he has suffered concusions at some level. Yet the AVM was never found. As explained to me, this is a birth defect that formed prior to my birth about 18 weeks into the development of the fetus. I had no symptoms and discovered this due to testing related to diabetes. I am unlucky enough to have two instead of just one. It is emotional and now that I know they're there, I am compelled to have them fixed. I wish the Eagles player well and I doubt the AVM was the result of him playing the game that he loves. It is rather just the misfortune of nature that caused it.

Comment by beansy on August 16, 2011 at 9:56am

Lisa C

Cannot find your blog on the newspaper your link sends me to.

beans

Comment by Bernie on August 16, 2011 at 7:28am

When they gave me drugs before the surgery I dreamt there was a large whit python behind me in ice that was poise to attack me swallowed me down to my knees

Comment by Lisa C. on August 15, 2011 at 10:19pm

Just wrote a column on my avm and how my symptoms 14 years after the surgery are very similar to that of someone with an autoimmune disease. It can be found at www.ourtrilakesnews.com

Comment by Bernie on August 15, 2011 at 9:30pm

I think it's very scary no matter who u r n what age.... I remember I was weepy for the first week
Now after the open brain surgery...stll a bit e,motional

Comment by charleneg on August 15, 2011 at 7:13pm

hi there im charlene .. im new to all of this .. so bare with me .. im 22 and i have a almost 3 year old .. on aug 3rd i had a seziure and my daughter seen it all as long as my mother. i didn't remember anything of the fall i had all i remember is on my way to the hospital and i still know what was going on . i was scared and i had breathing tubes on me and heart things on me ivs in me it was crazy and i have never seen my mother cry before until that day . i went for a ct scan and they had thought they seen a brain tumour so my whole family thought i had a tumour and i had appointment for surgery the next morning to take the tumour out but in that afternoon i had a mri done and i found out i had avm in my brain . i was upset but glad it wasn't a brain tumour but i still have to go for surgery .. i guess what im trying to say is that i feel alone .. and i need some support in this .. i have a fear of falling again and i can't sleep because of it . thanks for reading .. your truly charlene

Comment by Tiffani on August 6, 2011 at 11:48am

Having a AVM is very emotional, being diagnosed with it when you are starting out in your career/life is even more stressful. I was diagnosed with my AVM a few months before I was going off to college. I had to stop packing and start thinking about brain surgery. It was vey difficult. I would never wish this on anyone but now with this athlete being diagnosed with it I read there will be more research in it. It's sad it takes someone famous to being diagnosed with it to spark more interest in AVM's. Nonetheless, I wish him well.

Comment by Bernie on August 6, 2011 at 5:13am

Just had second bleed n open brain surgery here the van was removed this was 5 days after the gamma knife

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