We are AVM survivors, here for your support.
Personality change.
Just a little update on Jacob!
I have been chasing the Stereotactics team at Sheffield since February and found out 2 weeks ago that Jacob is not suitable for gamma knife this time. We were then told he would be seen in July at clinic as it is not an emergency at this time but as I have been explaining to all I spoke to Jacob's personality has been changing for the last couple of months, suddenly we have been given an appointment on 26th May to discuss surgery which cannot come soon enough as this weekend we were at the end of our tether!
Jacob will cry at the drop of a hat but on the other hand will do things that are naughty and be rude to adults with apparently no comprehension that he has done wrong.
Just as an example: On Saturday he walked into the lounge (where I was sitting with my sister in law) and did a head stand on the sofa putting dirty shoes on the wall! He has never done it before and was oblivious until I stopped him then it was floods of tears.
Sunday evening playing football in the garden when the ball got kicked over the fence Jacob asked if he should go and find it and was told No. A few minutes later we realised that he wasn't in the house. We then spent the next 10 - 15 minutes franticly searching the area and found him asking another person for a ball from their garden, and once again when he was found and was told he was wrong he burst into tears and sobbed his little heart out for ages.
Roll on the 26th May.......
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My story
Posted by chels925 on June 3, 2012 at 10:37am 0 Comments 0 Likes
Hello everyone. While I do not have a AVM, mine is only a VM. It is in my right cheek. I have been undergoing treatment for it since 2006. My first treatment was in September 2006. I had some complications (I got an infection and went septic). I…
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I moved on ... but I cant escape
Posted by Dansky on June 3, 2012 at 7:15am 0 Comments 0 Likes
The first rupture of my AVM brought me to total shutdown you could say. from normalcy to all of a sudden a twist of life.
I move on ... but I cant escape...
I was at work (luckily I was in office, crowded, people are present, the…
Continue Away for 5 weeks
Posted by ramona777 on June 2, 2012 at 3:51am 2 Comments 0 Likes
Hi to all my newfound friends . may not be online much in the next 5 wks but wanted to say to each and every one of you, many thanks for your welcome, friendship and support. be back soon. If anyone can advise me how to join AVM australia? Thank…
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the appioment went.......
Posted by Celina on May 31, 2012 at 8:59pm 2 Comments 0 Likes
it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.
Starting to understand everything...
Posted by Hannahpoppe on May 30, 2012 at 12:45am 3 Comments 0 Likes
Hi everyone!
I'm a new member here...
I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…
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Of Seizures
Posted by Jaime G. on May 29, 2012 at 7:32am 1 Comment 0 Likes
I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…
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Facebook Feature Supports Organ Donation
Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments 0 Likes
We never realize the value of organ donation, until we're on the receiving end.…
NUMBNESS
Posted by josh54 on May 28, 2012 at 12:20pm 2 Comments 0 Likes
My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…
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Coffee in Rockhampton
October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
2 Comments 1 Like
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