AVM Survivors Network: Arteriovenous Malformation Support

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Hello to all. I log on infrequently, so I hope no one thinks that I do not care, it is just this trying to make everything normal and take on more at work so I do not fall in my "rankings." I had my angiogram last Friday and things look good. The doctor performing the angio was kind of weird. He asked me questions multiple times. I do not know if he was testing me or if he was the one with the brain issue. It is kind of funny now looking back and I am glad he was only in the other room looking and not poking me with anything. This Friday I will hear if it really is all clear. I cannot wait. Next hurdle is medicine reduction...my wife is not into me trying to self medicate.
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Marie Hudson Comment by Marie Hudson on July 4, 2009 at 3:39pm
Mike,
I hope all goes well this Friday!!! My husband had his AVM burst around the same time as yours did, his was 9/22/08 and had his crani on 9/30/09. He never had any seizures until almost 2 months after surgery while weaning off of Dilantin that they had put him on right after surgery. He did not care for the Dilantin so the doc tried Tegratol ER which was horrible for the 2 months he was on it, doc gave him the choice of weaning or trying something else, he chose to wean then had another seizure, then tried Depakote ER which again left him so tired, he is just starting Keppra. He's been on it a week 1 - 500 mg twice a day for a week, last week that went good, he just started 2 - 500 mg twice a day today, he has had a bad headache so far today and normally does not have headaches. Did you ever have any side effects on Keppra? If so what? He is going to start 3 - 500 mg twice a day in a week, the doc just wants to make sure he doesn't have any more of those dreadful seizures. So far it's not making him tired like the others but wonder about this headache.
Thanks for answering. by the way his agram checkup in March was wonderful, no more AVM, now if we can get rid of these seizures he will be great!!!!

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