We are AVM survivors, here for your support.
OHHH YEAAAAA
i just had my 1 year check up and i am shocked beyond belief! my surgeon believes that my avm is gone after just one year!!!!! (actually more like 11 months bc my mri was last month...) but he says he sees no sign of the avm and no sign of any live blood flow which would indicate a bleed, just swelling which is good becuase it means the radiation hit its target and is doing its job...
he doesnt want to do an angio now, he still wants to wait til next year because even if there is still a tiny part left he still wouldnt restrict me.
which brings me to the other half of why im so happy. i can do anything!!! i can play goalie in polo again!!! i can lift however much i want and i dont need to restrict my heartrate!! and i can scuba dive when i go to jamaica over spring break in 2 weeks (i really wanted to this summer in cancun but couldnt...)
i am just sooo ecstatic right now. i went to practice practically skipping!!
♥ jess
Comment
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Comment by Deb C. on November 17, 2009 at 4:01pm -
I'm so happy for you. Congratualtions!
Take care,
Debbie
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Comment by Brian on November 17, 2009 at 2:53pm -
Fab news!!!!!
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Comment by Elizabeth Conti on November 17, 2009 at 10:54am -
It's nice to hear a truly successful story post Gamma Knife on here! I was starting to think that it usually doesn't work.
Congrats! I'm so glad that you're (nearly) back to normal and resuming usual and unusual activities! : )
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Comment by Janine on March 14, 2009 at 3:58am
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YYYYYYYYYYYaaaaaaaaaaaaaaaaaaaaahooooooooooooooooooo! wow jess that is great news I havnt been reading for a while so have just seen your news how exciting I am so very happy for you!
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Moderator Comment by Shalon on March 7, 2009 at 9:11am -
yay!!! I'm so glad to hear that you get to go back to everything you love, specially polo! Live it up girl!
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Comment by grace on March 6, 2009 at 10:38pm -
did you have the gamma knife? i am sch'd to have the gamma knife in april and am a little scared. i know there is no pain involved but i will have to undergo a 3rd angio the same day. the first angio there was too much blood. second angio was supposed to be angio and embo but dr's could not get to the avm. now i am sch'd to have gamma knife and hopefully this will take care of me. i'm happy for you though.grace
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Moderator Comment by Connie T on March 5, 2009 at 10:35pm -
What FANTASTIC news, Jessica! I am so very happy for you!
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Comment by Lianne on March 5, 2009 at 10:14pm -
yaaaaaaaaaaaaaaaaaaaaaayyyyyy! so very hppy for you! enjoy it all!!!!!!!!!!!!!!!!
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Moderator Comment by Alicia on March 5, 2009 at 10:02pm -
yeah....fab news....enjoy that holiday....you gard those goals girl...i am so happy for you
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My story
Posted by chels925 on June 3, 2012 at 10:37am 0 Comments 0 Likes
Hello everyone. While I do not have a AVM, mine is only a VM. It is in my right cheek. I have been undergoing treatment for it since 2006. My first treatment was in September 2006. I had some complications (I got an infection and went septic). I…
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I moved on ... but I cant escape
Posted by Dansky on June 3, 2012 at 7:15am 0 Comments 0 Likes
The first rupture of my AVM brought me to total shutdown you could say. from normalcy to all of a sudden a twist of life.
I move on ... but I cant escape...
I was at work (luckily I was in office, crowded, people are present, the…
Continue Away for 5 weeks
Posted by ramona777 on June 2, 2012 at 3:51am 2 Comments 0 Likes
Hi to all my newfound friends . may not be online much in the next 5 wks but wanted to say to each and every one of you, many thanks for your welcome, friendship and support. be back soon. If anyone can advise me how to join AVM australia? Thank…
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the appioment went.......
Posted by Celina on May 31, 2012 at 8:59pm 2 Comments 0 Likes
it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.
Starting to understand everything...
Posted by Hannahpoppe on May 30, 2012 at 12:45am 3 Comments 0 Likes
Hi everyone!
I'm a new member here...
I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…
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Posted by Jaime G. on May 29, 2012 at 7:32am 1 Comment 0 Likes
I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…
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Facebook Feature Supports Organ Donation
Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments 0 Likes
We never realize the value of organ donation, until we're on the receiving end.…
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Posted by josh54 on May 28, 2012 at 12:20pm 2 Comments 0 Likes
My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…
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Coffee in Rockhampton
October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
2 Comments 1 Like
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