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nathan- transferred to the regular pediatric floor-6 days post craniotomy
Yesterday evening Nathan was transferred to the regular pediatric floor. He no longer has the head wrap, the JP draining tube,and the art line. Most importantly, on Friday they removed the breathing tube because he was able to breathe on his own! Although he is still receiving his feeds through a feeding tube, an occupational therapist is scheduled to come and evaluate his suck. Hopefully he will be able to drink with a bottle again at home.His blood pressure is still a little high but the doctors are not too concerned. Dr. Gupta told us that it is most likely due to post surgery pain. He is being given tylenol, phenobarbital and morphine. Nathan is a little more alert and can stay awake for even as long as three hours at a time! His fontanel feels nice and soft and so the doctors feel that either the shunt is working properly or Nathan could even be draining the CSF fluid on his own. Nathan's eyes still deviate to the right but we have noticed him trying to bring them to the center. The doctors feel that in time as the blood re-absorbs the eyes should slowly heal and hopefully function normally. He still doesn't express any type of emotion such as pain, discomfort or even happiness but hopefully again in time this will resolve. Dr.Fullerton and Dr.Gupta said it would be best to just let him recover for the next 6 weeks (considering all that he has been through) and from there he will evaluated. By that time Dr.Fullerton will be able to determine if Nathan suffered from permanent brain injuries from the bleeds and if so, to what extent. For now, we are just letting Nathan recover and by sometime this week along with the doctors we will come up with a plan for rehab (PT/OT) and homecare.
mini praise report: Nathan has been keeping his mouth shut a majority of the time but I decided to take a peek at his gums.. lo and behold! I saw white! One white spot within the center of his bottom gum. I washed my hands and felt his gums and it was confirmed: Nathan is growing his first tooth =)
"Now this is the confidence that we have in Him, that if we ask anything according to His will, He hears us. And if we know that He hears us, whatever we ask, we know that we have the petitions that we have asked of Him" John 5:14-15
Thank you everyone for praying for Nathan and his recovery. God bless
Comment
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Comment by Marla Post on December 5, 2008 at 11:54am -
I'm glad to hear Nathan's health is heading in the right direction. Thank goodnees...and a new tooth to add to it all.
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Comment by Joy on December 5, 2008 at 6:40am -
Thanks for the update. I am always watching for my "Nathan updates". Praying for him now.
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Comment by marianne elizondo on December 4, 2008 at 8:51pm -
Jaimee, Of course he would put that tooth out now....he is a very busy baby and multi tasking is what his family does quite well. I pray the days be as good as they can be and better. You are all in my thoughts and prayers and those of many. Be good to you. Take care of you. Prayers and love and hugs to all.
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Comment by soniya mundy on December 4, 2008 at 3:34am -
congratulations you guys,we are so happy for you all.your baby boy is a real miracle. god bless you all.soniya and kray and family xxxxxxxxxxxxxxx
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Comment by Mickie & Nico on December 3, 2008 at 12:00pm -
Happy, Happy news!! I'll keep praying fof his recovery. I can't believe you ar studying filnal and going throught all of this... you are a strong woman.
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Comment by Erica on December 3, 2008 at 10:54am -
Dear Jaimee, I am happy Nathan is doing well. I must say you are a very strong mum. Nathan needs lots of sleeping now. God Bless.
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Moderator Comment by Shalon on December 3, 2008 at 9:46am -
So happy to hear that things are going well. I'm sure that with the time needed to heal, Nathan will again show us what a little miracle he is! And yay for the new tooth!!!
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My story
Posted by chels925 on June 3, 2012 at 10:37am 0 Comments 0 Likes
Hello everyone. While I do not have a AVM, mine is only a VM. It is in my right cheek. I have been undergoing treatment for it since 2006. My first treatment was in September 2006. I had some complications (I got an infection and went septic). I…
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I moved on ... but I cant escape
Posted by Dansky on June 3, 2012 at 7:15am 0 Comments 0 Likes
The first rupture of my AVM brought me to total shutdown you could say. from normalcy to all of a sudden a twist of life.
I move on ... but I cant escape...
I was at work (luckily I was in office, crowded, people are present, the…
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Posted by ramona777 on June 2, 2012 at 3:51am 2 Comments 0 Likes
Hi to all my newfound friends . may not be online much in the next 5 wks but wanted to say to each and every one of you, many thanks for your welcome, friendship and support. be back soon. If anyone can advise me how to join AVM australia? Thank…
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the appioment went.......
Posted by Celina on May 31, 2012 at 8:59pm 2 Comments 0 Likes
it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.
Starting to understand everything...
Posted by Hannahpoppe on May 30, 2012 at 12:45am 3 Comments 0 Likes
Hi everyone!
I'm a new member here...
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Posted by Jaime G. on May 29, 2012 at 7:32am 1 Comment 0 Likes
I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…
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Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments 0 Likes
We never realize the value of organ donation, until we're on the receiving end.…
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Posted by josh54 on May 28, 2012 at 12:20pm 2 Comments 0 Likes
My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…
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Coffee in Rockhampton
October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
2 Comments 1 Like
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