I tried a Yoga class last night. Over all, it went well and I really enjoyed it. I discovered I can't balance on one leg and I have no flexibility at all any more. LOL I only had two tremor episodes and they were in my arms. I don't think anyone noticed though. If they did, it doesn't bother me. Oh... My left leg went into tremors too, when I had to try to balance on it. I have trouble with that leg as it is. I was more concerned about my vertigo... I was able to work my way through that.
About an hour after the class, I had an odd feeling in my head. It felt like my pulse was racing. It's the only way I can describe it. This morning I woke up with one nasty headache. Considering I live with headaches anyway. I'm not putting much stock into it.
I have full intentions on going back to class next week. I have a good feeling that this may help me.
Comment
Comment by Ben Mrl on January 16, 2013 at 7:43am Deb,
One other thing -- I don't think I'm going to tell the instructor that I have an AVM. I'll just tell her about some of the problems I have and leave that out... for now. I've walked this road before.. when an instructor knew about my avm and then I got treated differently. We'll see - I'll play it by ear. :)
Comment by Ben Mrl on January 16, 2013 at 7:35am Debra,
Thanks for the link. That's interesting. I have not told the instructor of my health situation. This is only a 3 week beginner's class. I think my friends and I are going to another instructor once this mini class is over.
You are right - once I establish who I'm going to study under,... It is best they she know of my condition. For now,... my two friends that I go with are aware of my problems.
Ben

Ben - The link below is pretty informative about what one should do in Yoga, meditation, etc. It makes a lot of sense what is suggested, as well. Also, in case you haven't already, you may just want to give your yoga instructor a heads up about your medical history. That way, in case anything were to happen, she is aware of your background. Ohmmm is right:-)
http://www.livestrong.com/article/349655-brain-aneurysms-and-yoga/
Also, you might enjoy the website of anat baniel. She is a Feldenkrais practitioner with a background in dance and an advanced degree in psychology. She does amazing work with special needs kids and adults; her strong belief is that the brain is incredibly "plastic" or changeable AND movement can change the brain. It's fun just to visit the website. Had I not looked into all this alternate training, I wd have been a "yoga drop-out" since following the group was just going to make me hurt the next day. Like you, I need all the good days I can get. So I could not risk soreness from a yoga class (that wasn't going to bother any one else but me) Enjoy!
Comment by Ben Mrl on January 12, 2013 at 8:19am Thanks eileen, I appreciate it. I'm going to look for it.
sara meeks PT MS "WALK TALL; An exercise program for the prevention and treatment of back pain, osteoporosis and the postural changes of aging".foam rollers are discussed. The yoga teacher I went to was trained in Meeks and used all these accomodations. She retired soon after I met her, so used the book to plan yoga myself.
I bought it on amazon so I'll check there...
Comment by Ben Mrl on January 11, 2013 at 12:46pm Eileen,
What's the title of the book? I'm having a hard time searching for it by the author's name on the "Barnes & Noble" site..... Thank you

Hey Ben,
According to this article (pg. 2) in Stroke Connection, you & others practicing yoga are onto something good! http://www.nxtbook.com/nxtbooks/aha/strokeconnection_2013winter/#/4
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Amyloidosis
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Ehlers-Danlos Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Guillain-Barre Syndrome (GBS)
Lupus
Lyme Disease
Multiple Myeloma
Myositis
Narcolepsy
Nephrotic Syndrome
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Sjogren's Syndrome
Synovial Sarcoma
Traumatic Brain Injury (TBI)
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
Help spread the word about our newest communities by sharing on your Facebook wall: Acute Disseminated Encephalomyelitis, ADD, Amyloidosis, Disabilities,Fabry, Guillain-Barre Syndrome, Lyme Disease, Myositis, Narcolepsy, Nephrotic Syndrome, Sjogren's Syndrome, Traumatic Brain Injury, Von Willebrand's Disease.
Posted by Ben on May 24, 2013 at 10:00am 0 Comments 1 Like
Dear AVMSurvivors Family and Friends,
Celebrating Awareness Months for specific rare diseases are a great way of procuring attention to our cause. By discussing our condition and helping to educate others, our active participation creates…
ContinuePosted by mamaginof3 on May 9, 2013 at 3:13pm 14 Comments 0 Likes
Posted by Fish on May 10, 2013 at 3:25pm 1 Comment 0 Likes
My husband has HHT . Daughter has been tested but no results yet. Praying God spares my children. I have two granddaughters. I have another daughter who has not been tested. We found the HHT Center in Chapel Hill after years of nosebleeds. He has…
ContinuePosted by Michael on May 2, 2013 at 3:14am 5 Comments 1 Like
Hello there,
how it's for you? In my case, I have the paralysis since last october 2012. Before that I was very active with cross country running, dogsport, and so on. The good thing: In my dreams I had no Paralysis. I run in my dreams,…
ContinuePosted by tdz103m on May 2, 2013 at 5:34am 5 Comments 5 Likes
I don't know exactly when it happened because I slept through May 1, 2012. All day.
May 2, I was able to move around a bit. May 3 a bit more but by May 4th I was feeling in the deepness of it and told my wife to dial 911 and it was into the…
Posted by Armando A. on April 21, 2013 at 8:00am 0 Comments 2 Likes
After being featured on a number of publications,…
© 2013 Created by BensFriends.org

You need to be a member of AVMSurvivors.org to add comments!
Join AVMSurvivors.org