I know I am so horrible about this. I am still trying to balance things out. Well Miss Bethany is doing so awesome! She is now 22 months and is sitting up, eating more then before and her biggest milestone is crawling!!! She army crawls everywhere now and is getting into things! I LOVE IT!!!! Her fingers are also moving all ten of them. Even though she can't open her hands fully you can see them moving like she is trying to open them. She does have 4 fingers that do work awesome. I love when she uses her pointer fingers to poke her nose...LOL Her last day of therapy was December 28th. She don't go back till March. Very sad about that! Her therapist gave her the name of Diva B. and she lives up to that name...lol She has caught the flu along with strep and a viral infection that led us to the ER the other day. She just could not breathe. They suctioned her out and now she is much better. She is so amazing! I just love her so much and she gives me strength
!
Comment
Comment by Veronica on January 14, 2013 at 3:34pm Thank you all! Barbara I looked up those bows. They are very cute! She does have a lot of strength! Thank Ninibeth My other two girls help me name her :-)

So glad to know that your beautiful girl is doing well.. Love her name :-)
It's such wonderful news about Bethany! I think the little Diva has more strength and determination than anyone realizes :) it's awesome to hear she's doing well and God willing, she'll go from strength to strength...xoxo

This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Amyloidosis
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Ehlers-Danlos Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Guillain-Barre Syndrome (GBS)
Lupus
Lyme Disease
Multiple Myeloma
Myositis
Narcolepsy
Nephrotic Syndrome
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Sjogren's Syndrome
Synovial Sarcoma
Traumatic Brain Injury (TBI)
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
Help spread the word about our newest communities by sharing on your Facebook wall: Acute Disseminated Encephalomyelitis, ADD, Amyloidosis, Disabilities,Fabry, Guillain-Barre Syndrome, Lyme Disease, Myositis, Narcolepsy, Nephrotic Syndrome, Sjogren's Syndrome, Traumatic Brain Injury, Von Willebrand's Disease.
Posted by mamaginof3 on May 9, 2013 at 3:13pm 14 Comments 0 Likes
Posted by Fish on May 10, 2013 at 3:25pm 1 Comment 0 Likes
My husband has HHT . Daughter has been tested but no results yet. Praying God spares my children. I have two granddaughters. I have another daughter who has not been tested. We found the HHT Center in Chapel Hill after years of nosebleeds. He has…
ContinuePosted by Michael on May 2, 2013 at 3:14am 5 Comments 1 Like
Hello there,
how it's for you? In my case, I have the paralysis since last october 2012. Before that I was very active with cross country running, dogsport, and so on. The good thing: In my dreams I had no Paralysis. I run in my dreams,…
ContinuePosted by tdz103m on May 2, 2013 at 5:34am 3 Comments 4 Likes
I don't know exactly when it happened because I slept through May 1, 2012. All day.
May 2, I was able to move around a bit. May 3 a bit more but by May 4th I was feeling in the deepness of it and told my wife to dial 911 and it was into the…
Posted by Armando A. on April 21, 2013 at 8:00am 0 Comments 2 Likes
After being featured on a number of publications,…
© 2013 Created by BensFriends.org

You need to be a member of AVMSurvivors.org to add comments!
Join AVMSurvivors.org