We are AVM survivors, here for your support.
Long time
Hey every one I know I have been off for awhile. I have been trying to get myself ready for school, and boy it is hard. Anyways, recently I have been experiening really bad knee pain now when working out just like when my feet fall asleep. I don't think I can win. Some days I can't even sleep with the pain of my knees and it sucks. I see three of my doctors in one day and I'm interested in what they will say. I see my eye Dr and I can't wait hopefully some good new about my poor eye. I might go back into the hospital to take more test my surgeon said which is sad to me. Going to school is really hard, but I am trying and I feel an accomplishment. Everyone have a good day.
Comment
-
Comment by Deb C. on August 21, 2012 at 2:36pm -
Good afternoon,
While the test may be a sad thought, it might be good in the aspect that it could lead to help you.
Also, I checked your profile to see if you were a member of Extremity AVM's. There are a lot of people who have leg related problems, and they might be able to give you more specific help.
I also have some problems with one of my eyes. I have problems keeping it open at times, and I fight with double vision off and on. Hope your doctor can help.
All the best,
Debbie
PLEASE LIKE US ON FACEBOOK AND FOLLOW BENS FRIENDS ON TUMBLR AND TWITTER AND PINTEREST
To Support AVMSurvivors.org, Click an Ad. Or Two.
Powered by BensFriends.org
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Amyloidosis
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Ehlers-Danlos Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Guillain-Barre Syndrome (GBS)
Lupus
Lyme Disease
Multiple Myeloma
Myositis
Narcolepsy
Nephrotic Syndrome
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Sjogren's Syndrome
Synovial Sarcoma
Traumatic Brain Injury (TBI)
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
Our Newest Communities
Help spread the word about our newest communities by sharing on your Facebook wall: Acute Disseminated Encephalomyelitis, ADD, Amyloidosis, Disabilities,Fabry, Guillain-Barre Syndrome, Lyme Disease, Myositis, Narcolepsy, Nephrotic Syndrome, Sjogren's Syndrome, Traumatic Brain Injury, Von Willebrand's Disease.
Join the Ben's Friends Mailing List
Photos
Blog Posts
confusion as symptoms mount... time for new dr?
Posted by mamaginof3 on May 9, 2013 at 3:13pm 14 Comments 0 Likes
HHT Diagnosis or Suspected
Posted by Fish on May 10, 2013 at 3:25pm 1 Comment 0 Likes
My husband has HHT . Daughter has been tested but no results yet. Praying God spares my children. I have two granddaughters. I have another daughter who has not been tested. We found the HHT Center in Chapel Hill after years of nosebleeds. He has…
Continue
Dreams... changing
Posted by Michael on May 2, 2013 at 3:14am 5 Comments 1 Like
Hello there,
how it's for you? In my case, I have the paralysis since last october 2012. Before that I was very active with cross country running, dogsport, and so on. The good thing: In my dreams I had no Paralysis. I run in my dreams,…
Continue
One year since my bleed, more or less
Posted by tdz103m on May 2, 2013 at 5:34am 4 Comments 5 Likes
I don't know exactly when it happened because I slept through May 1, 2012. All day.
May 2, I was able to move around a bit. May 3 a bit more but by May 4th I was feeling in the deepness of it and told my wife to dial 911 and it was into the…
Ben's Friends Co-Founder Scott Orn Featured on Thoughtbot Podcast
Posted by Armando A. on April 21, 2013 at 8:00am 0 Comments 2 Likes
Events
© 2013 Created by BensFriends.org
You need to be a member of AVMSurvivors.org to add comments!
Join AVMSurvivors.org