as some of you know i was released from rehab on April 1 soon after i receved a letter from my job letting me know that my short term disabilaty was up and if i was aproved a would be able to keep my job well i was not aproved my benefit went with my job they sent me a lettler from cobra a company that let you pay for your health insurance at a higher rate well since i don't have a job is only my husband we could not pay the insurance now how am i going to get my meds go to therapy go to the doc i have not been in therapy in about a month 1/2. i guess i have 2 waite till january till he can aply for health insurance for the both of us

Views: 0

Comment

You need to be a member of AVMSurvivors.org to add comments!

Join AVMSurvivors.org


Moderator
Comment by Alicia on October 9, 2009 at 10:24pm
i really empathise with the situation you are in ..i can understand how diffiicult these times are...we have had to remorgage our home along with my parents and inlaws to pay 300,000 for my lifesaving operation and its not easy to repay the repayments when only my husband works because i am still physically unable too...the only advice i can offer through all this is dont let it get you down...always look at the positives ...you are still here ...and you will get through this just stay positive ....dont let it worry you thats the last thing you need....thinking of you and praying for a quick and easy solution to this problem xxxx
Comment by Liz Ray on October 7, 2009 at 8:41pm
Hello! Our thoughts and prayers are with you! My husband and i have to pay cobra insurance and it is hard. But the job he had, he was able to pay while he worked for long term disability benefits and that has kept us afloat. He has also applied for SSD. He is also waiting to go before a judge. This is a VERY stressful thing to have to deal with! Alot of hospitals here offer big discounts for those who dont have insurance, some offer slow pay and they dont care how long it takes to get it paid off, and 2 of the hospitals we have dealt with have assistance programs--although we do have insurance we still had deductables and those hospitals sent me papers to be filled out and we ended up not having to pay what was left over. You might try to contact your doctors and hospital that you go to and see if they have any programs like this. I truly hope this helps. But one thing you should know is that you should contact them before you are turned over to a credit bureau, because they cant help after that happens. I am praying for you and your family. Take care, Liz
Comment by JW Faith/Hope on October 6, 2009 at 7:01pm
thanks all for your support i am going to start some at home therapy with my mom
Comment by Deb C. on October 6, 2009 at 3:53pm
Maybe the Partnership for Prescription Assistance and help with your drugs. Here is the link:

http://www.pparx.org/

I also agree with Margaret about trying to do some of the therapy exercises at home if you can. I made more progress outside of therapy than when I was going to it. My thoughts are with you as well.

Take care,

Debbie
Comment by Joy on October 6, 2009 at 11:08am
I don't understand American healthcare but I hope somehow you can get some of what you need?? Seems so crazy and unfair to me.
My thoughts are with you. Sometimes things have a way of working out and I hope that happens for you.

Moderator
Comment by Trish on October 6, 2009 at 10:38am
Yes, if your deficits are such that you can no longer work, you should apply for SSD. However,it can be a very long and frustrating process so be prepared for that. In my state, 80% of claims are denied and it can take a total of 2 1/2 years before you get benefits if you do eventually win them. Believe me, I'm going through this right now. I was denied twice and now am waiting to get a date for a hearing in front of a judge. I am told that this can take up to 20 months. I do have a lawyer, as I'm told you cannot win without one. I know what you're going through. At the time of my bleed, I was the primary bread winner in our family and all of the insurance was through my job. After a failed attempt to return to work, I left and so did my health insurance. It took quite a while for my husband to get a job, but eventually he did. Just hang in there but do check in to SSD.
Comment by Andrea Fisher on October 6, 2009 at 10:15am
You should apply for SSD. I applied right after I went out of work. The dr.'s told me I couldn't work till this was all taken care of and see how I am at that point. And your husbands company doesn't have an open enrollment sooner? Even with a change of you losing your job and health state? Sorry about your situation i know how you feel to a point. Hope it works out for you!!!!
Comment by margaret vedder on October 6, 2009 at 9:52am
you will get through this, please stay positive.

this is not what you need to be going through at this time, but do what you can to help yourself.
if you cant go to rehab, try your hardest to do some rehab of your own at home.

i really dont know what to say, one thing i do know is that you are a fighter, do not give up.
pls keep us posted on how you are.

xxx

Follow AVMSurvivors and Ben's Friends

To Support AVMSurvivors.org, Click an Ad. Or Two.

Advertise With Us

Photos

Loading…
  • Add Photos
  • View All

Blog Posts

My story

Posted by chels925 on June 3, 2012 at 10:37am 0 Comments

Hello everyone. While I do not have a AVM, mine is only a VM. It is in my right cheek. I have been undergoing treatment for it since 2006. My first treatment was in September 2006. I had some complications (I got an infection and went septic). I…

Continue

I moved on ... but I cant escape

Posted by Dansky on June 3, 2012 at 7:15am 0 Comments

The first rupture of my AVM brought me to total shutdown you could say. from normalcy to all of a sudden a twist of life.

I move on ... but I cant escape...

I was at work (luckily I was in office, crowded, people are present, the…

Continue

Away for 5 weeks

Posted by ramona777 on June 2, 2012 at 3:51am 2 Comments

Hi to all my newfound friends . may not be online much in the next 5 wks but wanted to say to each and every one of you, many thanks for your welcome, friendship and support. be back soon. If anyone can advise me how to join AVM australia? Thank…

Continue

the appioment went.......

Posted by Celina on May 31, 2012 at 8:59pm 2 Comments

it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.

Starting to understand everything...

Posted by Hannahpoppe on May 30, 2012 at 12:45am 3 Comments

Hi everyone!

I'm a new member here...

I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…

Continue

Of Seizures

Posted by Jaime G. on May 29, 2012 at 7:32am 1 Comment

I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…

Continue

Facebook Feature Supports Organ Donation

Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments

We never realize the value of organ donation, until we're on the receiving end.…



Continue

NUMBNESS

Posted by josh54 on May 28, 2012 at 12:20pm 2 Comments

My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…

Continue

© 2012   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service