We are AVM survivors, here for your support.
Lacey Writes
keep fighting , Lacey
March 11 2010. After being denied by Saint Johns I started calling around again, all of the local hospitals said that they couldn't help me. A nice lady at UCI told me to apply for MSI again and that after I got a rejection letter I could try to apply for their charity program. I went to the MSI office and applied. I was heartbroke when I found out it would take 4-6 months just to get my application reviewed and get a response. I started calling around again and this time a woman at Saint Joseph's recommended I call the California assemblymen and see if there was any way to fight the decision. I called a few offices and left messages, at first I called mostly democrats. I figured they'd have more resources in this area. After Awhile I just started calling down the list. Four different people called me back. all very sympathetic and helpful. I tried a few different things they assemblymen weren't getting anywhere either. They couldn't fight the denial, so Marco a aide at speaker Bass' office after arguing with St. Johns with no sucess transferred my information to Kevin at Assemblyman Harmon's office he contacted my MSI caseworker and he had my case put on the top of the list a got a response two days later. I WAS ACCEPTED !!! I couldn't believe it. And ironically they called me bright and early to tell me. I am so relieved and so blessed Thank you to everyone who prayed for me and offered me help. You made this happen. My only reservation is that I won' be able to have Doctor Kassaam be my surgeon. He cares and I trust him, he is a wonderful person. I know god has a plan for me and everything will work out the way it should.
March 11 2010. After being denied by Saint Johns I started calling around again, all of the local hospitals said that they couldn't help me. A nice lady at UCI told me to apply for MSI again and that after I got a rejection letter I could try to apply for their charity program. I went to the MSI office and applied. I was heartbroke when I found out it would take 4-6 months just to get my application reviewed and get a response. I started calling around again and this time a woman at Saint Joseph's recommended I call the California assemblymen and see if there was any way to fight the decision. I called a few offices and left messages, at first I called mostly democrats. I figured they'd have more resources in this area. After Awhile I just started calling down the list. Four different people called me back. all very sympathetic and helpful. I tried a few different things they assemblymen weren't getting anywhere either. They couldn't fight the denial, so Marco a aide at speaker Bass' office after arguing with St. Johns with no sucess transferred my information to Kevin at Assemblyman Harmon's office he contacted my MSI caseworker and he had my case put on the top of the list a got a response two days later. I WAS ACCEPTED !!! I couldn't believe it. And ironically they called me bright and early to tell me. I am so relieved and so blessed Thank you to everyone who prayed for me and offered me help. You made this happen. My only reservation is that I won' be able to have Doctor Kassaam be my surgeon. He cares and I trust him, he is a wonderful person. I know god has a plan for me and everything will work out the way it should.
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Comment by Suzi Santamaria-Kono on March 19, 2010 at 3:19am -
Praying for your girl, yourself and your family-
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Comment by Mindy DeLaTorre on March 15, 2010 at 12:22pm -
Lacy-
I'm so happy to hear everything went through we have been keeping you in our prayers and will continue to do so!
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Comment by Jamie Pantelis on March 15, 2010 at 11:33am -
My heart is singing. Wonderful news.
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Comment by James Larken Smith on March 14, 2010 at 9:34pm -
Way to work them phones! Congrats!
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Comment by Deb C. on March 14, 2010 at 7:14pm -
Congrats!
Debbie
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Comment by JW Faith/Hope on March 14, 2010 at 2:18pm -
i went to the website is amazing i love it i sent an email cause i want to be part of this is so great i also sent you some ideas that i have just let me know if you agree or if you would like me to contact them cause i would love to make a change for me and for lacey .
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Comment by Joy on March 13, 2010 at 4:10pm -
I think you are an amazing young woman. That "Quilt for Healthcare" project that you started is so wonderful too, and I hope you are able to continue on with that project and get it sent to your president. SO glad you are going to get treatment now. Congrats on fighting for yourself, which is so hard to do.
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Comment by Mario Ontiveros on March 13, 2010 at 2:32pm -
Hello Wendy, Oh My God you must go to my daughters web site www.quiltforhealthcare.org, I just read your profile and your story and my daughters story are so much alike, NO HEALTHCARE INSURANCE and the struggles we face with the current healthcare system, you could help us share the stories of our struggles with others who share similar experiences
Mario Ontiveros
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Comment by Mario Ontiveros on March 13, 2010 at 2:24pm
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Thank you Wendy, yes you are correct we are so releived to know she will now get the medical attention that she needs, and it has brought me together with my old high school friends that I had not seen in 20 years, they putting together a fund raiser for Lacey, they have been so supportive, Have A Great day
Mario Ontiveros
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Comment by JW Faith/Hope on March 13, 2010 at 1:14pm
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i am soooo happy to hear that it bring tears to my eyes to hear this good news i am happy for you cause now you have peace of mind i am happy for your family , congrats this avm is the worst but it brings many people together as one cause only us know the struggle we go through love wendy xox
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