Joshua Aguilar August 12, 1994 - April 22, 2010 Our forever Miracle...

On January 26, 2010 at 1:30am Joshua's AVM ruptured and bled. Joshua was admitted to Children's Hospital, Los Angeles. On the evening of January 26 Joshua went into a coma as a result of a 2nd bleed in the brain. Joshua was then put on a ventilator.

Joshua was in a coma for about a month , his mom was told to take him home on hospice care because there was no hope for recovery or him coming out of the coma due to the size and the location of the bleed. On March 2, 2010 Joshua came home and on March 12 Joshua started to shake his head no and nod his head yes. A week later on March 20 Joshua spoke for the first time, he said yes, no and mom.

From March 12 until April 19th Joshua wasn't able to walk, but he smiled, he cried, he told jokes, he said I love you, he did things the doctors said were impossible. With his family by his side they were able to witness that miracles really do happen.

The afternoon of April 19th Joshua had another bleed that put him into a coma, which he never woke from. On April 22nd at 2:10am Joshua took his last breath.

Joshua's life was a miracle. Joshua fought especially hard these last few months of his life. He fought the good fight and finished his race in life. We were lucky enough to have Josh for one month where he was able to talk to us, tell us his jokes and make some pinky promises.

Unfortunately Josh lost the battle with the bleeds and the constant seizures. He will be missed but never forgotten, he was a best friend, a great brother but most of all a loving son.

"...Trust in the Lord with all your heart and lean not on your own understanding. In all your ways acknowledge Him and He shall direct your path..."

Proverbs 3:5& 6

Views: 12

Comment

You need to be a member of AVMSurvivors.org to add comments!

Join AVMSurvivors.org


Moderator Comment by Kim (Jaclyn's mom) on July 2, 2010 at 9:17am
So sorry to hear this. My son's birthdate is also Aug 12th but of 1995. My heart goes out to you and your family and this pain will never leave you. Thank you for sharing your story of Joshua and know that we are here forever for your support.
Comment by Dawn on April 27, 2010 at 1:52am
My deepest sympathy, I have a son named Joshua which means the chosen one. He as you know was a strong, courageous leader as well. I believe your Joshua showed the strength and character of a chosen one who was a fighter and tho he is not suffering anymore, you suffer because we miss those we love when they leave us. God Bless you with comfort during your time of loss~ Sincere regards - Dawn
Comment by Andrea Fisher on April 26, 2010 at 10:24am
I just want to say that i'm so sorry for your loss and that i am so glad his family and friends were able to talk with him and have those good memories of him in the last month of his life. That no one thought they would have again!! Seems how he had a big fight going on for most of it. He is a true miracle. God bless,
Andrea
Comment by Deb C. on April 26, 2010 at 8:37am
Hi Mindy,

I'm sorry that Josh is no longer with us. But the fight that he showed in his last days was courageous and inspiring.

God bless,

Debbie
Comment by Anabel Meza on April 26, 2010 at 12:55am
I'm so sorry for you lost...Thank you for been with josh on his journey.

Moderator Comment by Shalon on April 25, 2010 at 6:39pm
So sorry to hear of your loss. What a small blessing to have had that extra month to let Joshua know that he was loved, and for him to get to interact with all of those that he loved.
Comment by Joy on April 25, 2010 at 2:06pm
My condolences to you and your family. You have been in inspiration to all of us who followed Josh's miracle progress after his first bleed.
Comment by Toni Yeomans on April 25, 2010 at 1:53am
I'm sorry for your loss, my heart and thoughts go out to you, and the family. *hugs*

Moderator Comment by pauline horsley on April 24, 2010 at 11:41pm
My prayers go out to you.

Follow AVMSurvivors and Ben's Friends

Follow Me on Pinterest

To Support AVMSurvivors.org, Click an Ad. Or Two.

Advertise With Us

Powered by BensFriends.org

This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.

Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Amyloidosis
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Lupus
Multiple Myeloma
Myositis
Narcolepsy
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Synovial Sarcoma
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases

Photos

Loading…
  • Add Photos
  • View All

Blog Posts

My story

Posted by chels925 on June 3, 2012 at 10:37am 0 Comments

Hello everyone. While I do not have a AVM, mine is only a VM. It is in my right cheek. I have been undergoing treatment for it since 2006. My first treatment was in September 2006. I had some complications (I got an infection and went septic). I…

Continue

I moved on ... but I cant escape

Posted by Dansky on June 3, 2012 at 7:15am 0 Comments

The first rupture of my AVM brought me to total shutdown you could say. from normalcy to all of a sudden a twist of life.

I move on ... but I cant escape...

I was at work (luckily I was in office, crowded, people are present, the…

Continue

Away for 5 weeks

Posted by ramona777 on June 2, 2012 at 3:51am 2 Comments

Hi to all my newfound friends . may not be online much in the next 5 wks but wanted to say to each and every one of you, many thanks for your welcome, friendship and support. be back soon. If anyone can advise me how to join AVM australia? Thank…

Continue

the appioment went.......

Posted by Celina on May 31, 2012 at 8:59pm 2 Comments

it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.

Starting to understand everything...

Posted by Hannahpoppe on May 30, 2012 at 12:45am 3 Comments

Hi everyone!

I'm a new member here...

I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…

Continue

Of Seizures

Posted by Jaime G. on May 29, 2012 at 7:32am 1 Comment

I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…

Continue

Facebook Feature Supports Organ Donation

Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments

We never realize the value of organ donation, until we're on the receiving end.…



Continue

NUMBNESS

Posted by josh54 on May 28, 2012 at 12:20pm 2 Comments

My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…

Continue

Events

© 2012   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service