We are AVM survivors, here for your support.
It's Been A while
Wellll First In the Summer i went to Jefferson Hospital in Philadelphia and saw Dr. Jabor for my 2 Year check up and everything is clear!! No AVM!! woo hoo! It was such a great feeling, i was so worried the week before b/c that was my biggest fear that it would come back. I was told that there was a slight chance it could come back and knowing my luck that would be me...but besides that everything is going good.
It has been over a year since my last Seizure!! September of '08 was my last... what a great feeling it is to finally have a medicine that works and for my seizures to finally be under control and not have to be in fear of them all the time.
Also i am back in school and i am actually doing pretty good! Thank god!.... I really hope everyone is doing good and if anyone needs someone to talk to I am hear! You will all be in my prayers always!
Love,
Bridget
Comment
-
Comment by Bridget Fitzgerald on November 30, 2009 at 4:05pm -
Thanks guyss!!!!
-
Moderator Comment by pauline horsley on November 29, 2009 at 2:50pm -
Glad to hear your good news ....no seizures....You are prof that we can get rid of our AVM's.
Thank you for keeping us posted.
-
Moderator Comment by Ben Munoz on November 29, 2009 at 2:37pm -
Great to hear that things are going well. Don't worry about not visiting regularly. Like a family, we're here when you need us.
-
Comment by marianne elizondo on November 28, 2009 at 5:05pm -
Congratulations Bridget !!
You are doing an amazing job for yourself and I know it can be hard work .
You should be so very proud of all you have accomplished and the fact that you continue to move forward to accomplish more ! Excellent work young woman !! You have come a long way on your journey since Prom night and you are proof of the possibilities .....
Thank you for sharing the good news .
Be good to you . Take care of you .
Follow AVMSurvivors and Ben's Friends
To Support AVMSurvivors.org, Click an Ad. Or Two.
Powered by BensFriends.org
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Amyloidosis
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Lupus
Multiple Myeloma
Myositis
Narcolepsy
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Synovial Sarcoma
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
Photos
Blog Posts
My story
Posted by chels925 on June 3, 2012 at 10:37am 0 Comments 0 Likes
Hello everyone. While I do not have a AVM, mine is only a VM. It is in my right cheek. I have been undergoing treatment for it since 2006. My first treatment was in September 2006. I had some complications (I got an infection and went septic). I…
Continue
I moved on ... but I cant escape
Posted by Dansky on June 3, 2012 at 7:15am 0 Comments 0 Likes
The first rupture of my AVM brought me to total shutdown you could say. from normalcy to all of a sudden a twist of life.
I move on ... but I cant escape...
I was at work (luckily I was in office, crowded, people are present, the…
Continue Away for 5 weeks
Posted by ramona777 on June 2, 2012 at 3:51am 2 Comments 0 Likes
Hi to all my newfound friends . may not be online much in the next 5 wks but wanted to say to each and every one of you, many thanks for your welcome, friendship and support. be back soon. If anyone can advise me how to join AVM australia? Thank…
Continue
the appioment went.......
Posted by Celina on May 31, 2012 at 8:59pm 2 Comments 0 Likes
it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.
Starting to understand everything...
Posted by Hannahpoppe on May 30, 2012 at 12:45am 3 Comments 0 Likes
Hi everyone!
I'm a new member here...
I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…
Continue
Of Seizures
Posted by Jaime G. on May 29, 2012 at 7:32am 1 Comment 0 Likes
I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…
Continue
Facebook Feature Supports Organ Donation
Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments 0 Likes
We never realize the value of organ donation, until we're on the receiving end.…
NUMBNESS
Posted by josh54 on May 28, 2012 at 12:20pm 2 Comments 0 Likes
My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…
ContinueEvents
-
Coffee in Rockhampton
October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
2 Comments 1 Like
© 2012 Created by BensFriends.org
You need to be a member of AVMSurvivors.org to add comments!
Join AVMSurvivors.org