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Increased frequency of seizures around 18 months after Gamma Knife
Hi Guys I've just joined today for some additional support from people who are going through similar situations. I'm from the U.K and am only 20 and had my Gamma Knife Radiosurgery 18 months ago. From being diagnosed with an AVM I was put onto a very small dose of Keppra only 500mg twice daily and was seizure free for 16 months during this time I had gamma knife and had a seizure almost a year after and then another seziure 3 weeks ago.
I can understand one of my seizures as I was sick on the morning and didn't take any more medication but the seizure 3 weeks ago is really strange especially since I'd never had a seizure for all 18 years of my life before.
I'm just wondering if anyone else has had an increase in seizures during the 'healing process' of the treatment while on medication?
Thanks for any help posted and will try to comment on any posts I feel I have relevant information on!
Laura
Comment
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Comment by L.E.A on January 7, 2013 at 5:59am -
Thanks for all the posts guys! I have been to see my neurologist and I am due to see a specialist epilepsy nurse on thursday...I am going to have an MRI scan to see if there is any swelling in the area but my neurologist just said that seizures are weird and I will always be at risk after my GK treatment is complete due to the scar it leaves. I have been increased on to the highest dose of Keppra now so hopefully that will help me too! stay strong everyone!
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Comment by Theresa Rose on December 26, 2012 at 7:39pm -
L.E.A.,
My question is if you had any kind of trauma. I was in a car accident (soft tissue damage) after many years of being seizure free. The brain is very electrical and even the most minor of trauma can bring on a seizure. But I do agree - go see the dcotor!
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Comment by Ben Mrl on December 21, 2012 at 8:43am -
L.E.A.,
I suggest you get hold of you dr. You may need to try a different seizure med. My seizures got worst 2 years after my GK. I was on tegretol (200 mg time release 2 x a day)for mine. For some reason - my system changed and the tegretol stopped working for me. Instead of helping me, it made them worst.
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Moderator Comment by Barbara H. on December 20, 2012 at 11:01pm -
Hi Laura. You may wish to join this sub- group...http://www.avmsurvivors.org/group/avm-with-seizures-epilepsy. They may have more info and answers for you.
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