We are AVM survivors, here for your support.
Hi All, It's been a while!
Jacob is doing brilliantly in every way, he is sports mad and has represented school playing rugby (never thought I would see that day, well I didn't I was too scared to watch) and he ran cross country and came 25th out of 59 which just proved yet again that he is my super hero.
He is also playing golf, short tennis, swimming and has recently taken up tai kwon do.
We will see the paediatrician in the summer and may be able to reduce the epilepsy meds which would be fantastic.
Big Hugs and lots of positive vibes to all xxxxxxxxx
Views: 0
Comment
-
Comment by Marie Hudson on March 7, 2010 at 5:55pm -
Hello Clare,
It's awesome to read about Jacob's advancements, I know you are so proud, Glad to hear he is doing well, and praying for reduction/no seizure meds soon!
Marie
Follow AVMSurvivors and Ben's Friends
To Support AVMSurvivors.org, Click an Ad. Or Two.
Powered by BensFriends.org
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Autism
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Hepatitis C
Lupus
Multiple Myeloma
Myositis
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Synovial Sarcoma
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
© 2012 Created by BensFriends.org
You need to be a member of AVMSurvivors.org to add comments!
Join AVMSurvivors.org