it was great to be home but without but i still had this fear and anxious about the future,it was about two or three weeks before i started rehab again physio speech and OT,i was so nervios about seeing my doctor to finally show me and tell me the AVM is complettly gone

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Comment by Tricia on March 26, 2010 at 2:05am
So glad to be a friend

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Comment by Hanne on February 25, 2010 at 10:07pm
Shane, just want to say that whatever the future bring, I will always be here for you if you need someone to talk to.
Love
Hanne xxx

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Comment by Gordon D on February 24, 2010 at 8:55am
Shane
I"m sorry to hear you having some rough times ,but I wanted you to know that your beautiful pictures have help me through alot of rough timeand I wish I knew a way to return favor.
Hang there Gordon
Comment by Virginia L. Davies on February 23, 2010 at 9:25pm
Hi, we are all so very different. I know it is hard, but try to take deep breaths and drink lots of water and let the fear and anxioty go. What you know, that so many people walking around, don't know, is that life does not happen like you planned. YOu are so far ahead of the normal person. You know what is true, you are going to have to work hard to recouver and make the best of your life that you can. I wish I could do so many things that I used to be able to do. The more I worry about that, the sadder I will be. I just have to go to physical therpy and play with my animals and take joy in my kids and wherever I can find it. I know it is hard when you are first facing that life is not howyou planned. I hope you can find peace - believe me - noone really knows what the next day holds. Best of luck and courage in the days that are coming - Virginia

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Comment by Ninibeth Ramirez on February 23, 2010 at 8:12am
It’s normal to be scared, we are humans. I understand, now it’s the reality and train to return to our lives. Do not let your fears get caught. The hard part is gone. See things slowly day by day. Life has given you a wonderful opportunity for another chance, take it and enjoy it. Think positively and that things will get better Best of lucks!!!

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Comment by Alicia on February 23, 2010 at 12:42am
shane,
dont fear or worry about the future...you have the strength enough for the present and thats all you need. allow yourself the luxury of peace, and dont take on more than you have to...live in the moment not freeting about the past or worrying about the future ...take one day at a time and enjoy your life and celebrate it everyday...best wishes for your continued recovery ...stay strong ...keep positive and always believe xox

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My story

Posted by chels925 on June 3, 2012 at 10:37am 0 Comments

Hello everyone. While I do not have a AVM, mine is only a VM. It is in my right cheek. I have been undergoing treatment for it since 2006. My first treatment was in September 2006. I had some complications (I got an infection and went septic). I…

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I moved on ... but I cant escape

Posted by Dansky on June 3, 2012 at 7:15am 0 Comments

The first rupture of my AVM brought me to total shutdown you could say. from normalcy to all of a sudden a twist of life.

I move on ... but I cant escape...

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Posted by ramona777 on June 2, 2012 at 3:51am 2 Comments

Hi to all my newfound friends . may not be online much in the next 5 wks but wanted to say to each and every one of you, many thanks for your welcome, friendship and support. be back soon. If anyone can advise me how to join AVM australia? Thank…

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the appioment went.......

Posted by Celina on May 31, 2012 at 8:59pm 2 Comments

it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.

Starting to understand everything...

Posted by Hannahpoppe on May 30, 2012 at 12:45am 3 Comments

Hi everyone!

I'm a new member here...

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Of Seizures

Posted by Jaime G. on May 29, 2012 at 7:32am 1 Comment

I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…

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Facebook Feature Supports Organ Donation

Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments

We never realize the value of organ donation, until we're on the receiving end.…



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NUMBNESS

Posted by josh54 on May 28, 2012 at 12:20pm 2 Comments

My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…

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