I have posted here a few times in the discussion area. But wanted to say that this place has given me a place to turn to know that I am not alone, that there are others out there that have AVMs, or are the caregivers to those with an AVM.

 

My wife has her next round of radiation on the 21st. Last time she had a 1.5 hour seizure, followed by a week of being paralyzed on her left side. She is very scared, and I suppose I am as well. We have gone through so much in so short a time. The doctors only give the procedure a 30-50% chance of working at all. They say they aren't even certain they will stop her bleeds. Her AVM is very large, and on her right side of her brain.

 

Pray for her please. Pray for us. We are praying for all of you.

 

Matt

 

http://hopeforpm.com/

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Comment by Autumn While on April 19, 2012 at 6:57pm

Hey Matt...I am praying for you & your wife...Emory was were I had my AVM surgery...I'm so sorry that yall are having to go through this...Stay strong!!!...Believe in MIRACLES!!!...They do happen!!


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Comment by Barbara H. on January 26, 2012 at 9:08pm

Hi Matt. Give your wife a big hug from me. The folks at Emory do understand AVMs. I will continue to pray for her!


Moderator
Comment by Lesley S, Queensland on January 26, 2012 at 8:47pm

Hello Matt & Paula, as Ninbeth said, I just can't imagine how terrible this is for you both. My thoughts & prayers are always with you. Just try to Believe Matt, not easy, I really know that but just try to Believe!!


Moderator
Comment by Ninibeth Ramirez on January 26, 2012 at 3:51pm
I can't imagine how hard it is for both of you... Hope that this month's can go relay fast so you and Paula can be together again.. Thanks for letting us informed.. I will pray for Paula to have a fast recovery... My best wishes... Ninibeth
Comment by Deb C. on January 26, 2012 at 7:42am

Hi Matt,

Sorry that Paula won't be able to be with you when she gets out of the hospital. Praying for progress in her recovery so she can return to you as soon as possible.

Take care,
Debbie

Comment by Matt Mihalek on January 25, 2012 at 7:09pm

Paula is still in the hospital. Well, gotten moved to rehab. She ended up having a decompressive craniectomy, and now is having to learn to do a few things she did so well before. The edema is just massive. She was doing well, but suffered a seizure and since has regressed some. She is due to get out on the 27th, but if she needs the care it seems, I won't be able to do it at home. She will have to go to her aunt's house for a few months. That is pretty far away from us. Will only get to see her on weekends. I hate this illness, and truly wish none of you had it.

Comment by Eugene W on January 20, 2012 at 10:42pm

Dear Matt, so sorry to hear. I am keeping you both in my prayers. Even though it is tough, continue to trust! Eugene

Comment by marcylynn on January 6, 2012 at 10:26am

Praying! So sorry to hear this :(

Comment by cullenbabe on January 5, 2012 at 6:10pm

Matt i will add your wife in my prayers tonight


Moderator
Comment by Ninibeth Ramirez on January 4, 2012 at 5:52pm
Matt, count on me... I will pray for her... My best wishes...

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My story

Posted by chels925 on June 3, 2012 at 10:37am 0 Comments

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the appioment went.......

Posted by Celina on May 31, 2012 at 8:59pm 2 Comments

it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.

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Posted by Hannahpoppe on May 30, 2012 at 12:45am 3 Comments

Hi everyone!

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NUMBNESS

Posted by josh54 on May 28, 2012 at 12:20pm 2 Comments

My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…

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