My boyfriend (age 27) suffered a stroke, due to an AVM rupture in the brain stem in July 2011. He has undergone Cyber Knife surgery in April 2012. He has numbness in one side of his body, difficulty with his memory, severe depression/anxiety/perseveration, and he is very unstable. He can use a walker to get around (still unstable, and needs assistance). He says he always feels "drunk."

I was wondering if there are any similar stories, or anyone who can help give ideas of what the future has in store for us. Any kind of help, as far as people with an AVM in the brain stem, or anyone who has undergone cyber knife surgery who can help with long-term side effects, would be greatly appreciated. Thank you so much!

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Comment by Milissa Tavarone on February 6, 2013 at 8:56pm
He was going for physical therapy, but he's been undergoing so many surgeries lately (corrective eye surgery to turn his eye straight, since it turned in from his stroke, and he needed a hernia removed, formed from putting a shunt in his head that goes down to his stomach).

He is on a lot of medications that may cause dizziness. He is trying to ween off of them, so hopefully once he is clear of the medications, the feeling will start to dwindle. I know the brain stem is a really dangerous part of the brain to have an avm, so I'm sure this will be a waiting game. Thank you for responding and good luck! :)

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Comment by Patti on January 31, 2013 at 11:19am

Hi Milissa,
It's frustrating and scary being in your positions.
The brain takes a very long time to heal, especially in the deep, eloquent locations. While we're all different in our recoveries, it can take mos. - years to improve.
Is he getting any rehab?
Is he on medications that may contribute to his feeling "drunk"?
And are his doctors aware of this?
My 4th surgery of 3/9/10 was in the right thalamus (near brainstem) & I required extensive neuro rehab (in-patient & out-patient) to relearn to walk & adapt to many changes.
Recovery improvements often come in 'baby steps', so never give up on the hope of improvement!
Best wishes.

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