I hope previous conversations with the doctors was a miscommunication. I emailed Dr.Kumpe, and he said there isn't any likelyhood that there is supply to the spinal canal so it isn't a spinal avm. And he says it's a fistula or 2 fistulae.

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Comment by Dionne on January 14, 2013 at 11:41am
Great point and questions dancermom! Thank you:)

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Comment by dancermom on January 14, 2013 at 4:25am
Dionne, make sure you see the scans yourself and understand exactly what is pictured. Ask lots of questions. Find out how many AVMs/AVFs Dr. Kumpe has treated. Ask what the plan will be for monitoring for revascularization after embolization. Ask what the embolic agent will be and why it was chosen; there are many different agents, and they have different properties. Did the CT scan have contrast? Will there be an angiogram done before the embolization?

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