Comment

Comment by Rachel Rios on May 12, 2009 at 1:11pm

Good to hear you found a new neuro doc. I'm an advocate of getting more medical opinions. Since my AVM was near my pituitary gland, I have had occasional problems with hormones and blood sugar control. I went to one endocrine expert (supposedly one of the best) who ordered MRI's and blood tests galore at hundreds of dollars a test. After a while, my insurance got fed up and stopped paying for them. He would say, "Hmmm, can't see much from this angle. Let's do it again from another angle." Aside from the expensive MRI's, I got charged $150 for 15 minutes of his time after each test. I know he's a specialist (and one of the best in his field), but come on! My family doctor and I decided for ourselves what to do next. Now my doctor has gone exclusively into academia, and I have to find a new one. Sigh. . . anyway, I pray that they find all their answers with your angio so that you don't have to do it again from "another angle". Joy's suggestion about the music was a good idea. Find out ahead of time if they'll let you listen to music. I wish they could put a TV inside the MRI machine. ;)

Comment by Joy on April 17, 2009 at 8:02pm

Great of your husband to keep calling. We all need someone like that in our corner. I'm glad too that you are getting another angio. Maybe you'll get some more answers. No, the laying on your back must not be fun...take music! Good news Connie.

Moderator Comment by Connie T on April 17, 2009 at 7:58pm

Thanks, Caroline!

Comment by Caroline on April 17, 2009 at 5:35pm

so happy connie,,about time they are doing something,,let me know how the tests go k,,hugs,,xxoo