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Tina Marie Thai commented on Tina Marie Thai's blog post 'AVM and Chiari together?'

Hi, Ben. I was actually looking for people that have both, like me. I do have a chiari group, wacma--it's nice. Sorry, I didn't mean to disrupt the AVM group...this place is for AVM survivors, I know.

Apr 2, 2010

Tina Marie Thai and Sheila Hillhouse are now friends Apr 2, 2010

Ben Munoz commented on Tina Marie Thai's blog post 'AVM and Chiari together?'

If you are looking to connect with someone with chiari, we just also have a sister patient community at http://www.chiarisupport.org

Apr 2, 2010

Tina Marie Thai updated their profile photo Mar 23, 2010

Tina Marie Thai replied to Nora Nichols's discussion 'CHIARI Malformation'

Hello. My name is Tina. I'm new here. I have an AVM in the cerebellum and Chiari 1. (5mm) I would like to know who helped your hubby-I'm having a hard time finding a Neuro to really listen and take me seriously. (*apparently this is not…

Mar 1, 2010

Tina Marie Thai commented on Ben Munoz's group 'Inoperable AVMs'

not sure if I belong here. One neuro says cavernoma, then neurosurgeon says its more like an AVM. it's deep into the cerebellum, been told it's a slow bleed-also been going crazy trying to get a neuro to listen to me, as i also have Chiari…

Mar 1, 2010

does anyone else here have a Chiari malformation in addition to AVM?

Status posted by Tina Marie Thai Mar 1, 2010

RODGER DEPRIEST left a comment for Tina Marie Thai

hello. HOW ARE YOU? JUST WANTED TO CHAT

Feb 23, 2010

AVM and Chiari together?

Just wondering ( Im NEW here) how common is it to have AVM and Chiari together? Thanx, Tina

Blog post by Tina Marie Thai Jan 25, 2010

2 Comments

Tina Marie Thai is now a member of AVMSurvivors.org Jan 25, 2010

Welcome Them!

Profile Information

Are you an AVM survivor, a relative, a friend, or a medical professional? (Required): AVM Survivor

When did the AVM bleed or, if there was no bleed, when was the AVM first discovered?: December 1, 2008

What is the status of the AVM?: Active

How was the AVM treated?: Not Treatable

Describe the AVM (location, size) if you know it.: in cerebellum, 15.7mm diameter

Please share your AVM experience. (Discovery, symptoms, treatment, recovery): one neuro calls it cavernoma, then neurosurgeon calls it AVM discovered thru ct and MRI's cuz of EXTREME HEAD AND FACE PAIN also recently learned I have Chiari 1 5mm

Would you like to recommend a surgeon, therapist, or a hospital?: no

Tina Marie Thai's Blog

AVM and Chiari together?

Just wondering ( Im NEW here) how common is it to have AVM and Chiari together? Thanx, Tina

Posted on January 25, 2010 at 2:29pm — 2 Comments

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At 9:28pm on February 28, 2010, Gordon D said…: Tina
The only member I could fine was Angela Marshall if you fallow this link you'll see her page.Hope this helps you,
Welcome to the site Gordon

http://www.avmsurvivors.org/profile/AngelaMarshall?xg_source=profiles_memberList