my grandpa kicked me out of my house which he still owns on paper cause i won't have the surgery that's got like a 30% chance of success. F
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Tanner Lunt
- Flagstaff, AZ
- United States
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Tanner Lunt's Discussions
CAPILLARIES! Does anyone have any other medical issues like DISEASES or trauma that they think could have caused the development of thier avm? I have MIXED CONNECTIVE TISSUE DISEASE!
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I was just wondering because several of my doctors think that i might. (Traci Frecht and William Cauldwell of U of Utah hospital) My father has a rare soft tissue disease called Mixed Connective…Continue
Started this discussion. Last reply by Barbara H. Jul 26, 2011.
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Barbara H. replied to Tanner Lunt's discussion 'CAPILLARIES! Does anyone have any other medical issues like DISEASES or trauma that they think could have caused the development of thier avm? I have MIXED CONNECTIVE TISSUE DISEASE!'
Yikes...on top of my prayer list...the reason I am on here...my husband and I both had a rare catastrophic illness and SURVIVED! Also, we are both Navy Brats! PS...my first cousin had a pulmonary AVM.
chillin like a villian in a dark cool house close to Barrow institute of Neurosciences. message me if ur in the area and eat with peeps
Status posted by Tanner Lunt
Tanner Lunt replied to Tanner Lunt's discussion 'CAPILLARIES! Does anyone have any other medical issues like DISEASES or trauma that they think could have caused the development of thier avm? I have MIXED CONNECTIVE TISSUE DISEASE!'
That's a tough life you led. thanks for fight ing for our country. i'm glad the VA is picking up the tab it's hard when you're young and in a country that insurance for someone like me costs 750 dollars. i couldn't afford it…
Tanner Lunt left a comment for Blake TImmons
hello blake. hope all is well. you messaged me a while back asking why my avm is inoperable. Dr. Spetzler didn't really say that he just said that givin it's location size and how close it is to eloquent brain tissue it would be very…
Anabel Meza left a comment for Tanner Lunt
Thank you so much for the gift!!!!!
my friend>
Blake TImmons left a comment for Tanner Lunt
Hi My name is Blake I live in Phoenix, I also have a ruptured avm as well as 2 more that have not I was wondering what other symptoms you have other than the seizures I also have seizures I have had 1 crainiotomy which went badly at saint joes my…
Kevin Rounds left a comment for Tanner Lunt
If your still looking around for Doctors, I see Dr. Wayne Yakes. He is a Necular Radiologist at Sweedish Medical Center in Denver. I have been treated by him for about 20 years. Saved my life, no doubt. Good luck.
Dewey M Reynolds replied to Tanner Lunt's discussion 'CAPILLARIES! Does anyone have any other medical issues like DISEASES or trauma that they think could have caused the development of thier avm? I have MIXED CONNECTIVE TISSUE DISEASE!'
Hello Tanner:
I have a dura arterio venous fistula which is simiar to AVM's, only a little more rare. Mine is located on the surface of the brain, and so far I have had 3 embolizations and will have the gamma knife procedure next week.
The…
Tanner Lunt replied to Kelly Nelsen's discussion 'Do adults and children have different experiences with recovery from AVM surgery?'
I've heard that the results from a crainotomy are often times simular between the young and the wise. But also that crainiotomy is the best way to go rather than gamma knife because radiations long term effects. And that embolization just gets…
Tanner Lunt commented on Reza Saleh's group 'Unraptured AVM'
Be careful. try to find someone who has an avm similar to yours and who's further along on thier own path. i've found two who are really simular. one through Dr. Spetzler who had performed extensive gamma knife surgery on him several years…
CAPILLARIES! Does anyone have any other medical issues like DISEASES or trauma that they think could have caused the development of thier avm? I have MIXED CONNECTIVE TISSUE DISEASE!
I was just wondering because several of my doctors think that i might. (Traci Frecht and William Cauldwell of U of Utah hospital) My father has a rare soft tissue disease called Mixed Connective Tissue Disease. It can be somewhat hereditary and is like an acute form of rheumatoid arthritis. Its caused him to be hospitalized and he is losing lung function because the capillaries in his lungs are not growing properly. His disease causes the your capillaries in his lungs to constrict and die from…See More
Discussion posted by Tanner Lunt
Tanner Lunt replied to Kelly Nelsen's discussion 'What were you doing in the minutes that led up to your AVM rupture?'
I was laying in bed watching a movie. i had just had surgery on my wrist and arm from a sports injury. i was taking percocet. i started feeling funny. my tongue stopped working. i turned to my girlfriend and tried to tell her i wasn't feeling…
Tanner Lunt left a comment for marianne elizondo
thanks.. ur nice. and yeah if your ever in phx when i get to drive. we'll have to cruise mill ave.
Profile Information
- Are you an AVM survivor, a relative, a friend, or a medical professional? (Required)
- AVM Survivor
- When did the AVM bleed or, if there was no bleed, when was the AVM first discovered?
- December 17, 2009
- What is the status of the AVM?
- Active
- How was the AVM treated?
- Not Treatable
- Describe the AVM (location, size) if you know it.
- Spetzler grade 4 in left sylvian fissure
- Please share your AVM experience. (Discovery, symptoms, treatment, recovery)
- It's crazy! the experience has been a roller coaster. but honestly kinda interesting but yeah really hard. My dad is also really ill with mixed connective tissue disease. I'm cool with this avm though but its crazy how things change. my family is so stressed and my friends all act different. idk.
- Would you like to recommend a surgeon, therapist, or a hospital?
- Dr. spetzler is pretty good he's my surgeon when it gots to be chopped out. he's super busy so it's good to have another surgeon for consultation and education. i got alot of help from Dr. Cauldwell @ univ of utah. He is alot more personable and is a teacher of nuerosugeons there. he's smart. everyone should see a psychiatrist too. a nice one.
Comment Wall (7 comments)
- At 11:12pm on February 22, 2011,
Anabel Meza said…
Thank you so much for the gift!!!!!
my friend>
- At 10:59pm on February 22, 2011,
Cindy Phillips said… - Happy Birthday!!! Hope you've had a wonderful day!
- At 3:57pm on September 26, 2010,
Blake TImmons said…
- Hi My name is Blake I live in Phoenix, I also have a ruptured avm as well as 2 more that have not I was wondering what other symptoms you have other than the seizures I also have seizures I have had 1 crainiotomy which went badly at saint joes my brain swelled but doing much better was also wondering why they cant treat it. Anways It was nice to meet you If you have any questions please let me know Hope you are doing well
- At 12:15am on July 1, 2010,
Kevin Rounds said…
- If your still looking around for Doctors, I see Dr. Wayne Yakes. He is a Necular Radiologist at Sweedish Medical Center in Denver. I have been treated by him for about 20 years. Saved my life, no doubt. Good luck.
- At 7:04pm on June 1, 2010,
marianne elizondo said… - Hello Tanner .
Six months ...good for you .
When you start driving again take a spin for me .
- At 3:37pm on March 2, 2010,
Ninibeth Ramirez said… - Hi, Welcome to a great support group. It seems you are a very positive person. I believe it is good to see things from an open perspective. Even though of the difficult experiences we can learn from them ... I hope this attitude continues to help you stay strong. I understand, when I had my avm some family friends look at me with sorrow.
How are you filing?
God Bless
Ninibeth
- At 3:10pm on March 2, 2010,
marianne elizondo said…
- Hello Tanner.
I hope the days are as good as they can be .
You read to be taking this journey one moment at a time and it is always one breath , one moment and one task at a time - when possible .
Be good to you . Take care of you .
Positive thoughts and loving prayers for you and yours Tanner .
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