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Chris
- Male
- Fairhope, AL
- United States
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Profile Information
- Are you an AVM survivor, a relative, a friend, or a medical professional? (Required)
- Relative
- When did the AVM bleed or, if there was no bleed, when was the AVM first discovered?
- January 13, 2010
- What is the status of the AVM?
- Active
- How was the AVM treated?
- Other
- Describe the AVM (location, size) if you know it.
- Brain Stem
- Please share your AVM experience. (Discovery, symptoms, treatment, recovery)
- We just found out our 23 month old daughter has AVM, really know not much else. The MRI was just done Wed and the neurosurgeon was to meet with 2 specialists yesterday and call us today and let us know the next step...so we are just waiting on the phone to ring. Update: 3/23/10 we met with the Geneticist @ UAB yesterday, and are flying out to Phoenix this Sunday to Barrow to meet Dr. Bristol, Albuquerque (sp) and Spetzler for our clinical on Monday and then another angiogram on Tuesday which from there will they will determine our next course of action...
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Comment Wall (29 comments)
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- At 10:04pm on May 26, 2010,
Ninibeth Ramirez said… - Hi Chirs, these days I was thinking about your beautiful daughter Finley, how she was doing. Glad to know that at last they have a diagnosis. I wish everything goes well. Please let us know how she is doing.
God Bless
Ninibeth
- At 12:04pm on May 14, 2010,
Marie Hudson said… - I'm so glad you now have a diagnosis, now they can treat little Fin! Thanks for sharing, think of you all often.
Blessings!
Marie & Steve
- At 11:23am on April 29, 2010,
Marie Hudson said…
- Finley is in my prayers everyday along with her family, wondered how things are going?
Blessings!
Marie
- At 8:29pm on April 24, 2010,
I'm Audrey's Dad said… - Chris - just checking back in on this site to see how everyone is doing. Sounds like everything went well with Fin at Barrow. I am so happy for you and Fin. God bless you and your family.
-Matt
- At 8:05am on March 29, 2010,
Susan Troop (Lindsey's Mom) said… - We are praying for you guys this week! I pray everything goes smoothly and that you will be at peace! Please keep us updated!
- At 6:11pm on March 23, 2010,
marianne elizondo said… - Hello Chris .
Positive thoughts and loving prayers for Fin and all of her loving family .
May God guide , guard and hold you all in the palm of His hand as always .
- At 5:15pm on March 23, 2010,
Margaret Chadwick Gambino said…
- Sending love and prayers to Finley and Family from Finlay and our Family!
- At 2:55pm on March 23, 2010,
Susan Troop (Lindsey's Mom) said…
- Our prayers are definitely with Fin and your family. I remember the anxiety leading up to treatment, as well as the eagerness to get it over with and get past it! We will look forward to hearing your updates while you are there. You'll soon be past this. I know for us it all seems kind of surreal. It was so intense for a time, and now I'm kind of like "did all that really happen?" It's very strange. Get lots of rest this week, you will need it!
- At 10:52am on March 23, 2010,
Ninibeth Ramirez said…
- Your lovely daughter will stay in my prayers and sending many blessings and positive thoughts.
God Bless
Ninibeth
- At 9:42am on March 23, 2010,
Marie Hudson said…
- Little Finley is in our prayers constantly! Thanks for keeping us informed!
Marie & Steve
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