"I was thinking the something. I can look into some places to see about having an event. "
We are AVM survivors, here for your support.
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Anita Hopson
- Female
- New Rochelle
- United States
- Blog Posts (5)
- Discussions (29)
- Events
- Groups (3)
- Photos (21)
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- Videos
Anita Hopson's Groups
Anita Hopson's Discussions
Avm survivor meetup
Started this discussion. Last reply by Lisa Feb 24. 2 Replies 0 Likes
Can we possibly get a meeting in the NY NJ CT area?
Employment
Started this discussion. Last reply by Suzy E Jul 22, 2011. 5 Replies 0 Likes
As some of you may know, I am a recent college grad, and a not so recent single mom. Along with the stress of everyday mommyhood, and AVMs everywhere, I am broke and it is so hard to find a career…Continue
Dear Ben M
Started this discussion. Last reply by DM H Sydney Jul 16, 2011. 2 Replies 0 Likes
Dear Mr. Munoz, can we get an iPhone/blackberry/android app please? This mobile web navigation is Getting to me...thank you so much!
18 days...
Started this discussion. Last reply by Michele_A Jun 28, 2011. 4 Replies 0 Likes
18 days until my procedure and somehow I get less concerted everyday. I know once I have the head stabilizer on I will cry but that is a normal reaction I'm guessing.
Anita Hopson's Page
Latest Activity
Anita Hopson replied to Lesley S, Queensland's discussion Frustration...."By the way we our surgery the same day back in 09. Or maybe I was the day before. "
Anita Hopson replied to Lesley S, Queensland's discussion Frustration...."I just had surgery on my 2rd avm last year. But my 2nd one gave me all the problems. I'm half blind so I can't drive. I feel like I'm bothering people when I ask for a ride but no one likes me on public transportation bc my avm could…"
Anita Hopson replied to emschi3's discussion Do you ever feel like you're alone?-2"I agree with everyone. Finding this site has helped me cope with my AVM so much. But even with a huge family NOBODY truly understood me and what that meant. I can't talk to them about my depression and anxiety because they will say that I will…"
Anita Hopson commented on Anita Hopson's blog post AVM Location"Does this make it hard for either of you to function at work, if you are working? My memory was severely affected as well as my ability to stand for long periods of time. I find it hard to explain to people that I am capable of many things but not…"
Lori Kay Cahen commented on Anita Hopson's blog post AVM Location"My AVM is located in the anterioal frontal lobe and I find that I have a disturbance in my vision feild of my right eye. I have been tested and the results are that my short term and working memory are 8%-12% by comparison to my intellect. My…"
Anita Hopson commented on Nay's blog post Hmm"It terms of how much to cut, it realy depends on the size od your avm and the method of treat. My first one was the size of a small egg. So they needed more space to work in. My scar goes from the tip of my ear all the way up to the top of my head…"
ModeratorTrish commented on Anita Hopson's blog post AVM Location
"My AVM was located between my parietal and occipital lobes. My cognitive defecits are from the parietal area and my visual defecits are from the occipital area. I'm sure it's quite common to have an AVM in two different areas of the brain…"
Anita Hopson posted a blog postAVM Location
Has anyone else had an AVM that affected different parts and functions of the brain at one time?See More
Anita Hopson commented on Nay's blog post Hmm"after my crainiotomy, i had half braids half baldy. After my embo, I was fine, after my gamma knife, i looked like a cheetah...do what you are most comfortable with. All I know is the NEXT time I have to go to hospital...if there is a next time,…"
Anita Hopson commented on Mare's group Northeast"Wow what a coincidence my family is from buffalo! That's an 8th drive to NYC. It's easier to get to Canada or Ohio."
Anita Hopson commented on Mare's group Northeast"I'm voting for a meetup in the NYC area. Any ideas?"
Anita Hopson commented on Nay's blog post First embo in 13 days..."my first embolization took a few hours. by a few i mean like 3 or 4. they put you to sleep so you wont feel anything. the most annoying part is not knowing what will happen next. but here is some good advice, make sure someone on your medical team…"
Lisa replied to Anita Hopson's discussion Avm survivor meetup"I too would love to meet other survivors and their families. I would definatly be interested in meeting up. Please let me know what I can do to help get the ball rolling."
Anita Hopson replied to Kevin Gandhi's discussion Event ideas for Biology Club"Hi kevin. I do have fundraising experience. I have been raisin money for cancer research since 2004 and I have also done some fund raising for Deaf awareness. The biggest hurtle is advertisement and entertainment. Especially on a college campus.…"
Profile Information
- Are you an AVM survivor, a relative, a friend, or a medical professional? (Required)
- AVM Survivor
- When did the AVM bleed or, if there was no bleed, when was the AVM first discovered?
- September 11, 2009
- What is the status of the AVM?
- Obliterated
- How was the AVM treated?
- Embolization
- If treated, when was the AVM treated?
- October 6, 2009
- Describe the AVM (location, size) if you know it.
- located in the left gemisphere of my brain
- Please share your AVM experience. (Discovery, symptoms, treatment, recovery)
- this was my 2nd avm. my 1st was discovered in July of 2000. the discovery of the second avm was operated on after an emergency c-section. my side effects include memory loss, numbness on the right side of my body, comprehension problems, and more. i am still recovering from the procedure
- Would you like to recommend a surgeon, therapist, or a hospital?
- Dr. Howard Riina, Weill Cornell med center-NY,NY.
Anita Hopson's Photos
Anita Hopson's Blog
AVM Location
Posted on March 9, 2012 at 9:37am 3 Comments 0 Likes
Has anyone else had an AVM that affected different parts and functions of the brain at one time?
Working out in NOT working out
Posted on December 9, 2011 at 9:03am 9 Comments 0 Likes
Does anyone know where I can find a facility that specializes in clients with TBI? I don't really want to join Planet Fitness or Bally's or any other gym because they aren't really familiarized with TBI...once again I need HELP.
After the birth of my son I started weight watchers and lost a total of 40lbs and it was a struggle. But my issue is losing the baby belly. I know how anal this sounds but I am not comfortable with my body at this point in my life. Now that my son is 2 I want…
Continue 1 year ago
Posted on September 10, 2010 at 7:48am 3 Comments 0 Likes
who knew that this time last year would be what it was? I am so grateful to God for bringing me through that horrifying time in my
life...to all of you who prayed and fb prayed and visited me and sent
out words of strength-thank you, I wouldn't be here typing this message Karen Scott- Johnson if you didn't get on that train everyday to come see me,… Continue
life...to all of you who prayed and fb prayed and visited me and sent
out words of strength-thank you, I wouldn't be here typing this message Karen Scott- Johnson if you didn't get on that train everyday to come see me,… Continue
AVM 2010 Walk
Posted on April 20, 2010 at 9:56am 0 Comments 0 Likes
What hotels are people staying in for the walk? Is there a meet and greet for newcomers? I would love to meet you guys!!! please let me know
Comment Wall (36 comments)
- At 5:37pm on November 4, 2011, Anita Hopson said…
- AVM REARS IT'S UGLY HEAD!!!! Off to
- At 9:26pm on September 8, 2011, Anita Hopson said…
- I was thinking back to my 1st avm....why don't dr's prescribe Dilantin anymore? Also, is anyone els,s radiation site swollen?
- At 11:38pm on August 9, 2011,
Kevin Rivers said… - Hi Anita, after my embo my only side effects was that my head felt very full like it was full of water and i was very tired with a slight headache. Why do you ask?How are you feeling?
- At 12:32pm on August 9, 2011,
ModeratorBarbara H. said… - Happy Birthday!
- At 4:14pm on August 8, 2011,
ModeratorLouisa said… - Happy Birthday, Anita!
- At 9:48pm on July 24, 2011,
ModeratorKim (Jaclyn's mom) said… - Hi Anita! Jaclyn is doing great! She is enjoying her summer being a kid! She doesn't follow any sites at this time but I know she is anxious to meet up with other teens that have been thru the AVM journey also.
- At 8:41am on July 15, 2011, Anita Hopson said…
- I look like igore from the hunchback of notre dame. However, I'm ok. I'm really interested in meeting up with some survivors and others this summer. Fb name is Anita apple-bum
- At 9:57am on July 9, 2011,
ModeratorBarbara H. said… - I bet you are ready right now!
- At 9:22am on July 9, 2011, Anita Hopson said…
- 5 days and counting.
- At 12:10am on June 27, 2011,
Nay said… Aww thats so sweet of you!!
I actually met Dr rinna and his np..both seem really nice..his np actually got in contact with me a few weeks ago but havent started treatment yet...im looking to get a third opinion . I also me with Dr Flamm have u heard of him? I think once i get a third opinion i can make a decision.
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My story
Posted by chels925 on June 3, 2012 at 10:37am 0 Comments 0 Likes
Hello everyone. While I do not have a AVM, mine is only a VM. It is in my right cheek. I have been undergoing treatment for it since 2006. My first treatment was in September 2006. I had some complications (I got an infection and went septic). I…
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I moved on ... but I cant escape
Posted by Dansky on June 3, 2012 at 7:15am 0 Comments 0 Likes
The first rupture of my AVM brought me to total shutdown you could say. from normalcy to all of a sudden a twist of life.
I move on ... but I cant escape...
I was at work (luckily I was in office, crowded, people are present, the…
Continue Away for 5 weeks
Posted by ramona777 on June 2, 2012 at 3:51am 2 Comments 0 Likes
Hi to all my newfound friends . may not be online much in the next 5 wks but wanted to say to each and every one of you, many thanks for your welcome, friendship and support. be back soon. If anyone can advise me how to join AVM australia? Thank…
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the appioment went.......
Posted by Celina on May 31, 2012 at 8:59pm 2 Comments 0 Likes
it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.
Starting to understand everything...
Posted by Hannahpoppe on May 30, 2012 at 12:45am 3 Comments 0 Likes
Hi everyone!
I'm a new member here...
I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…
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Of Seizures
Posted by Jaime G. on May 29, 2012 at 7:32am 1 Comment 0 Likes
I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…
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Facebook Feature Supports Organ Donation
Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments 0 Likes
We never realize the value of organ donation, until we're on the receiving end.…
NUMBNESS
Posted by josh54 on May 28, 2012 at 12:20pm 2 Comments 0 Likes
My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…
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Coffee in Rockhampton
October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
2 Comments 1 Like
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