What is AVMSurvivors.org?

AVMSurvivors.org is a dedicated patient-to-patient support community for families affected by Arteriovenous Malformation (AVM). AVMSurvivors.org is powered by BensFriends.org, patient support communities for rare diseases, and is run by volunteer moderators who have been affected with AVM.

Who can join AVMSurvivors.org?

If your family has been affected by AVM, consider AVMSurvivors.org your second home. AVMSurvivors.org, as well as the rest of BensFriends.org’s patient communities, is free for members to join.

What is Arteriovenous Malformation?
Arteriovenous Malformation (AVM) is a deficiency in the cardiovascular system characterized by abnormalities between the arteries and veins. The affected areas usually lack cell nutrients and become filled with Carbon Dioxide, causing blood to tangle and form malformations. Malformations can occur in different parts of the body, and can cause fatal strokes when the tangled blood ruptures.

What is BensFriends.org?

In 2007, Ben Muñoz suffered a rare form of stroke caused by an AVM. He was unable to find the support he needed during the most difficult time, so he created an online support community AVMSurvivors.org to connect with others like him. AVMSurvivors.org led to the founding of BensFriends.org, driven to provide patient-to-patient support communities for people living with rare diseases.

BensFriends.org is a network of patient communities for people living with rare diseases. Launched in November 2007, BensFriends.org provides valuable patient support by creating and running compassionate, responsive communities. BensFriends.org maintains dozens of patient communities and has changed thousands of lives.

You can learn more about BensFriends.org at http://www.bensfriends.org or watch one of our
videos at http://www.youtube.com/BensFriendsVideos.