We are AVM survivors, here for your support.
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Featured Groups
Scandinavian AVM Survivors
34 members
AVMers from Asia
20 members
Coping with Headaches
10 members
All Groups (59)
Radiosurgery Patients (Gamma Knife/other)
184 members Latest Activity: on Thursday
To those who have been treated or are considering treatment with a type of radiosurgery for their a.v.m.
Extremity and Other Non-Brain AVMs
426 members Latest Activity: yesterday
For those of us with AVM's outside the brain. Facial, Spinal, Lungs, Arms, Legs...wherever!
Parents of AVM
394 members Latest Activity: yesterday For issues specific to parents of children with an AVM.
Active Community Moderators
18 members Latest Activity: on Thursday
This group is for moderators to discuss community management topics.
AUSTRALIAN & NZ AVM Survivors
111 members Latest Activity: 9 hours ago
G'DAY MATE and Welcome to Oz and NZ group- Take a seat on the deck & we'll be right back with a cuppa &…
Spinal AVM or AVF
47 members Latest Activity: on Monday
Support group for those suffering from, or dealing with the symptoms after, a spinal AVF.
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AVM-related Syndromes Presenting with Portwine Stains (Parkes-Weber, Klippel-Trenaunay, Sturge-Weber, Wyburn-Mason)
9 members Latest Activity: May 9
Sturge-Weber presents with a portwine stain on one side of the face. SW patients may also have seizures, glaucoma, or developmental delays.…
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Coping with Headaches
10 members Latest Activity: on Monday
Please share your strategies for coping with headaches. Which medications have worked for you? Have you tried cold packs, relaxation techniques…
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PETS
18 members Latest Activity: Apr 3
"Pets enrich our lives!" said one AVM Survivor.
From the scaly ones to the furry ones, that goldfish in a bowl to a majestic…
PREGNANCY AND AVM
79 members Latest Activity: May 9
A forum to discuss the challenges that pregnant AVM members face. Personal stories, discussions, posting baby pictures, ideas and…
Cavernous Malformation Support Network
57 members Latest Activity: on Wednesday
Hello, My name is Patti and if you are visiting this website, we share a common bond...the fears, sadness, uncertainty and many emotions of having…
SUCCESS STORIES
72 members Latest Activity: May 11
A forum to share your sucess stories on any number of AVM issues, such as surgery, medications or alternative therapies, etc., to…
Southeast AVM Survivors
111 members Latest Activity: on Monday
This group is for AVM Survivor members who live in the Southeast ... for sharing, support and occassional get-togethers.
Location:…
Children With Parents That Have An AVM
9 members Latest Activity: Jan 31 Children who have either a mom or dad with an AVM and how to care for them.
Research
31 members Latest Activity: Apr 26
Anything scientific regarding AVMs (ArterioVenous Malformations).
* Basic and clinical research
* Who is investigating
* Promoting…
Friends and Family Affected by AVM
29 members Latest Activity: Apr 30
Where friends and family meet to share views, insights and stories.
Southern California
45 members Latest Activity: yesterday
This group is for AVM Survivor members who live in the Southern California area ... for sharing, support and occasional…
Canada AVM Survivors
126 members Latest Activity: May 10
A group for Canadian AVM survivors.
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South Africa
10 members Latest Activity: May 7 SA AVM's, please join the group.
Ruptured AVM, (Brain Bleed) Un-Treated.
35 members Latest Activity: Apr 24
For AVM Survivor members that have a ruptured un-treated AVM.
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Photos
Blog Posts
confusion as symptoms mount... time for new dr?
Posted by mamaginof3 on May 9, 2013 at 3:13pm 14 Comments 0 Likes
HHT Diagnosis or Suspected
Posted by Fish on May 10, 2013 at 3:25pm 1 Comment 0 Likes
My husband has HHT . Daughter has been tested but no results yet. Praying God spares my children. I have two granddaughters. I have another daughter who has not been tested. We found the HHT Center in Chapel Hill after years of nosebleeds. He has…
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Dreams... changing
Posted by Michael on May 2, 2013 at 3:14am 5 Comments 1 Like
Hello there,
how it's for you? In my case, I have the paralysis since last october 2012. Before that I was very active with cross country running, dogsport, and so on. The good thing: In my dreams I had no Paralysis. I run in my dreams,…
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One year since my bleed, more or less
Posted by tdz103m on May 2, 2013 at 5:34am 3 Comments 4 Likes
I don't know exactly when it happened because I slept through May 1, 2012. All day.
May 2, I was able to move around a bit. May 3 a bit more but by May 4th I was feeling in the deepness of it and told my wife to dial 911 and it was into the…
Ben's Friends Co-Founder Scott Orn Featured on Thoughtbot Podcast
Posted by Armando A. on April 21, 2013 at 8:00am 0 Comments 2 Likes
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