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Featured Groups

All Groups (58)

  • AVM Greeters' group

    10 members Latest Activity: Dec 1, 2015

    Our greeters are terrific -- this group is for you.

  • Extremity and Other Non-Brain AVMs

    640 members Latest Activity: 6 hours ago

    For those of us with AVM's outside the brain. Facial, Spinal, Lungs, Arms, Legs...wherever!

  • Mindfulness/Relaxation Techniques

    16 members Latest Activity: Mar 16

    This group is for discussing and sharing mindfulness, breathing, or relaxation techniques helpful for coping with AVM stressors and chronic…


    191 members Latest Activity: Apr 20

    Group that focuses on AVM awareness , To build an informative group to help UK & Ireland AVMers and their families find the best Answers to…


    48 members Latest Activity: Mar 2

    The place to request prayers and healing energy for yourself or others, from our community of caring, supportive friends.

  • Temporal/Parietal Lobe AVMs

    42 members Latest Activity: Apr 24

    Support Group for all members with Temporal and Parietal Lobe AVMs

  • Gastrointestinal AVMs

    25 members Latest Activity: Apr 13

    I am looking for others with bleeding stomach and intestinal AVMs. Mine has been particularly bad this last year. Had 20 cauterized only to have…

  • Occipital AVM

    74 members Latest Activity: Apr 6

    This group welcomes individuals with Occipital Lobe AVM's and relatives, friends, and caregivers, to share stories and support each other.

  • AVM Presenting with Trigeminal Neuralgia

    6 members Latest Activity: Oct 10, 2014

    For those who have been diagnosed with AVM and trigeminal neuralgia to discuss treatment options and to get support

  • Facial (or Head/Neck) AVMs

    107 members Latest Activity: 18 hours ago

    For anyone who has a facial, head, or neck avm or wants to learn more about them.

  • People in their early 20's

    92 members Latest Activity: on Sunday

    This is for the people in their early 20's to connect and share their stories and all around just chat.

  • Southeast AVM Survivors

    160 members Latest Activity: Feb 14

    This group is for AVM Survivor members who live in the Southeast ... for sharing, support and occassional get-togethers.


    62 members Latest Activity: Apr 4

    New group linking anyone with DVAF's
    Set up by Vin Frm VinandOmi who has a Type 3 DVAF

  • cowden syndrome

    3 members Latest Activity: Jul 3, 2014

    Hello everyone.. I was recently diagnosed with cowden and have a brain AVM and leg AVM.. Id like to connect with others that also have the same…

  • AVM and Divorce/Separation

    27 members Latest Activity: Mar 20

    AVMs can put strain on a marriage, and sometimes counseling isn't enough. This group is for those who are going through or have been through a…

  • Brainstem AVM & CM

    53 members Latest Activity: Apr 21

    This group is for those who, or are close to someone who have or have had a AVM or Cavernous Malformation in the Brainstem.

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