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Featured Groups

All Groups (57)

  • Facial (or Head/Neck) AVMs

    93 members Latest Activity: on Wednesday

    For anyone who has a facial, head, or neck avm or wants to learn more about them.


    48 members Latest Activity: Jul 25

    New group linking anyone with DVAF's
    Set up by Vin Frm VinandOmi who has a Type 3 DVAF


    177 members Latest Activity: on Thursday

    Group that focuses on AVM awareness , To build an informative group to help UK & Ireland AVMers and their families find the best Answers to…

  • Occipital AVM

    65 members Latest Activity: Jul 26

    This group welcomes individuals with Occipital Lobe AVM's and relatives, friends, and caregivers, to share stories and support each other.

  • Mid-West AVMers

    131 members Latest Activity: Jun 20

    This group is for all of us in the Mid-West.

  • Europe AVM Survivors

    155 members Latest Activity: Jun 17

    For all those living in Europe.

  • PETS

    39 members Latest Activity: May 2

    "Pets enrich our lives!" said one AVM Survivor.

    From the scaly ones to the furry ones, that goldfish in a bowl to a majestic…

  • AVM with Seizures / Epilepsy

    179 members Latest Activity: Jun 25

    This group is for AVMers who have experienced seizures / epilepsy, a place to share your experiences, to gain support and friendship.

  • Northern California Survivors

    9 members Latest Activity: on Tuesday Survivors in Northern California unite :)

  • Mindfulness/Relaxation Techniques

    8 members Latest Activity: Jul 27

    This group is for discussing and sharing mindfulness, breathing, or relaxation techniques helpful for coping with AVM stressors and chronic…

  • cowden syndrome

    3 members Latest Activity: Jul 3, 2014

    Hello everyone.. I was recently diagnosed with cowden and have a brain AVM and leg AVM.. Id like to connect with others that also have the same…

  • AVM and Divorce/Separation

    24 members Latest Activity: Jul 12

    AVMs can put strain on a marriage, and sometimes counseling isn't enough. This group is for those who are going through or have been through a…

  • Gastrointestinal AVMs

    22 members Latest Activity: Jul 25

    I am looking for others with bleeding stomach and intestinal AVMs. Mine has been particularly bad this last year. Had 20 cauterized only to have…

  • Brainstem AVM & CM

    44 members Latest Activity: Jul 17

    This group is for those who, or are close to someone who have or have had a AVM or Cavernous Malformation in the Brainstem.

  • CM-AVM

    17 members Latest Activity: Jul 16

    Started a group because my son was recently diagnosed with CM-AVM. Please join so we can share stories, treatment options, and support.

  • Frontal Lobe AVMs

    78 members Latest Activity: Jul 1

    For those of us with avms in the frontal lobe

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First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

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Blog Posts

Passing of William Fitch

Posted by Tricia on July 31, 2015 at 8:56pm 3 Comments

Hi guys, I have been contacted by William Fitch daughter Alisha wanting all his AVM friends to beware of his passing on the 28/7/215. If you would be so kind & pass this very sad Message around. Thank you. R.I.P William

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