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Featured Groups

All Groups (57)

  • Facial (or Head/Neck) AVMs

    93 members Latest Activity: yesterday

    For anyone who has a facial, head, or neck avm or wants to learn more about them.

  • DURAL FISTULA ( DAVF )

    48 members Latest Activity: on Saturday

    New group linking anyone with DVAF's
    Set up by Vin Frm VinandOmi who has a Type 3 DVAF

  • UK AVM AWARENESS & RESEARCH GROUP

    177 members Latest Activity: 15 hours ago

    Group that focuses on AVM awareness , To build an informative group to help UK & Ireland AVMers and their families find the best Answers to…

  • Occipital AVM

    65 members Latest Activity: on Sunday

    This group welcomes individuals with Occipital Lobe AVM's and relatives, friends, and caregivers, to share stories and support each other.

  • AVM Presenting with Trigeminal Neuralgia

    6 members Latest Activity: Oct 10, 2014

    For those who have been diagnosed with AVM and trigeminal neuralgia to discuss treatment options and to get support

  • PETS

    39 members Latest Activity: May 2

    "Pets enrich our lives!" said one AVM Survivor.

    From the scaly ones to the furry ones, that goldfish in a bowl to a majestic…

  • AVM with Seizures / Epilepsy

    179 members Latest Activity: Jun 25

    This group is for AVMers who have experienced seizures / epilepsy, a place to share your experiences, to gain support and friendship.

  • Active Community Moderators

    11 members Latest Activity: on Tuesday

    This group is for moderators to discuss community management topics.

  • Northern California Survivors

    9 members Latest Activity: on Tuesday Survivors in Northern California unite :)

  • Mindfulness/Relaxation Techniques

    8 members Latest Activity: on Monday

    This group is for discussing and sharing mindfulness, breathing, or relaxation techniques helpful for coping with AVM stressors and chronic…

  • cowden syndrome

    3 members Latest Activity: Jul 3, 2014

    Hello everyone.. I was recently diagnosed with cowden and have a brain AVM and leg AVM.. Id like to connect with others that also have the same…

  • AVM and Divorce/Separation

    24 members Latest Activity: Jul 12

    AVMs can put strain on a marriage, and sometimes counseling isn't enough. This group is for those who are going through or have been through a…

  • Gastrointestinal AVMs

    22 members Latest Activity: on Saturday

    I am looking for others with bleeding stomach and intestinal AVMs. Mine has been particularly bad this last year. Had 20 cauterized only to have…

  • Brainstem AVM & CM

    44 members Latest Activity: Jul 17

    This group is for those who, or are close to someone who have or have had a AVM or Cavernous Malformation in the Brainstem.

  • CM-AVM

    17 members Latest Activity: Jul 16

    Started a group because my son was recently diagnosed with CM-AVM. Please join so we can share stories, treatment options, and support.

  • Frontal Lobe AVMs

    78 members Latest Activity: Jul 1

    For those of us with avms in the frontal lobe

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Posted by tdz103m on July 29, 2015 at 3:00am 1 Comment

My wife and I recently located from NJ to SC (USA). We had been planning on it for the past few years but I had a stroke a few years back so I was still a bit under doctor's care. Wanted to make everything was okay.

I had a pretty good…

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