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All Groups (58)

  • Extremity and Other Non-Brain AVMs

    648 members Latest Activity: on Monday

    For those of us with AVM's outside the brain. Facial, Spinal, Lungs, Arms, Legs...wherever!

  • Parents of AVM

    526 members Latest Activity: yesterday For issues specific to parents of children with an AVM.

  • Mindfulness/Relaxation Techniques

    16 members Latest Activity: Mar 16

    This group is for discussing and sharing mindfulness, breathing, or relaxation techniques helpful for coping with AVM stressors and chronic…

  • Temporal/Parietal Lobe AVMs

    47 members Latest Activity: on Saturday

    Support Group for all members with Temporal and Parietal Lobe AVMs

  • cowden syndrome

    4 members Latest Activity: yesterday

    Hello everyone.. I was recently diagnosed with cowden and have a brain AVM and leg AVM.. Id like to connect with others that also have the same…

  • Gastrointestinal AVMs

    25 members Latest Activity: Jul 7

    I am looking for others with bleeding stomach and intestinal AVMs. Mine has been particularly bad this last year. Had 20 cauterized only to have…

  • AVM with Seizures / Epilepsy

    195 members Latest Activity: Jul 14

    This group is for AVMers who have experienced seizures / epilepsy, a place to share your experiences, to gain support and friendship.

  • Southeast AVM Survivors

    161 members Latest Activity: on Friday

    This group is for AVM Survivor members who live in the Southeast ... for sharing, support and occassional get-togethers.

  • AVM and Divorce/Separation

    27 members Latest Activity: Mar 20

    AVMs can put strain on a marriage, and sometimes counseling isn't enough. This group is for those who are going through or have been through a…


    52 members Latest Activity: Jun 10

    Long Term survivors

  • Brainstem AVM & CM

    59 members Latest Activity: Jun 26

    This group is for those who, or are close to someone who have or have had a AVM or Cavernous Malformation in the Brainstem.

  • FLORIDIANS who have/had AVM

    20 members Latest Activity: Apr 12

    This group is for anyone in Florida who has or had an avm.

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