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Featured Groups

All Groups (58)

  • Brainstem AVM & CM

    57 members Latest Activity: May 15

    This group is for those who, or are close to someone who have or have had a AVM or Cavernous Malformation in the Brainstem.

  • Radiosurgery Patients (Gamma Knife/other)

    306 members Latest Activity: May 18

    To those who have been treated or are considering treatment with a type of radiosurgery for their a.v.m.

  • Gastrointestinal AVMs

    25 members Latest Activity: May 23

    I am looking for others with bleeding stomach and intestinal AVMs. Mine has been particularly bad this last year. Had 20 cauterized only to have…

  • Northern California Survivors

    14 members Latest Activity: Apr 7 Survivors in Northern California unite :)

  • Mindfulness/Relaxation Techniques

    16 members Latest Activity: Mar 16

    This group is for discussing and sharing mindfulness, breathing, or relaxation techniques helpful for coping with AVM stressors and chronic…


    65 members Latest Activity: May 9

    New group linking anyone with DVAF's
    Set up by Vin Frm VinandOmi who has a Type 3 DVAF


    191 members Latest Activity: Apr 20

    Group that focuses on AVM awareness , To build an informative group to help UK & Ireland AVMers and their families find the best Answers to…

  • AVM with Seizures / Epilepsy

    194 members Latest Activity: May 11

    This group is for AVMers who have experienced seizures / epilepsy, a place to share your experiences, to gain support and friendship.


    48 members Latest Activity: Mar 2

    The place to request prayers and healing energy for yourself or others, from our community of caring, supportive friends.

  • AVM Presenting with Trigeminal Neuralgia

    6 members Latest Activity: Oct 10, 2014

    For those who have been diagnosed with AVM and trigeminal neuralgia to discuss treatment options and to get support

  • People in their early 20's

    92 members Latest Activity: May 1

    This is for the people in their early 20's to connect and share their stories and all around just chat.

  • Active Community Moderators

    12 members Latest Activity: 4 hours ago

    This group is for moderators to discuss community management topics.

  • Southeast AVM Survivors

    160 members Latest Activity: Feb 14

    This group is for AVM Survivor members who live in the Southeast ... for sharing, support and occassional get-togethers.

  • cowden syndrome

    3 members Latest Activity: Jul 3, 2014

    Hello everyone.. I was recently diagnosed with cowden and have a brain AVM and leg AVM.. Id like to connect with others that also have the same…

  • AVM and Divorce/Separation

    27 members Latest Activity: Mar 20

    AVMs can put strain on a marriage, and sometimes counseling isn't enough. This group is for those who are going through or have been through a…

  • FLORIDIANS who have/had AVM

    20 members Latest Activity: Apr 12

    This group is for anyone in Florida who has or had an avm.

  • Occipital AVM

    75 members Latest Activity: on Friday

    This group welcomes individuals with Occipital Lobe AVM's and relatives, friends, and caregivers, to share stories and support each other.

  • Facial (or Head/Neck) AVMs

    108 members Latest Activity: on Wednesday

    For anyone who has a facial, head, or neck avm or wants to learn more about them.

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