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All Groups (57)

  • Mid-West AVMers

    132 members Latest Activity: 14 hours ago

    This group is for all of us in the Mid-West.

  • Canada AVM Survivors

    176 members Latest Activity: Sep 21

    A group for Canadian AVM survivors.

  • Inoperable AVMs

    230 members Latest Activity: Sep 12 A subgroup for patients (and relatives) who have been told their AVM is inoperable.

  • Gastrointestinal AVMs

    23 members Latest Activity: Aug 26

    I am looking for others with bleeding stomach and intestinal AVMs. Mine has been particularly bad this last year. Had 20 cauterized only to have…

  • Brainstem AVM & CM

    49 members Latest Activity: Oct 5

    This group is for those who, or are close to someone who have or have had a AVM or Cavernous Malformation in the Brainstem.

  • South Africa

    29 members Latest Activity: Sep 28

    SA AVM's, please join the group.


    184 members Latest Activity: Oct 5

    Group that focuses on AVM awareness , To build an informative group to help UK & Ireland AVMers and their families find the best Answers to…

  • People in their early 20's

    84 members Latest Activity: on Sunday

    This is for the people in their early 20's to connect and share their stories and all around just chat.

  • Occipital AVM

    68 members Latest Activity: Oct 2

    This group welcomes individuals with Occipital Lobe AVM's and relatives, friends, and caregivers, to share stories and support each other.

  • AVM Presenting with Trigeminal Neuralgia

    6 members Latest Activity: Oct 10, 2014

    For those who have been diagnosed with AVM and trigeminal neuralgia to discuss treatment options and to get support

  • Facial (or Head/Neck) AVMs

    97 members Latest Activity: on Sunday

    For anyone who has a facial, head, or neck avm or wants to learn more about them.

  • PETS

    39 members Latest Activity: Sep 24

    "Pets enrich our lives!" said one AVM Survivor.

    From the scaly ones to the furry ones, that goldfish in a bowl to a majestic…

  • Mindfulness/Relaxation Techniques

    11 members Latest Activity: Sep 17

    This group is for discussing and sharing mindfulness, breathing, or relaxation techniques helpful for coping with AVM stressors and chronic…


    52 members Latest Activity: on Sunday

    New group linking anyone with DVAF's
    Set up by Vin Frm VinandOmi who has a Type 3 DVAF

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Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

AVMSurvivors is a peer-to-peer network

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Blog Posts

Two years Post Gamma Knife

Posted by djs on October 12, 2015 at 8:04pm 0 Comments

This post is mostly for my benefit, no need to respond. One October 7th I had my two year testing since Gamma Knife, a cerebral angiogram (what a fun filled day). They say I am now AVM free but why don’t I believe it? Maybe it was the vision…


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