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Featured Groups

All Groups (57)

  • Spinal AVM or AVF

    108 members Latest Activity: on Tuesday

    Support group for those suffering from, or dealing with the symptoms after, a spinal AVF.

  • Gastrointestinal AVMs

    22 members Latest Activity: on Thursday

    I am looking for others with bleeding stomach and intestinal AVMs. Mine has been particularly bad this last year. Had 20 cauterized only to have…

  • Parents of AVM

    498 members Latest Activity: Jun 15 For issues specific to parents of children with an AVM.


    44 members Latest Activity: Jun 17

    Long Term survivors


    173 members Latest Activity: Jun 18

    Group that focuses on AVM awareness , To build an informative group to help UK & Ireland AVMers and their families find the best Answers to…

  • Southwest AVM Survivors

    60 members Latest Activity: Jun 23

    For those in or near Texas.

  • Mid-West AVMers

    131 members Latest Activity: Jun 20

    This group is for all of us in the Mid-West.

  • Complementary Therapies

    43 members Latest Activity: Jun 14

    Welcome to Complementary Therapies! This is the place to discuss the array of complementary healing modalities that many of us rely on to help us…

  • South Africa

    27 members Latest Activity: Jun 18

    SA AVM's, please join the group.

  • PETS

    39 members Latest Activity: May 2

    "Pets enrich our lives!" said one AVM Survivor.

    From the scaly ones to the furry ones, that goldfish in a bowl to a majestic…

  • Aphasia Friends

    53 members Latest Activity: Jun 6

    Having a place where those of us that have Aphasia can support each other.

  • AVM with Seizures / Epilepsy

    179 members Latest Activity: Jun 25

    This group is for AVMers who have experienced seizures / epilepsy, a place to share your experiences, to gain support and friendship.

  • Southeast AVM Survivors

    155 members Latest Activity: Jun 18

    This group is for AVM Survivor members who live in the Southeast ... for sharing, support and occassional get-togethers.

  • Northern California Survivors

    7 members Latest Activity: 17 hours ago Survivors in Northern California unite :)

  • Mindfulness/Relaxation Techniques

    7 members Latest Activity: Jun 19

    This group is for discussing and sharing mindfulness, breathing, or relaxation techniques helpful for coping with AVM stressors and chronic…


    45 members Latest Activity: Jun 1

    New group linking anyone with DVAF's
    Set up by Vin Frm VinandOmi who has a Type 3 DVAF

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Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.


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Blog Posts

Complex seizures=sleepless nights

Posted by Daphne on July 4, 2015 at 3:06pm 0 Comments

Just a view into our world...Jacob in the last month has now had 12 seizures and most are in the evening when he has already gone to bed...talk about being up all night worrying as what to expect next.As he sleeps due to the medication he is to…


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