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All Groups (57)

  • Gastrointestinal AVMs

    22 members Latest Activity: on Thursday

    I am looking for others with bleeding stomach and intestinal AVMs. Mine has been particularly bad this last year. Had 20 cauterized only to have…

  • Parents of AVM

    498 members Latest Activity: Jun 15 For issues specific to parents of children with an AVM.

  • Mid-West AVMers

    131 members Latest Activity: Jun 20

    This group is for all of us in the Mid-West.

  • Active Community Moderators

    11 members Latest Activity: on Friday

    This group is for moderators to discuss community management topics.

  • AVM Presenting with Trigeminal Neuralgia

    6 members Latest Activity: Oct 10, 2014

    For those who have been diagnosed with AVM and trigeminal neuralgia to discuss treatment options and to get support

  • South Africa

    27 members Latest Activity: Jun 18

    SA AVM's, please join the group.

  • PETS

    39 members Latest Activity: May 2

    "Pets enrich our lives!" said one AVM Survivor.

    From the scaly ones to the furry ones, that goldfish in a bowl to a majestic…

  • Aphasia Friends

    53 members Latest Activity: Jun 6

    Having a place where those of us that have Aphasia can support each other.

  • AVM with Seizures / Epilepsy

    179 members Latest Activity: Jun 25

    This group is for AVMers who have experienced seizures / epilepsy, a place to share your experiences, to gain support and friendship.

  • Southeast AVM Survivors

    155 members Latest Activity: Jun 18

    This group is for AVM Survivor members who live in the Southeast ... for sharing, support and occassional get-togethers.

  • Mindfulness/Relaxation Techniques

    7 members Latest Activity: Jun 19

    This group is for discussing and sharing mindfulness, breathing, or relaxation techniques helpful for coping with AVM stressors and chronic…


    45 members Latest Activity: Jun 1

    New group linking anyone with DVAF's
    Set up by Vin Frm VinandOmi who has a Type 3 DVAF

  • cowden syndrome

    3 members Latest Activity: Jul 3, 2014

    Hello everyone.. I was recently diagnosed with cowden and have a brain AVM and leg AVM.. Id like to connect with others that also have the same…

  • Occipital AVM

    63 members Latest Activity: Jun 29

    This group welcomes individuals with Occipital Lobe AVM's and relatives, friends, and caregivers, to share stories and support each other.

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Blog Posts

Complex seizures=sleepless nights

Posted by Daphne on July 4, 2015 at 3:06pm 0 Comments

Just a view into our world...Jacob in the last month has now had 12 seizures and most are in the evening when he has already gone to bed...talk about being up all night worrying as what to expect next.As he sleeps due to the medication he is to…


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