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All Groups (57)

  • Spinal AVM or AVF

    116 members Latest Activity: 19 hours ago

    Support group for those suffering from, or dealing with the symptoms after, a spinal AVF.

  • Canada AVM Survivors

    176 members Latest Activity: Sep 21

    A group for Canadian AVM survivors.

  • Inoperable AVMs

    230 members Latest Activity: Sep 12 A subgroup for patients (and relatives) who have been told their AVM is inoperable.

  • Gastrointestinal AVMs

    23 members Latest Activity: Aug 26

    I am looking for others with bleeding stomach and intestinal AVMs. Mine has been particularly bad this last year. Had 20 cauterized only to have…

  • Brainstem AVM & CM

    49 members Latest Activity: on Monday

    This group is for those who, or are close to someone who have or have had a AVM or Cavernous Malformation in the Brainstem.

  • South Africa

    29 members Latest Activity: Sep 28

    SA AVM's, please join the group.


    184 members Latest Activity: on Monday

    Group that focuses on AVM awareness , To build an informative group to help UK & Ireland AVMers and their families find the best Answers to…

  • Scandinavian AVM Survivors

    51 members Latest Activity: Sep 1

    Et forum for oss med AVM i Skandinavia.

  • FLORIDIANS who have/had AVM

    17 members Latest Activity: Aug 28

    This group is for anyone in Florida who has or had an avm.

  • Occipital AVM

    68 members Latest Activity: Oct 2

    This group welcomes individuals with Occipital Lobe AVM's and relatives, friends, and caregivers, to share stories and support each other.

  • AVM Presenting with Trigeminal Neuralgia

    6 members Latest Activity: Oct 10, 2014

    For those who have been diagnosed with AVM and trigeminal neuralgia to discuss treatment options and to get support

  • PETS

    39 members Latest Activity: Sep 24

    "Pets enrich our lives!" said one AVM Survivor.

    From the scaly ones to the furry ones, that goldfish in a bowl to a majestic…

  • Northern California Survivors

    12 members Latest Activity: Sep 26 Survivors in Northern California unite :)

  • Mindfulness/Relaxation Techniques

    11 members Latest Activity: Sep 17

    This group is for discussing and sharing mindfulness, breathing, or relaxation techniques helpful for coping with AVM stressors and chronic…

  • cowden syndrome

    3 members Latest Activity: Jul 3, 2014

    Hello everyone.. I was recently diagnosed with cowden and have a brain AVM and leg AVM.. Id like to connect with others that also have the same…

  • AVM and Divorce/Separation

    24 members Latest Activity: Jul 12

    AVMs can put strain on a marriage, and sometimes counseling isn't enough. This group is for those who are going through or have been through a…

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First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

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Blog Posts

Nothing worth having comes easy

Posted by hanc189 on October 7, 2015 at 7:30am 1 Comment

I have used that quote so many times in my life, but it is so true, and so I have found in terms of treatment for my AVM.

"Nothing worth having comes easy"

September 2014, 8 days after my 29th birthday, I had my first seizure. All I can…


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