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Featured Groups

All Groups (65)

  • Mindfulness/Relaxation Techniques

    5 members Latest Activity: Feb 21

    This group is for discussing and sharing mindfulness, breathing, or relaxation techniques helpful for coping with AVM stressors and chronic…

  • Gastrointestinal AVMs

    21 members Latest Activity: Apr 19

    I am looking for others with bleeding stomach and intestinal AVMs. Mine has been particularly bad this last year. Had 20 cauterized only to have…

  • AVM with Seizures / Epilepsy

    174 members Latest Activity: Mar 31

    This group is for AVMers who have experienced seizures / epilepsy, a place to share your experiences, to gain support and friendship.


    74 members Latest Activity: Feb 25

    Take a break from the pain - if only for a few seconds.  Laughter is good for the body, mind and soul.  Get those endorphins moving…

  • Scandinavian AVM Survivors

    49 members Latest Activity: 9 hours ago

    Et forum for oss med AVM i Skandinavia.

  • AVM and Divorce/Separation

    22 members Latest Activity: Mar 22

    AVMs can put strain on a marriage, and sometimes counseling isn't enough. This group is for those who are going through or have been through a…

  • Brainstem AVM & CM

    42 members Latest Activity: Apr 18

    This group is for those who, or are close to someone who have or have had a AVM or Cavernous Malformation in the Brainstem.

  • AVM Presenting with Trigeminal Neuralgia

    6 members Latest Activity: Oct 10, 2014

    For those who have been diagnosed with AVM and trigeminal neuralgia to discuss treatment options and to get support

  • Affirmations and Quotes

    17 members Latest Activity: Mar 16

    Share Affirmations and Quotes that help you keep on!


    132 members Latest Activity: 8 hours ago

    A forum to discuss the challenges that pregnant AVM members face.  Personal stories, discussions, posting baby pictures, ideas and…

  • Southern California

    76 members Latest Activity: Apr 17

    This group is for AVM Survivor members who live in the Southern California area ... for sharing, support and occasional…

  • Spanish AVM

    20 members Latest Activity: Apr 16 My niece is spanish and she had a bleeding 7/13/10 - She had AVM waiting for another angiogram - is not a lot information in spanish I'm her aunt and…

  • AUSTRALIAN & NZ AVM Survivors

    184 members Latest Activity: Apr 10 We are the Australia and New Zealand Sub group- where you can chat with people in your local area and get advice on doctors and support.…

  • Temporal/Parietal Lobe AVMs

    29 members Latest Activity: Mar 22

    Support Group for all members with Temporal and Parietal Lobe AVMs


    43 members Latest Activity: on Monday

    New group linking anyone with DVAF's
    Set up by Vin Frm VinandOmi who has a Type 3 DVAF

  • cowden syndrome

    3 members Latest Activity: Jul 3, 2014

    Hello everyone.. I was recently diagnosed with cowden and have a brain AVM and leg AVM.. Id like to connect with others that also have the same…

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Blog Posts

Pre Day Treatment

Posted by Deby62 on April 7, 2015 at 5:59am 2 Comments

OK So today is Tuesday April 7th. Post birthday for Joe which was awesome thanks to me the Girlfriend, I made sure he had all his favorites: Grilled Rockfish, Oysters, wild rice and lemon meringue pie!! So today we start a dose of steroids. 1 in…


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