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Featured Groups

All Groups (65)

  • PETS

    39 members Latest Activity: Feb 26

    "Pets enrich our lives!" said one AVM Survivor.

    From the scaly ones to the furry ones, that goldfish in a bowl to a majestic…

  • Active Community Moderators

    11 members Latest Activity: 1 hour ago

    This group is for moderators to discuss community management topics.

  • Extremity and Other Non-Brain AVMs

    573 members Latest Activity: on Wednesday

    For those of us with AVM's outside the brain. Facial, Spinal, Lungs, Arms, Legs...wherever!

  • Mindfulness/Relaxation Techniques

    4 members Latest Activity: Jan 3

    This group is for discussing and sharing mindfulness, breathing, or relaxation techniques helpful for coping with AVM stressors and chronic…

  • Gastrointestinal AVMs

    20 members Latest Activity: Feb 22

    I am looking for others with bleeding stomach and intestinal AVMs. Mine has been particularly bad this last year. Had 20 cauterized only to have…


    74 members Latest Activity: Feb 25

    Take a break from the pain - if only for a few seconds.  Laughter is good for the body, mind and soul.  Get those endorphins moving…

  • Spinal AVM or AVF

    104 members Latest Activity: Mar 14

    Support group for those suffering from, or dealing with the symptoms after, a spinal AVF.

  • AVM and Divorce/Separation

    22 members Latest Activity: Mar 22

    AVMs can put strain on a marriage, and sometimes counseling isn't enough. This group is for those who are going through or have been through a…

  • Occipital AVM

    56 members Latest Activity: on Tuesday

    This group welcomes individuals with Occipital Lobe AVM's and relatives, friends, and caregivers, to share stories and support each other.

  • AVM Presenting with Trigeminal Neuralgia

    6 members Latest Activity: Oct 10, 2014

    For those who have been diagnosed with AVM and trigeminal neuralgia to discuss treatment options and to get support


    130 members Latest Activity: Mar 11

    A forum to discuss the challenges that pregnant AVM members face.  Personal stories, discussions, posting baby pictures, ideas and…

  • Scandinavian AVM Survivors

    49 members Latest Activity: on Friday

    Et forum for oss med AVM i Skandinavia.

  • AVM Greeters' group

    2 members Latest Activity: 6 hours ago

    Our greeters are terrific -- this group is for you.

  • Temporal/Parietal Lobe AVMs

    26 members Latest Activity: Jan 30

    Support Group for all members with Temporal and Parietal Lobe AVMs

  • cowden syndrome

    3 members Latest Activity: Jul 3, 2014

    Hello everyone.. I was recently diagnosed with cowden and have a brain AVM and leg AVM.. Id like to connect with others that also have the same…

  • Brainstem AVM & CM

    40 members Latest Activity: Mar 16

    This group is for those who, or are close to someone who have or have had a AVM or Cavernous Malformation in the Brainstem.

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Blog Posts

11 month update

Posted by Danijo on March 19, 2015 at 6:23am 5 Comments

Cheers to hope!!

I was…


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