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Featured Groups

All Groups (57)

  • Southwest AVM Survivors

    62 members Latest Activity: Aug 5

    For those in or near Texas.

  • Gastrointestinal AVMs

    23 members Latest Activity: Aug 26

    I am looking for others with bleeding stomach and intestinal AVMs. Mine has been particularly bad this last year. Had 20 cauterized only to have…

  • Scandinavian AVM Survivors

    51 members Latest Activity: yesterday

    Et forum for oss med AVM i Skandinavia.

  • Brainstem AVM & CM

    46 members Latest Activity: Aug 10

    This group is for those who, or are close to someone who have or have had a AVM or Cavernous Malformation in the Brainstem.

  • Unruptured AVM

    225 members Latest Activity: Aug 17

    The idea of this group is to discuss AVM that did not bleed yet. Should we Treat or leave it untreated and wait ? The impact of untreated AVM in…

  • Parents of AVM

    502 members Latest Activity: on Saturday For issues specific to parents of children with an AVM.

  • PETS

    39 members Latest Activity: May 2

    "Pets enrich our lives!" said one AVM Survivor.

    From the scaly ones to the furry ones, that goldfish in a bowl to a majestic…

  • AVM with Seizures / Epilepsy

    179 members Latest Activity: Jun 25

    This group is for AVMers who have experienced seizures / epilepsy, a place to share your experiences, to gain support and friendship.

  • PREGNANCY AND AVM

    137 members Latest Activity: Aug 17

    A forum to discuss the challenges that pregnant AVM members face.  Personal stories, discussions, posting baby pictures, ideas and…

  • Northern California Survivors

    9 members Latest Activity: Jul 27 Survivors in Northern California unite :)

  • Mindfulness/Relaxation Techniques

    10 members Latest Activity: Aug 27

    This group is for discussing and sharing mindfulness, breathing, or relaxation techniques helpful for coping with AVM stressors and chronic…

  • cowden syndrome

    3 members Latest Activity: Jul 3, 2014

    Hello everyone.. I was recently diagnosed with cowden and have a brain AVM and leg AVM.. Id like to connect with others that also have the same…

  • AVM and Divorce/Separation

    24 members Latest Activity: Jul 12

    AVMs can put strain on a marriage, and sometimes counseling isn't enough. This group is for those who are going through or have been through a…

  • LONG TERM SURVIVORS

    45 members Latest Activity: Aug 16

    Long Term survivors

  • Occipital AVM

    66 members Latest Activity: on Friday

    This group welcomes individuals with Occipital Lobe AVM's and relatives, friends, and caregivers, to share stories and support each other.

  • CM-AVM

    17 members Latest Activity: Jul 16

    Started a group because my son was recently diagnosed with CM-AVM. Please join so we can share stories, treatment options, and support.

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Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

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Events

Blog Posts

Avm 25 years ago on left side of brain. Now walking with a limp on right leg, could this be scar tissue? Had angiogram this week, no new developments thankfully! 5 mris on head, back, neck, spine fou…

Posted by Donna on August 28, 2015 at 1:30pm 3 Comments

Avm 25 years ago on left side of brain. Now walking with a limp on right leg, could this be scar tissue? Had angiogram this week, no new developments thankfully! 5 mris on head, back, neck, spine found nothing. Emg test done on nerves.. nothing.…

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