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  • Cavernous Malformation Support Network

    87 members Latest Activity: yesterday

    Hello, My name is Patti and if you are visiting this website, we share a common bond...the fears, sadness, uncertainty and many emotions of having…

  • AVM Greeters' group

    10 members Latest Activity: Dec 1, 2015

    Our greeters are terrific -- this group is for you.

  • Facial (or Head/Neck) AVMs

    104 members Latest Activity: Feb 1

    For anyone who has a facial, head, or neck avm or wants to learn more about them.

  • Gastrointestinal AVMs

    24 members Latest Activity: Jan 24

    I am looking for others with bleeding stomach and intestinal AVMs. Mine has been particularly bad this last year. Had 20 cauterized only to have…


    187 members Latest Activity: Nov 13, 2015

    Group that focuses on AVM awareness , To build an informative group to help UK & Ireland AVMers and their families find the best Answers to…

  • Active Community Moderators

    12 members Latest Activity: 44 minutes ago

    This group is for moderators to discuss community management topics.

  • CM-AVM

    19 members Latest Activity: Oct 30, 2015

    Started a group because my son was recently diagnosed with CM-AVM. Please join so we can share stories, treatment options, and support.

  • Extremity and Other Non-Brain AVMs

    624 members Latest Activity: yesterday

    For those of us with AVM's outside the brain. Facial, Spinal, Lungs, Arms, Legs...wherever!

  • AVM and Divorce/Separation

    25 members Latest Activity: Dec 29, 2015

    AVMs can put strain on a marriage, and sometimes counseling isn't enough. This group is for those who are going through or have been through a…

  • Northern California Survivors

    13 members Latest Activity: Jan 17 Survivors in Northern California unite :)

  • Radiosurgery Patients (Gamma Knife/other)

    297 members Latest Activity: 1 hour ago

    To those who have been treated or are considering treatment with a type of radiosurgery for their a.v.m.

  • Parents of AVM

    514 members Latest Activity: Jan 22 For issues specific to parents of children with an AVM.

  • PETS

    39 members Latest Activity: Sep 24, 2015

    "Pets enrich our lives!" said one AVM Survivor.

    From the scaly ones to the furry ones, that goldfish in a bowl to a majestic…

  • Sleep / Take Nap Group

    22 members Latest Activity: Nov 20, 2015

    This group is somewhere to go when we are exhausted and can't do anything except shut down and sleep! Drop in before you fall asleep and say…

  • Mindfulness/Relaxation Techniques

    13 members Latest Activity: on Wednesday

    This group is for discussing and sharing mindfulness, breathing, or relaxation techniques helpful for coping with AVM stressors and chronic…


    60 members Latest Activity: Jan 27

    New group linking anyone with DVAF's
    Set up by Vin Frm VinandOmi who has a Type 3 DVAF

  • cowden syndrome

    3 members Latest Activity: Jul 3, 2014

    Hello everyone.. I was recently diagnosed with cowden and have a brain AVM and leg AVM.. Id like to connect with others that also have the same…


    47 members Latest Activity: Dec 1, 2015

    Long Term survivors

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