AVM Survivors Network: Arteriovenous Malformation Support

We're AVM Survivors, Here For Your Support...

All Groups (19)

  • Parents of AVM

    130 members Latest Activity: 1 day ago For issues specific to parents of children with an AVM.

  • Extremity AVM's

    129 members Latest Activity: 1 day ago For those of us with AVM's outside the brain. Facial, Spinal, Lungs, Arms, Legs...wherever!

  • Canada AVM Survivors

    27 members Latest Activity: Jul 21 A group for Canadian AVM survivors.

  • Unraptured AVM

    15 members Latest Activity: Jul 27 The idea of this group is to discuss AVM that did not bleed yet. Should we Treat or leave it untreated and wait ? The impact of untreated AVM in…

  • Southeast AVM Survivors

    14 members Latest Activity: 2 minutes ago This group is for AVM Survivor members who live in the Southeast ... for sharing, support and occassional get-togethers.

  • Inoperable AVMs

    73 members Latest Activity: Jul 20 A subgroup for patients (and relatives) who have been told their AVM is inoperable.

  • Teens with AVMs

    10 members Latest Activity: Apr 18 This group is for teens who are dealing with AVMs...

  • Spouses Of AVM Survivors

    14 members Latest Activity: Jul 25 This group is to support husband and wives of a AVM survivor. Understanding behavior and thought patterns so that we can make life easier for the surv…

  • Teens Of AVM Survivors

    5 members Latest Activity: Apr 14 This group is for teens struggling with understanding AVM Survivor parents in the everyday issues. Why does my father or mother behave or think this w…

  • AUSTRALIAN & NZ AVM SURVIVORS GROUP

    31 members Latest Activity: Jul 13 For all those living in australia

  • Spinal AVF

    2 members Latest Activity: 2 hours ago Support group for those suffering from, or dealing with the symptoms after, a spinal AVF.

  • Mid-Atlantic AVM Survivors

    4 members Latest Activity: Jul 26 This group is for anybody in the Mid-Atlantic area (Maryland, Virginia, Washington, DC, Delaware, Pennsylvania, West Virginia) that has survived an AV…

  • AVM near speech area

    1 member Latest Activity: Apr 2 The idea of this group is to share different side effects caused by AVM in the speech area.

  • NEW ZEALAND AVM SURVIVORS

    1 member Latest Activity: Apr 4 This group is for anyone from New Zealand dealing with an AVM or the after effects of surgery or other treatment. I have found little to no support in…

  • Kid Europian Survivers

    1 member Latest Activity: May 22 A group for kids who lived through AVM or people who had their AVM rupture when they were a kid and by the way Kid= any person under 18

  • Children With Parents That Have An AVM

    1 member Latest Activity: Jul 6 Children who have either a mom or dad with an AVM and how to care for them.

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