Replies to This Discussion

Permalink Reply by Patrice on January 4, 2012 at 12:14pm

Wow! Listening to your story sounds exactly like mine. I too went to er to rule out a rupturing avm when they said to do a spinal tap for the same reason as yours. I too laid flat for an hour. during the procedure nothing went wrong as far as I knew. I fell asleep after my procedure. when I woke up i could not lift my legs off the bed and I had a really bad headache that came the next day that was worse than when i went to the hospital. I spent one week in the hospital because i was unable to walk after the procedure. my hips hurt sooooo bad after the procedure. I had never had any problems with my hips and things before besides my headaches. My lower back never hurt but my hips were so bad i was in physical therapy for a month afterwards and only reason it didnt continue after that is because of my lack of insurance issues. but i suggest you ask your neurosurgeon or neurologist about it. I was told by my surgeon that when they do the surgery (craniotomy) for removal of avm that they put in a drainage tube for csf fluid in the back to lessen the pressure in the brain to allow for the most optimal surgery technique. He said its like having a slow drawn out lumbar puncture. when i had my tap done back in may they think that the fluid release also released pressure in the brain causing my brain to shift onto nerves going to the hips. so I would get a second and third opinion. because they blamed my hip pain and whatnot on me having a conversion disorder. it was something that had never come up before and its a mental disorder. needless to say its an erroneous diagnosis and they finally see that. but yeah 2nd and 3rd opinions are definitely recommended.