We are AVM survivors, here for your support.
Unruptured AVM Discussions (8)
| Discussions | Replies | Latest Activity |
|---|---|---|
 any advicehave a 2cc avm on the right lower side of my brain the dr said he could monitor it i have not had any abnormal headaches or seizures he men… Started by Bob Whitt |
0 | yesterday |
 what to do...Our son was diagnosed while in the NICU (28 weeks premature) with a dural AVM. at 4 months old he had an angiogram with embolization, the n… Started by Gavin's mom <3 |
2 |
Feb 7 Reply by Stephanie |
I Need to KnowI was wonder if there was anyone with an AVM in their Left Insular Cortex region. I have one in the anterior portion. It has caused adult o… Started by Rk0130 |
0 | Jan 19 |
 Spinal tap/ Lumbar Puncture headache?Hi Everyone! I had Gamma Knife 7 months ago for my unruptured AVM treatment. Last week, I experienced the worst headache ever, so I went to… Started by Carrie A. Neff |
1 |
Jan 4 Reply by Patrice |
 To Wait and See?I found out about my AVM alomst a month ago. I get freguent headaches, my neuralogist believed it to be migranes but sent me for an MRi and… Started by Heba |
16 |
Nov 27, 2011 Reply by Daniella |
oTo treat or not to treatMy neice is the patient and I attended pre-op with her on 9/23. I was wondering the same thing as many of you...treat or not treat. Since t… Started by Dianne |
3 |
Sep 28, 2011 Reply by A Collins |
i need suggestionplease help me to know more about avm as our doctor said he hasd to perform surgery .is there any problems ? it needfs angiogram? how we ca… Started by harikrishna |
1 |
Jul 26, 2011 Reply by marcylynn |
Urgent! We need you help!We were just told our 4 year old son has a rare tumor inside his knee joint that may be cancerous. We were informed the he also has VM in h… Started by Jessie and Jason Fortman |
1 |
Jun 5, 2011 Reply by Elizabeth Conti |
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the appioment went.......
Posted by Celina on May 31, 2012 at 8:59pm 1 Comment 0 Likes
it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.
Starting to understand everything...
Posted by Hannahpoppe on May 30, 2012 at 12:45am 1 Comment 0 Likes
Hi everyone!
I'm a new member here...
I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…
Continue
Of Seizures
Posted by Jaime G. on May 29, 2012 at 7:32am 0 Comments 0 Likes
I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…
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Facebook Feature Supports Organ Donation
Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments 0 Likes
We never realize the value of organ donation, until we're on the receiving end.…
NUMBNESS
Posted by josh54 on May 28, 2012 at 12:20pm 1 Comment 0 Likes
My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…
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feelin a bit frustrated but hopeful
Posted by Patrice on May 28, 2012 at 5:13am 0 Comments 0 Likes
Counting Down The Days...
Posted by Sam on May 27, 2012 at 3:30pm 2 Comments 0 Likes
I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.
Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…
What up with my ear???
Posted by kristi on May 26, 2012 at 3:17pm 3 Comments 0 Likes
I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)
My bruit was my connection to my heart, so I always thought (when I never…
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October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
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