Our son was diagnosed while in the NICU (28 weeks premature) with a dural AVM. at 4 months old he had an angiogram with embolization, the nueroradiologist was able to occlude 95% of the AVM. Our…Continue
Started by Gavin's mom <3. Last reply by Stephanie on Tuesday.
I was wonder if there was anyone with an AVM in their Left Insular Cortex region. I have one in the anterior portion. It has caused adult onset Epilepsy, and was operated on in 2010 by craneiotomy to…Continue
Started by Rk0130 Jan 20.
Hi Everyone!I had Gamma Knife 7 months ago for my unruptured AVM treatment. Last week, I experienced the worst headache ever, so I went to the ER so they could rule-out a bleed. They did a CT scan…Continue
Tags: blood, patch, puncture, lumbar, tap
Started by Carrie A. Neff. Last reply by Patrice Jan 4.
I found out about my AVM alomst a month ago. I get freguent headaches, my neuralogist believed it to be migranes but sent me for an MRi and my AVM was found. So far I've seen 3 neurosurgeons and had…Continue
Tags: occipital, see, and, wait, unruptured
Started by Heba. Last reply by Daniella Nov 27, 2011.
Comment
Hi Everyone, I have an AVM Graded 3-4 on my right frontal lobe. I had Gamma Knife in May, and had fairly frequent migraines afterwards for a number of months. I still get them now and then, but less frequent than before. For the past few weeks, I have had tingling on the left side of my body, from my legs to my face. Sometimes it is worse than others, and comes with being in a 'fog'. The worst one I have had, my husband was waking me up, and I knew he was there, but he said I was just starring, I was trying to talk to him but I couldnt speak. It only took a few minutes for me to 'come to' and talk to him slowly, but scary anyways. I have had a few of these 'episodes' a week for the past 3 weeks or so. I have an appointment for an MRI and a meeting with my Neurosurgeon in 2 weeks, but I am just wondering if any of you have had any similar symptoms with having an unruptured AVM. i always feel like I'm in fear of the "what if this is it..." when I have these episodes. If any of you have felt like this, what was the outcome?
thanks for your help everyone! :)
Hey, im new here. Somehow it's nice to know people who is 'similar' with me. My AVM is unruptered, and now i confuse which medical treatment should i take. Mine's not really big it's on left-occipital of my brain. I have headaches everyday and sometimes severe ones. I'm from Indonesia, here in my country, surgery is the only option we had currently. If we want to take Gamma Knife we have to do it outside of the country. I'm sixteen and i'm in the last year of my High School.
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