Group that focuses on AVM awareness , To build an informative group to help UK & Ireland AVMers and their families find the best Answers to their questions about treatments, doctors in the UK & Eire, self help and to press the powers that be for an increase in research and promote funding to find a cure or far better specific treatments
Hi Guys our AVM treatment centre list is growing ! If you have had treatment with anyone else please let me know. also if i have made any errors in the list let me know so i can amend list Thanks George
Mr Daniel Morris , University of Wales
Mr Dunaway ,Surgeon Great Ormond St Childrens Hospital London
Mr F Robertson,consultant in interventional and diagnostic neuroradiology, Great Ormond St Childrens Hospital London
Dr Glover,Consultant Paediatric Dermatologist, Great Ormond St Childrens Hospital London
Dr Nishikawa, Queen Elizabeth Birmingham ,
Dr Monaghan, Queen Elizabeth Birmingham
Dr Lamin. Queen Elizabeth Birmingham
Dr Rodrigues Birmingham childrens hospital
Dr Solanki Birmingham Childrens hospital
Dr Ashpole,Charring Cross London, Cromwell hospital
Mr David Peterson,Neurosurgeon, Clemantine Churchill Hill hospital Sudbury, Middx,Charring Cross London, Cromwell hospital London,
Mr David Peterson, Radiologist,Clemantine Churchill Hill hospital Sudbury, Middx,Charring Cross London, Cromwell hospital London,
Dr Maneesh Patel, Neurologist ,Clemantine Churchill Hill hospital Sudbury, Middx,Charring Cross London, Cromwell hospital London,
Dr Michael Gross, Neurologist ,Clemantine Churchill Hill hospital Sudbury, Middx,Charring Cross London, Cromwell hospital London,
Dr Joan Grieve. Neurosurgeon , National hospital for Neurology and Neurosurgery at Queens square, London
Prof. Bodo Lippitz
Specialties; Gamma knife surgery, Paediatric gamma knife surgery
Based at the Cromwell hospital, London
Mr Vloebergh,neurosurgeon,Queens medical centre in Nottingham
Dr Lenthall,neuro-radiologist,Queens medical centre in Nottingham
Mr Abouharb Neurosurgeon, The Royal Victoria Hospital in Belfast
Dr Rennie Neuroradiologist,The Royal Victoria Hospital in Belfast, Northern Ireland.
Mr Sorin Bucur, Hurstwood Park Princess Royal Hospital Haywards Heath
Mr Christos Tolias neurosurgeon ,The Cromwell Hospital, London.
Dr Nick Plowman,consultant oncologist Gamma Knife treatment,The Cromwell Hospital, London.
Mr Owen Sparrow, General Hospital of Southampton (Neuro).
Dr Clifton St George's hospital, Tooting South London
Dr Johnston St George's hospital, Tooting South London
Dr Rowe ,Royal Hallamshire hospital in Sheffield who specialise in NHS gamma knife surgery in the UK.
Mr. Mohsen Javadpour,Consultant Neurosurgeon,Beaumont Hospital , Dublin,
Dr. Paul Brennan Clinical Director of Radiology,Beaumont Hospital ,Dublin , Beaumont Rd, Dublin 9, Ireland Tel, 0035318093000 www.beaumont.ie
Hi Guys, May I ask what your experiences has been like if you have had to stop driving specifically in the UK. And how long was the ban/exclusion and how long did it take to get your licence back ?, The reason I ask is that I was asked not to drive for 6 months after Craniotomy (July 7th 2014) I reapplied and the DVLA got my reapplication forms 20th Nov 2014 (approx. 8 weeks before Jan 7th when my exclusion ends). So I got a letter 19th Jan saying that they were waiting on information from my…Continue
Hi all,can I ask your thoughts please.6 months ago I started getting horrible headaches - daily, with nausea, dizziness and cognitive problems and for the last 4 months have been seeing a neurologist in my home town. Then 4 weeks ago was told had avm by GP. My local neurologist called me at home that evening to tell me she was referring me to another neurologist in London. 2 weeks later the neurologist from London hospital rang me in the evening to say he needed more scans and thought that a…Continue
Hi all I am trying to get travel insurance for my 22 year old daughter , who has had a bleed and has got inoperable multiple avms . I have been told by Thomson they can't insure her but they said to keep trying other company's .however when I put in the condition when trying to get quotes the sites don't recognise it . We only want to take her to Spain while she's ok because her symptoms are getting worse . So I was wondering if anyone has managed to get insurance .
Hi, I was diagnosed with a large cerebellum avm yesterday and I am feeling very scared about what the future holds, probably due to lack of knowledge on this condition. I am 41 and with my partner, Rob, We have 2 young children aged 5 and 8 and live in Derby. About 4 weeks ago I was diagnosed with a condition called hfs due to a fairly severe facial twitch which started in August this year. I was sent for an MRI as there was concern about the rate of progression of this twitch which can take…Continue