Group that focuses on AVM awareness , To build an informative group to help UK & Ireland AVMers and their families find the best Answers to their questions about treatments, doctors in the UK & Eire, self help and to press the powers that be for an increase in research and promote funding to find a cure or far better specific treatments
Hi Guys our AVM treatment centre list is growing ! If you have had treatment with anyone else please let me know. also if i have made any errors in the list let me know so i can amend list Thanks George
Mr Daniel Morris , University of Wales
Mr Dunaway ,Surgeon Great Ormond St Childrens Hospital London
Mr F Robertson,consultant in interventional and diagnostic neuroradiology, Great Ormond St Childrens Hospital London
Dr Glover,Consultant Paediatric Dermatologist, Great Ormond St Childrens Hospital London
Dr Nishikawa, Queen Elizabeth Birmingham ,
Dr Monaghan, Queen Elizabeth Birmingham
Dr Lamin. Queen Elizabeth Birmingham
Dr Rodrigues Birmingham childrens hospital
Dr Solanki Birmingham Childrens hospital
Dr Ashpole,Charring Cross London, Cromwell hospital
Mr David Peterson,Neurosurgeon, Clemantine Churchill Hill hospital Sudbury, Middx,Charring Cross London, Cromwell hospital London,
Mr David Peterson, Radiologist,Clemantine Churchill Hill hospital Sudbury, Middx,Charring Cross London, Cromwell hospital London,
Dr Maneesh Patel, Neurologist ,Clemantine Churchill Hill hospital Sudbury, Middx,Charring Cross London, Cromwell hospital London,
Dr Michael Gross, Neurologist ,Clemantine Churchill Hill hospital Sudbury, Middx,Charring Cross London, Cromwell hospital London,
Dr Joan Grieve. Neurosurgeon , National hospital for Neurology and Neurosurgery at Queens square, London
Prof. Bodo Lippitz
Specialties; Gamma knife surgery, Paediatric gamma knife surgery
Based at the Cromwell hospital, London
Mr Vloebergh,neurosurgeon,Queens medical centre in Nottingham
Dr Lenthall,neuro-radiologist,Queens medical centre in Nottingham
Mr Abouharb Neurosurgeon, The Royal Victoria Hospital in Belfast
Dr Rennie Neuroradiologist,The Royal Victoria Hospital in Belfast, Northern Ireland.
Mr Sorin Bucur, Hurstwood Park Princess Royal Hospital Haywards Heath
Mr Christos Tolias neurosurgeon ,The Cromwell Hospital, London.
Dr Nick Plowman,consultant oncologist Gamma Knife treatment,The Cromwell Hospital, London.
Mr Owen Sparrow, General Hospital of Southampton (Neuro).
Dr Clifton St George's hospital, Tooting South London
Dr Johnston St George's hospital, Tooting South London
Dr Rowe ,Royal Hallamshire hospital in Sheffield who specialise in NHS gamma knife surgery in the UK.
Mr. Mohsen Javadpour,Consultant Neurosurgeon,Beaumont Hospital , Dublin,
Dr. Paul Brennan Clinical Director of Radiology,Beaumont Hospital ,Dublin , Beaumont Rd, Dublin 9, Ireland Tel, 0035318093000 www.beaumont.ie
We are coming to the end of our tether with the NHS and need some advise. - The NHS are failing to support us. - They failed to diagnose for 10 years. - They have performed some questionable treatment without consent.- We are struggling to get an appointment with a specialist consultant.Anyone else having frustrations with them?Anyone know the legalities within the NHS, we are looking to take this further.Any advice would be greatly appreciatedMany ThanksContinue
I have had 2 strokes as a result of AVM haemorrhages, the last being 3 years ago. It left me with some minor disability but nothing major and I’ve made a full return to work. Following surgeries and radiotherapy the AVM was removed and I was told it was gone last year. I am 41 years old, married with 2 primary school age childrenHowever in the last year I’ve started to have symptoms of what I now think is depression. I’m emotionally ‘numb’ and apathetic, I get tired a lot, have little or…Continue
Dear All,I had a hemorrhagic stroke in March this year due to an AVM bleed. Since the bleed I have suffered from issues with concentration, focus, awareness and occasionally issues with short term memory.... It's been pretty difficult to operate myself and maintain relationships with my family due to my personality changes since my avm bleed in the brain!!I am trying to pursue a claim through Critical Illness Insurance which I've had for over a year and a bit prior to the hell I went through…Continue
Hello, Can anybody offer advice? I have a facial AVM and undergone 6 embolisations over the years, but it is getting worse. Last weeks nose bleeds were very scary and I had to go to hospital for a transfusion and kept in for 3 days. I am treated in Leeds and I like my neuro radiologist but his experience of AVM's is limited. How do we get specialist care in the UK or indeed contact 2 specialists I keep reading about in the States? If anybody is going through the same problem, I would love to…Continue