We are AVM survivors, here for your support.

Spouses Of AVM Survivors

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This group is to support husband and wives of a AVM survivor. Understanding behavior and thought patterns so that we can make life easier for the survivor , spouse, and children within the home. no bashing and complaining.

Members: 38
Latest Activity: on Monday

Discussion Forum

mood swings 8 Replies

I was wondering if any other husbands had problems dealing with the intense mood swings from their wife's because of the condition.

Started by d melton. Last reply by Michelle Nov 6, 2011.

What does your family do for fun 4 Replies

Just wondering what other families do for entertainment. Mark cannot be around large crowds or places that has a lot of action going on. we always have a hard time deciding on where we want to go or…Continue

Started by Tina. Last reply by Matt Mihalek Oct 2, 2011.

Helping One another understand 2 Replies

I wanted to add this group because just in everyday life as spouses of AVM survivors I find that my husband will behave in certain ways. Sometimes It can make it difficult for the relationship and…Continue

Tags: wife, behavior, facts, signs, husband

Started by Tina. Last reply by Tina Jul 25, 2011.

memory loss 7 Replies

with memory loss for the survivor has a struggle remembering situations or conversations taking place. Are there any families that deal with situations or conversations that took place a couple days,…Continue

Started by Tina. Last reply by Armand Mar 20, 2011.

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Comment by Matt Mihalek on January 16, 2012 at 7:15pm: Sorry to hear it. Some times it's the little things that build up till we can't take it anymore.

Comment by John on January 16, 2012 at 4:12pm: Oh, I forgot to tell you also, John's special glasses are lost. So that is another thing I have to replace

Comment by John on January 16, 2012 at 2:58pm: Mood Swings
My husband John had his AVM 2008, he had an embolization. Two & a half years later he was put on 1500mg's of depakote for his mood swings.
He was so lethargic on the depakote, I had the doctor ween him off of it.
The doctor weened him off of the 1500mg's of depakote in only 2 weeks time & on New Year's Eve, John had a grand mal seizure. He was taken by ambulance to the nearest hospital & then helicoptered to Jefferson Neuroscience. No one can believe the doctor did this, but now I wonder who pays for John's lost glasses, broken crowns & on Wednesday he is having oral surgery & will need a partial plate.
It seems as though doctors don't know how to handle patients who have had an AVM Only their neurosurgeons & they discharge you after your surgery. I am John's wife Joyce & I am telling you this so nothig happens to one of your loved ones. Joyce

Comment by Matt Mihalek on January 4, 2012 at 6:42pm: Wife is currently in the hospital as her edema won't stop. The swelling just continues from the radiation and the necrosis. They are going to be removing a section of her skull in the next couple of days. She is scared, hurting, and slowing down. It breaks my heart, but I am not sure I can make her give more than she already has. Or, that I should even ask.

Comment by Flo on September 11, 2011 at 5:04pm: Has anyone had to deal with friends/family who think that the AVM survivor's behaviour is willful, mean and arrogant? We have lost many family relationships since the AVM surgery and the behavioural changes it caused.

Comment by Stacy Blankenship on September 13, 2010 at 10:46pm: my husband had his last surgery in 07 he still has really bad headaches and we have had several problems with his meds. We have 5 girls who up until may never seen dad go into a seizure. That had to be the worst. He felt guilty and it didnt matter what anybody said you couldnt make it anybetter. I live with guilt to i pushed him into having the avm removed he would have taken his time if i didnt remind him that we needed him here with us. when he gets in pain and depressed i blame my self.

Comment by JH on July 11, 2010 at 4:50pm: Hi Stacie, I can imagine how rough this is for you. I wouldn't tell you what to feel, but I think there's no need to feel selfish or at all guilty for your worries...this is happening to both of you, not just to your husband. I try to stay in a present-tense frame of mind..."Gladly accept the gifts of the present hour"...but it's not easy...have you found anything that makes it easier?

Comment by Stacie L Ruppel on July 9, 2010 at 9:02am: My husband is currently in a TBI acute rehabilitation unit. He has been in the hospital (this time) since March 15th. This time he has lost his ability to speak and he moves very little. The Doctor says that he expects him to walk and talk again but that it may take a long long time for us to see that day. It is very painful to sit by him and not know how to help him..he can't tell me what he needs. I am also feeling very selfish because I worry that he isnt going to remeber me or our life. We have been married for 26 years and the thought that he might not remeber that when he does come back hurts. I know that is selfish and that should be the least of my worries. I don't know what to expect or what the rest of our lives will be.

Comment by Tommy on June 22, 2010 at 5:41pm: Hi Tina, We are doing okay..She still has many side effects, but are working through them..

Her energy is also very low and she hates it, we think it is from her Keppra,

Love and Hope
Tommy and Heidi

Comment by Tina on June 18, 2010 at 5:21pm: Hi Tommy how are you and your wife doing. has she made any progress.

I have notice with Mark that he is energy level is lower than than normal for him.

Love and God Bless
Mark and Tina