We are AVM survivors, here for your support.
Spinal AVF Discussions (4)
| Discussions | Replies | Latest Activity |
|---|---|---|
 Is anybody heard about bee Sting Therapy?I just sawthis video in YouTube and do some internet research. If anybody has any experience about it please let me know. I am a recover… Started by sandeepg0007 |
0 | May 9 |
 WorkingI have a question for everyone. How many of you still work and if not when did you stop working? My husband still works fulltime, eventhou… Started by Lisa Frederick Halfacre |
22 |
Apr 18 Reply by Tina |
 Surgery DayWell... Here I go!! It's finally here! In about 4 hrs, I will be on the table and the doctors will be ripping this monster from my back!!!… Started by Michael |
2 |
Mar 25 Reply by sandeepg0007 |
 Spasticity/BaclofenDo you have spasticity, Tori? Do you take baclofen to address it? Started by David D |
0 | Aug 3, 2010 |
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the appioment went.......
Posted by Celina on May 31, 2012 at 8:59pm 1 Comment 0 Likes
it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.
Starting to understand everything...
Posted by Hannahpoppe on May 30, 2012 at 12:45am 1 Comment 0 Likes
Hi everyone!
I'm a new member here...
I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…
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Of Seizures
Posted by Jaime G. on May 29, 2012 at 7:32am 0 Comments 0 Likes
I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…
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Facebook Feature Supports Organ Donation
Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments 0 Likes
We never realize the value of organ donation, until we're on the receiving end.…
NUMBNESS
Posted by josh54 on May 28, 2012 at 12:20pm 1 Comment 0 Likes
My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…
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feelin a bit frustrated but hopeful
Posted by Patrice on May 28, 2012 at 5:13am 0 Comments 0 Likes
Counting Down The Days...
Posted by Sam on May 27, 2012 at 3:30pm 2 Comments 0 Likes
I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.
Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…
What up with my ear???
Posted by kristi on May 26, 2012 at 3:17pm 3 Comments 0 Likes
I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)
My bruit was my connection to my heart, so I always thought (when I never…
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Coffee in Rockhampton
October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
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