Comment

Comment by HappyMe on January 11, 2013 at 6:20pm

Happy New year to everyone! Speedy recovery. Keep on working at it!!

Comment by Dionne on January 11, 2013 at 3:13pm

Hello everyone. My son is almost 9months old and has an AVM located in his neck and C7. I have a question to all..... Is there anyone on here that has been diagnosed with an AVM before it ruptured?"

Comment by Joe on December 19, 2012 at 2:27pm

Hi Everyone,
I've been reading some of the comments. It's crazy how we all vary so much, but suffer the same symptoms. Well my AVM is located around the T6 T7 area. The first symptom was a numb feeling on my left foot, the ball of my foot. I mistook it as a pulled sciatic nerve. This lasted for about two weeks. On Nov 26, 2011 at 1:10PM my AVM ruptured or bled. I felt like an electric bolt shot down my right leg. At this point I had no idea what was happening to me. I was alone in my apartment and scared out of my wits. I had a burning sensation on my right abdomen area and it kept getting more intense as the minutes passed. I called 911 and by the time they arrived I was on my knees in excruciating pain, my BP was 220/160 my head was pounding it felt like it was fixing to explode. The EMTs kept giving me glycerin pills to bring my BP down, that was the longest ambulance ride at least it felt like it. Forgot to mention by the time we left my apartment which was about an hour after my rupture I could no longer stand everything from my chest down went numb and my right arm went limp. My right hand closed up into a fist.
I was transferred to Methodist Hospital Downtown in Memphis, TN. It took 3 days before I was diagnosed. A week later the Doc performed an angiogram to try an embolization to no avail. My AVM or the veins going to my AVM are so loopy that the catheter could not turn the sharp corners. After my release from Methodist hospital I spent two weeks at the Baptist Hospital for PT and OT. After which I was flown back to my home town of San Antonio, TX. I always planned to return to home but not in this condition, one just never knows. So I met with my neurologist Dr. Lee Birnbaum pretty cool guy. His team also tried an attempt at this AVM with smaller catheters same results. So at this point inoperable. I'm taking Baclofen, Gabapentin and Oxybutynin. I have the same burning sensation, pins and needles in my legs. My right arm I regained about 95% strenght, I can't feel hot or cold and my hand is always cold. But hey I can write my name. It's been a long year and I'm glad I can get to start a New Year. Before I found this sight I felt like I was the only one suffering from this. Honestly for all it's worth I wish I was. Unless you live it you just don't know. I tell my sisters and family that this thing inside me knocked me down, but it didn't Knock me out!!!! Sorry for the long story, but this is after all my first post and hopefully not my last!

Comment by Tori T. on November 25, 2012 at 12:09pm

My apologies for not coming by more regularly to check in on us 'spine-ers'. How is everyone? Hope you all had a happy and peaceful Thanksgiving.

Hope you'll all come by and say 'hello' and let everyone know how you are.

Comment by jonas on August 5, 2012 at 6:33pm

Hello everyone I'm new here I'm from philippines. I have multiple avm on my spine since sept last year until now no treatment done, now I'm totally disabled my two legs are weak even my abdomen is always pain. Guys I just want to ask if what kind of pain reliever do you take or can u share to me the name thanks and godbless us...

Comment by HappyMe on July 6, 2012 at 9:37am

Hello everyone! We are a rare bunch arent we? I never talk about this with anyone so it's nice to have a forum where we are all on the same page. No one wants to hear about anyone else's condition at a cocktail party! I have a question. I have not worked in 17 weeks, passed my first deadline to return to work and approach the second deadline in a month. How many of you have returned to work after surgery and how long did it take? Thanks so much.

Comment by Lisa Frederick Halfacre on June 5, 2012 at 1:59pm

I have not been on here in awhile. My husband was hospitalized in April and since then he has doctor's appointments and therapy all the time. Finally seen the neurologist today. First time since Feb. After another MRI series and maybe another angiogram, the plan is to possible sending my husband to the Mayo Clinic. Even with therapy he has functionally declined. He has no feeling in his feet and ankles, and his legs are getting weaker. Now he is starting to lose strength and is complaining of numbness in his arms. After putting the doctor on the spot, he finally told my husband that he is not going back to work for at least another year.

Comment by Andrew on May 22, 2012 at 1:45pm

I forgot to mention that after my last surgery my right nipple hurt lol...and it still does I don't know why. No idea what they do when you're knocked out! :)

Comment by Andrew on May 22, 2012 at 1:43pm

That is the best news you can get, congratulations!!!! Yea, there is def numbness and pain around the incision for a while, but much better after the stitches are out within like 2 weeks.

Comment by Donna on May 22, 2012 at 12:55pm

Yes, they did get it all. I see surgeon next week. He didn't seem concerned about the numbness. Mostly at area of incision and surrounding area.

• ‹ Previous
• 1
• 2
• 3
• …
• 10
• Next ›
• Page