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Southern California

This group is for AVM Survivor members who live in the Southern California area ... for sharing, support and occasional get-togethers.

Location: Long Beach, CA/ Southern California
Members: 21
Latest Activity: on Monday

Discussion Forum

How is everyone feeling today?

Started by Debra Apr 3, 2011. 0 Replies

Thanks for joining the So Cal group for AVMers.  how is everybody feeling today?

Comment Wall

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You need to be a member of Southern California to add comments!

Comment by Nicole R on Monday

Hello everyone! How is the weekend of June 16th/17th for a pot luck at a park or beach in the San Diego area? Is that too soon for everyone? Any ideas on where to have it? How is Mission Bay Park?

Comment by Nicole R on May 23, 2012 at 12:40pm

Hi Debra, Celina and I were talking about it last night and wanted to meet somewhere near the beach, if you could help plan and get everybody together that would be great! I'm doing ok, I'm looking for a job and a new place to live, but not finding either...

Comment by Debra on May 23, 2012 at 1:21am

Hey Nicole - I would love to meet you guys and would love a day in San Diego. If we plan a date at least a few weeks out, will definitely make it. Maybe you want to plan it for a weekend in July and put it in the calendar page for events. Do you want me to help plan it??:-) Btw, how are you doing Nicole??

Comment by Nicole R on May 23, 2012 at 1:08am

Alright, that's 3! Who else can we get? Anybody??

Comment by Jake M on May 22, 2012 at 4:48pm

I might be up for a meeting in San Diego. I live at the South end of Orange County, so I am not too terribly far from SD. That, and some of my in-laws live there and maybe my wife would be interested in visiting her sister while I hang out with some of my fellow AVMers.

Comment by Celina on May 22, 2012 at 4:32pm

im in that sounds great

Comment by Nicole R on May 22, 2012 at 2:53am

We should have a San Diego meet up, who's in?

Comment by Celina on May 22, 2012 at 12:13am

hey everyone how are u feeling?

Comment by Lina Marcella Berrio on May 18, 2012 at 6:16pm

Hello! I just wanted to say hello and hope to get connect to people in SoCal!

Comment by Debra on May 2, 2012 at 11:53am

Welcome to the group erica!! Hope to have a get together this summer so you can meet some people. Anything you need, please let me know.

 

Members (21)

 
 
 

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Blog Posts

the appioment went.......

Posted by Celina on May 31, 2012 at 8:59pm 1 Comment

it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.

Starting to understand everything...

Posted by Hannahpoppe on May 30, 2012 at 12:45am 1 Comment

Hi everyone!

I'm a new member here...

I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…

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Of Seizures

Posted by Jaime G. on May 29, 2012 at 7:32am 0 Comments

I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…

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Facebook Feature Supports Organ Donation

Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments

We never realize the value of organ donation, until we're on the receiving end.…



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NUMBNESS

Posted by josh54 on May 28, 2012 at 12:20pm 1 Comment

My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…

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feelin a bit frustrated but hopeful

Posted by Patrice on May 28, 2012 at 5:13am 0 Comments

I haven't written for awhile but i been reading everyone elses encouraging posts. I have ben through a lot in past couple months wth my regular doctors. My surgeon Dr. Robert Siospitanger here in Nashville at Vanderbilt hospital is only doctor who… Continue

Counting Down The Days...

Posted by Sam on May 27, 2012 at 3:30pm 2 Comments

I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.

Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…

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What up with my ear???

Posted by kristi on May 26, 2012 at 3:17pm 3 Comments

I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)

My bruit was my connection to my heart, so I always thought (when I never…

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