Hello Dear AVMers,

As discussed in a couple of recent group messages, we would like to try to organize a regional get-together. So, this is your invitation to suggest time, place and other particulars for this event. I thibnk we need to decide on a couple of things in particular:

 

1. Date and time (and duration?)

Is this a Friday night throw-down, or a weekend reunion? What date(s)? Should we have a rain date?

2. Location/Venue:

We should think about access to airports/trains, etc., as well as hotels. Also, a location that is more or less central to our membership.

3. Activities

Are there a bunch of golfers in the group? Cyclists? (I'm both). Feel free to make suggestions.

4. Administrative

Depending on where we decide to do this, we will want to have one or two people to sort of "chair" the event. If it's in NC, I would be willing to help make arrangements.

 

So, in the immortal words of someone, "let's get this party started!". Thanks, Georgia, for the suggestion.

 

-John Hoarty

Tags: AVM, Southeast, get-together, meet-up

Views: 5

Replies to This Discussion

John, I think a get together is a fabulous idea.  Organizational I am of absolutely no use to anyone anymore, so that leaves me out of that part.  If we are going to try to do this in the next couple of months, I would just suggest an indoor venue so that weather is not an issue.  As far as location....Raleigh is certainly central for us NCers but I don't know where others would be coming from.  Raleigh certainly has everything you mentioned...airport, trains, hotels, etc.  I hope we hear from others and get some more ideas.  I would love to see this happen.  Hope you are well, by the way!

RSS

Follow AVMSurvivors and Ben's Friends

To Support AVMSurvivors.org, Click an Ad. Or Two.

Advertise With Us

Photos

Loading…
  • Add Photos
  • View All

Blog Posts

the appioment went.......

Posted by Celina on May 31, 2012 at 8:59pm 1 Comment

it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.

Starting to understand everything...

Posted by Hannahpoppe on May 30, 2012 at 12:45am 1 Comment

Hi everyone!

I'm a new member here...

I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…

Continue

Of Seizures

Posted by Jaime G. on May 29, 2012 at 7:32am 0 Comments

I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…

Continue

Facebook Feature Supports Organ Donation

Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments

We never realize the value of organ donation, until we're on the receiving end.…



Continue

NUMBNESS

Posted by josh54 on May 28, 2012 at 12:20pm 1 Comment

My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…

Continue

feelin a bit frustrated but hopeful

Posted by Patrice on May 28, 2012 at 5:13am 0 Comments

I haven't written for awhile but i been reading everyone elses encouraging posts. I have ben through a lot in past couple months wth my regular doctors. My surgeon Dr. Robert Siospitanger here in Nashville at Vanderbilt hospital is only doctor who… Continue

Counting Down The Days...

Posted by Sam on May 27, 2012 at 3:30pm 2 Comments

I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.

Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…

Continue

What up with my ear???

Posted by kristi on May 26, 2012 at 3:17pm 3 Comments

I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)

My bruit was my connection to my heart, so I always thought (when I never…

Continue

© 2012   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service