Replies to This Discussion

Permalink Reply by Cindy Phillips on March 24, 2011 at 12:45am

I heard some statistics briefly yesterday about a very well-known medical condition (ovarian cancer). The 'rough' statistics I heard were 22,000... and I wondered (and therefore, had to look it up to find out the answer) if those statistics were for the US only or worldwide. Given that the 2007's figures show approximately 21,000 in the US (http://www.cdc.gov/cancer/ovarian/statistics/), I would take an educated guess and say it's only the US's figures. I don't honestly like to assume, so I looked further and found this:

Worldwide

More than 204,000 cases are diagnosed each year. It is estimated that 125,000 women with ovarian cancer die each year.

(http://www.ovarian-cancer-facts.com/ovarian-cancer-statistics.html)

 

150,000 ('troubled cases') for vascular abnormalities and 204,000 for ovarian cancer... my point is this: ovarian cancer we've all heard about, so why do we not hear of such vascular conditions as AVMs/AVFs/CMs/etc.? (The difference of 54,000 people/cases in the two 'topics' aren't THAT big of a difference in the 'whole grand scheme of things/figures'.) Should one compare 30 million to 204,000 (for Ovarian), vascular exceeds by A LOT.

Just saying... I can't find nor phantom a plausible, legit explanation nor 'excuse'.

Joe said:

Cindy,

 

If you take the worlds population of 6 billion and mutiply that by .005 which is one half of one percent you get 30 million people.  According to the doctor I had, this was the guess of population that probably had an AVM, but he also stated that only one half of one percent would have a problem with their AVM.  This number works out to be 150,000 people worldwide.  You end up with better odds of winning the lottery than having a problem with an AVM.  I would have rathered won the lottery than had an AVM but that did not happen.  When the problem is yours it is enormous, but when you work out the math 150,000 worldwide is just a small dot on a piece of paper.  Compare to heart attacks which has a death rate of 425,425 per year in America.

 

Joe

Permalink Reply by Michael Stafford on March 30, 2011 at 6:07pm

GA-3

Permalink Reply by beansy on May 30, 2011 at 10:32am

Can you be a member of this group if you live in southwest florida?

 

beans

Permalink Reply by Cindy Phillips on June 3, 2011 at 11:14pm

Absolutely! Welcome aboard. :)

Irene Carnahan said:

Can you be a member of this group if you live in southwest florida?

 

beans

Permalink Reply by beansy on June 3, 2011 at 11:44pm

Seems like I was the first to post here in a few months?  Thanks,

 

beans

Permalink Reply by Michael Stanfield on July 12, 2011 at 9:01pm

SC-1

Permalink Reply by Shelly M on July 20, 2011 at 6:32am

Thank you Cindy, for pointing me to this forum. I'm Shelly, and I'm from Northeast NC. I'm glad to know that I'm not the only one around with an AVM, but also sad as I wouldn't wish this on anyone. Anyway, hello, I'm pleased to meet y'all.

Permalink Reply by Cindy Phillips on July 20, 2011 at 12:31pm

You are very welcome, Shelly. So glad you joined us! :)

Shelly M said:

Thank you Cindy, for pointing me to this forum. I'm Shelly, and I'm from Northeast NC. I'm glad to know that I'm not the only one around with an AVM, but also sad as I wouldn't wish this on anyone. Anyway, hello, I'm pleased to meet y'all.

Permalink Reply by Tina on July 28, 2011 at 7:59am

This is Tina from SC-2. I had a very rare Spinal AVM removed and am recovering (almost 1 year) No pain, but, nerves needing to calm down which they have slowly been doing. What I have read so far is that most AVM's are found in Autopsies unless they produce symptons. It is my belief that they are more common then people think. They can only be seen with an MRI or Cat Scan and as technology developes, we will probably see more cases. I believe we need to support the research needed to perfect operating techniques and courses of treatments. The level of compassion and support amongst us survivors is outstanding. Personally, I am trying to find others who have had a Spinal AVM obliterated at C3 thru C6 and what symptons they have experienced post treatment. Only found one so far in England. One other thing and then I will get off my soapbox. When the Doctors here at MUSC diagnosed my AVM, they were too scared to operate and it was very difficult for them to refer me for a second opinion. I did my own research and found Dr. Spetzler at Barrow Neurology in Phoenix. Then they finally referred me already knowing he was very renowned at operating on AVM's. What is up with that? My life is in danger, send me to the person who can deal with it if you can't.

Permalink Reply by Cindy Phillips on August 1, 2011 at 4:23pm

Welcome, Tina. Glad you joined us.

• ‹ Previous
• 1
• 2
• Next ›
• Page