We are AVM survivors, here for your support.
Southeast AVM Survivors Discussions (6)
| Discussions | Replies | Latest Activity |
|---|---|---|
 member location.. where do you live?Nashville, Tn checking in.. Started by Greg Z |
30 |
Apr 22 Reply by Terri |
 Dr. Barrow (in Atlanta, GA)Just a quick question for all those who has Dr. Barrow as their AVM doctor: Did you have to do anything 'special' in order to get an appt.… Started by Cindy Phillips |
26 |
Apr 19 Reply by Cindy Phillips |
 Emory Doctor question....I was diagnosed this week and my PC doc made my appointment at Emory Neurosurgery with Dr. Cawley. Has anyone had experience with him? My P… Started by Ngawildflower |
3 |
Mar 30 Reply by Mike Leonhard |
Location, Location, Location48 members of the SE Group, let's get a tally of where everyone is located please. Several from GA and quiet a few in AL, FL, NC, TN, and V… Started by Cindy Phillips |
22 |
Aug 1, 2011 Reply by Cindy Phillips |
 Regional Meet-upHello Dear AVMers, As discussed in a couple of recent group messages, we would like to try to organize a regional get-together. So, this is… Started by John Hoarty |
1 |
Dec 27, 2010 Reply by Trish |
Help For UsDoes anyone know of any place or person that helps us during this? Not all of us are married and have the help of a spouse. Any ideas, tips… Started by Cindy Phillips |
7 |
Sep 17, 2010 Reply by Cindy Phillips |
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the appioment went.......
Posted by Celina on May 31, 2012 at 8:59pm 1 Comment 0 Likes
it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.
Starting to understand everything...
Posted by Hannahpoppe on May 30, 2012 at 12:45am 1 Comment 0 Likes
Hi everyone!
I'm a new member here...
I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…
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Of Seizures
Posted by Jaime G. on May 29, 2012 at 7:32am 0 Comments 0 Likes
I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…
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Facebook Feature Supports Organ Donation
Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments 0 Likes
We never realize the value of organ donation, until we're on the receiving end.…
NUMBNESS
Posted by josh54 on May 28, 2012 at 12:20pm 1 Comment 0 Likes
My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…
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feelin a bit frustrated but hopeful
Posted by Patrice on May 28, 2012 at 5:13am 0 Comments 0 Likes
Counting Down The Days...
Posted by Sam on May 27, 2012 at 3:30pm 2 Comments 0 Likes
I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.
Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…
What up with my ear???
Posted by kristi on May 26, 2012 at 3:17pm 3 Comments 0 Likes
I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)
My bruit was my connection to my heart, so I always thought (when I never…
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