We are AVM survivors, here for your support.

Southeast AVM Survivors

Information

This group is for AVM Survivor members who live in the Southeast ... for sharing, support and occassional get-togethers.

Location: Raleigh/Durham, NC
Members: 70
Latest Activity: Feb 2

Discussion Forum

member location.. where do you live? 27 Replies

Nashville, Tn checking in.. Continue

Started by Greg Z. Last reply by Kellie Feb 1.

Dr. Barrow (in Atlanta, GA) 25 Replies

Just a quick question for all those who has Dr. Barrow as their AVM doctor: Did you have to do anything 'special' in order to get an appt. with him? (I am extremely appreciative of my neurosurgeon in…Continue

Tags: follow, up, craniotomy, doctor, neurosurgeon

Started by Cindy Phillips. Last reply by Kene Iloenyosi Jan 23.

Location, Location, Location 22 Replies

48 members of the SE Group, let's get a tally of where everyone is located please. Several from GA and quiet a few in AL, FL, NC, TN, and VA. (I saw one person from SC on the AVM Survivor website but…Continue

Tags: location, group, SE

Started by Cindy Phillips. Last reply by Cindy Phillips Aug 1, 2011.

Regional Meet-up 1 Reply

Hello Dear AVMers,As discussed in a couple of recent group messages, we would like to try to organize a regional get-together. So, this is your invitation to suggest time, place and other particulars…Continue

Tags: get-together, meet-up, AVM, Southeast

Started by John Hoarty. Last reply by Trish Dec 27, 2010.

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Comment by Michael on February 2, 2012 at 6:22am: Well... Here I go!! It's finally here! In about 4 hrs, I will be on the table and the doctors will be ripping this monster from my back!!!
Thanks everyone for support!!!

Comment by Megan Jackson on April 24, 2011 at 5:11pm: We are from Knoxville, TN

Comment by Louisa on March 31, 2011 at 12:22pm: Whic I could attend..however, I live to far away...But I would like to hear the whole story of your luchion!

Comment by Melinda on March 30, 2011 at 9:18am: I've lived and been treated at Hopkins and was not impressed at all, but I'm an extremity AVM, rare, and so maybe that's why I had such trouble.

Comment by Mayda Gort on January 1, 2011 at 12:55pm: Thanks again John, Happy New year. God is with us all.

Comment by Troy Garcia on November 11, 2010 at 10:18pm: Ashley the last time I had been treated was in New Orleans my hometown at LSU..... and they hit it and it had gotten out of my brain...

Comment by Louisa on November 11, 2010 at 8:35am: Ashley...When I found out I had an AVM, I went online and checked out what was the best hospital for our issue. I just checked for you and Johns Hopkins Hospital and Mayo Clinic both came up...In 2006, I found Mass General and went there and they saved my life, but they now are 3rd in line. I believe we should get the best we can...Good luck! Let us know how your Son is doing!

Comment by Ashley Washington on November 11, 2010 at 8:17am: We have been going to UAB where we have seen a specialist in all three treatment options. They are not a "center of excellence" for AVM's so we are definitely moving on. Thanks so much for suggesting Dr.Barrow. I will be getting in touch with him. I have heard that the Mayo clinic is awesome for complex AVM's also. Please keep the advice coming. I will find a treatment for him!
We are going for genetic testing on Nov. 23 to be tested for something called HHT. Does anyone have that?

Comment by Brian Hursey on November 11, 2010 at 6:52am: Is Dr, Barrow just a nero surgin or does he also have regular neurology check ups?

Comment by Denice Wellman on November 10, 2010 at 6:55pm: Hi Ashley,
I was refered to Dr Dan Barrow at Emory in Atlanta (from a friend on this website) and i just saw him less than a month ago. He was awesome! I highly suggest you go and let him look at your sons films. It looks like you need the best and Dr Barrow is the best!