Southeast AVM Survivors

Information

Southeast AVM Survivors

This group is for AVM Survivor members who live in the Southeast ... for sharing, support and occassional get-togethers.
Location: Raleigh/Durham, NC

Location: regional-group
Members: 143
Latest Activity: on Monday

Discussion Forum

member location.. where do you live?

Started by Greg Z. Last reply by mymomhasafauxhawk Mar 27. 53 Replies

Nashville, Tn checking in.. Continue

Vanderbilt Nashville TN?

Started by Misti B.. Last reply by tennesseeme Nov 24, 2013. 3 Replies

I am in Clarksville and will be seen by Dr Mocco of Vanderbilt.... Anyone else been seen at Vanderbilt nuero? Smile....

FLORIDIANS

Started by beansy. Last reply by Gwen Nov 2, 2013. 7 Replies

A suggestion was made to me about people in Florida. A Florida group of its own. This is such a big state (coming fom 30 years in Delaware), and there are a number of us here. Everyone who answered…Continue

The reason for asking where you are in Fl

Started by beansy. Last reply by Moni Oct 21, 2013. 4 Replies

I am hoping if anyone is interested, maybe we could meet somewhere sometime, I am in Sarasota, and I think the closest person to me was in Clearwater. Does anyone have any thoughts or ideas? I know…Continue

Comment Wall

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You need to be a member of Southeast AVM Survivors to add comments!

Comment by Tina on November 2, 2013 at 8:19am

Hi Cori, yes they can regrow if all the feeders to the AVM were not sealed off. From what I read, it looked like they had gotten it all. When you talk about recovery slowed dramatically, I need to know what you mean. Did you stop walking? Has the pain increased? What has changed? Recovery is always one step forward, two steps back. I think you are an amazing girl to fight so hard for recovery and walking is everything. We would all like to wake up and not have anymore numbness or tingling, but, as long as we can regain motor function, that is what is important.

Comment by Cori Cox on November 1, 2013 at 8:11pm
21 year old girl from Madison Ms. Stoke caused by Spinal AVM less then two months ago surgery to remove. Post op appointment coming up and I'm terrified they hadn't gotten it all. They had some confusion on if they had removed it all or not and I am concerned now that they haven't because my recovery slowed dramatically. Can they re-grow?

Moderator
Comment by dancermom on October 27, 2013 at 10:37am

The Florida group is up and running: http://www.avmsurvivors.org/group/floridians-who-have-had-avm

Please join, Floridians!

Comment by leela_pip on October 22, 2013 at 6:54am

Noob to the site, but not the disease. I am near Greensboro, NC and depending on traffic, between an hour and a half to two hours near Raleigh/Durham. Also quite close to the VA border for any of you Virginians. I would love to meet people from all over. My surgeon is in Arkansas, so sometimes I find myself out that way ;)

Comment by blewis876 on October 14, 2013 at 4:00pm

jacksonville fla here


Moderator
Comment by beansy on October 14, 2013 at 9:44am
Someone asked if anyone is in Broward Co. I am not sure where that is, probably on the east coast. I am in Sarasota County.

beans
Comment by Gwen on September 22, 2013 at 4:15pm

Hi everyone from Clearwater, Florida!

Comment by Georgia Thompson on August 7, 2013 at 7:54pm

Hi everyone! Sorry about the delay in getting an update of our event on Saturday...I have been in the the throws of potty training. joy.

Anyway, thank you all that attended. I was so glad to meet all of you. We met at a fushion restaurant from 1-4. It was great to hear everyones stories and triumphs. If you attended you know that I had a semi-profeessional photographer come to snap pics. She has yet to send me her pictures but has assurend me that she will be getting them to me soon.

As soon as I get the photos back I will post them all! Meanwhile, I hope that we can have our 2nd annual meeting/get together next summer. Please feel free to step up and lets host in another area of the southeast so that others closer may attend. If you would like to take on this mission feel free to send me a message if you would like some tips.

Here is the link for ordering the shirt. I had a few people ask about it again

http://www.uberprints.com/designs/shared/357910/1rp1uxygsagcxraoo6q...

Standby for photos


Moderator
Comment by dancermom on August 7, 2013 at 10:41am

How was your gathering, Georgia? Any pictures?

Comment by froggy17 on August 7, 2013 at 10:25am

hello blewis! I am also from sth. Fla. (broward)

 
 
 

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Blog Posts

Walking Again

Posted by John P. on March 18, 2014 at 8:00am 4 Comments

My craniotomy to remove my AVM was early in the first month of the year, but at first I could not walk at all and

many who had the same operation I am sure had the same

problem. After two months in the hospital I was able to

use a…

Continue

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