Southeast AVM Survivors

Information

Southeast AVM Survivors

This group is for AVM Survivor members who live in the Southeast ... for sharing, support and occassional get-togethers.
Location: Raleigh/Durham, NC

Location: regional-group
Members: 153
Latest Activity: 12 hours ago

Discussion Forum

Picayune, Mississippi

Started by lynnsey. Last reply by Madere (dancermom) 12 hours ago. 1 Reply

I am a 9 1/2 year AVM survivor! Diagnosed and obliterated in 2006! I was Just wanted to know of anyone in this area and also are there any runs or walks close to Mississippi?Continue

member location.. where do you live?

Started by Greg Z. Last reply by lynnsey yesterday. 65 Replies

Nashville, Tn checking in.. Continue

Vanderbilt Nashville TN?

Started by Misti B.. Last reply by tennesseeme Jul 6, 2014. 5 Replies

I am in Clarksville and will be seen by Dr Mocco of Vanderbilt.... Anyone else been seen at Vanderbilt nuero? Smile....

FLORIDIANS

Started by beansy. Last reply by Gwen Nov 2, 2013. 7 Replies

A suggestion was made to me about people in Florida. A Florida group of its own. This is such a big state (coming fom 30 years in Delaware), and there are a number of us here. Everyone who answered…Continue

Comment Wall

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You need to be a member of Southeast AVM Survivors to add comments!

Comment by Tori T. on September 6, 2014 at 9:49pm

Black Mountain, NC here.

Comment by dreyx2000 on August 25, 2014 at 10:04am

just wondering, are there any plans for a Georgia meetup any time soon?

Comment by dreyx2000 on August 25, 2014 at 10:00am

Hello from Columbus, GA!

Comment by Monetus on July 6, 2014 at 5:55pm

If anyone could recommend some vascular neurologists in the South east, Knoxville to Nashville area in particular I would be much obliged.

Comment by Tina on November 2, 2013 at 8:19am

Hi Cori, yes they can regrow if all the feeders to the AVM were not sealed off. From what I read, it looked like they had gotten it all. When you talk about recovery slowed dramatically, I need to know what you mean. Did you stop walking? Has the pain increased? What has changed? Recovery is always one step forward, two steps back. I think you are an amazing girl to fight so hard for recovery and walking is everything. We would all like to wake up and not have anymore numbness or tingling, but, as long as we can regain motor function, that is what is important.

Comment by Cori Cox on November 1, 2013 at 8:11pm
21 year old girl from Madison Ms. Stoke caused by Spinal AVM less then two months ago surgery to remove. Post op appointment coming up and I'm terrified they hadn't gotten it all. They had some confusion on if they had removed it all or not and I am concerned now that they haven't because my recovery slowed dramatically. Can they re-grow?

Moderator
Comment by Madere (dancermom) on October 27, 2013 at 10:37am

The Florida group is up and running: http://www.avmsurvivors.org/group/floridians-who-have-had-avm

Please join, Floridians!

Comment by leela_pip on October 22, 2013 at 6:54am

Noob to the site, but not the disease. I am near Greensboro, NC and depending on traffic, between an hour and a half to two hours near Raleigh/Durham. Also quite close to the VA border for any of you Virginians. I would love to meet people from all over. My surgeon is in Arkansas, so sometimes I find myself out that way ;)

Comment by blewis876 on October 14, 2013 at 4:00pm

jacksonville fla here


Greeter
Comment by beansy on October 14, 2013 at 9:44am
Someone asked if anyone is in Broward Co. I am not sure where that is, probably on the east coast. I am in Sarasota County.

beans
 

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Follow-up

Posted by Lori on May 14, 2015 at 1:08am 15 Comments

Yesterday (05/13/15) I went back to Omaha to have an MRI. The doctor said while it has shrunk some it is still there & he also sees some shadows. I will be going back in August or September for another angiogram & possibly more radiation.…

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