We are AVM survivors, here for your support.
This group is for AVM Survivor members who live in the Southeast ... for sharing, support and occassional get-togethers. Location: Raleigh/Durham, NC
Latest Activity: Jan 8
Started by Greg Z. Last reply by Emmy Oct 20, 2015.
Nashville, Tn checking in.. Continue
Started by Misti B.. Last reply by Colleen Jul 24, 2015.
I am in Clarksville and will be seen by Dr Mocco of Vanderbilt.... Anyone else been seen at Vanderbilt nuero? Smile....
Started by lynnsey. Last reply by Madere (dancermom) May 22, 2015.
I am a 9 1/2 year AVM survivor! Diagnosed and obliterated in 2006! I was Just wanted to know of anyone in this area and also are there any runs or walks close to Mississippi?Continue
Started by beansy. Last reply by Gwen Nov 2, 2013.
A suggestion was made to me about people in Florida. A Florida group of its own. This is such a big state (coming fom 30 years in Delaware), and there are a number of us here. Everyone who answered…Continue
Atlanta Area Survivor (Craniotomy in Dec 2014). any other locals?
Black Mountain, NC here.
just wondering, are there any plans for a Georgia meetup any time soon?
Hello from Columbus, GA!
If anyone could recommend some vascular neurologists in the South east, Knoxville to Nashville area in particular I would be much obliged.
Hi Cori, yes they can regrow if all the feeders to the AVM were not sealed off. From what I read, it looked like they had gotten it all. When you talk about recovery slowed dramatically, I need to know what you mean. Did you stop walking? Has the pain increased? What has changed? Recovery is always one step forward, two steps back. I think you are an amazing girl to fight so hard for recovery and walking is everything. We would all like to wake up and not have anymore numbness or tingling, but, as long as we can regain motor function, that is what is important.
The Florida group is up and running: http://www.avmsurvivors.org/group/floridians-who-have-had-avm
Please join, Floridians!
Noob to the site, but not the disease. I am near Greensboro, NC and depending on traffic, between an hour and a half to two hours near Raleigh/Durham. Also quite close to the VA border for any of you Virginians. I would love to meet people from all over. My surgeon is in Arkansas, so sometimes I find myself out that way ;)
jacksonville fla here
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