A forum to share your sucess stories on any number of AVM issues, such as surgery, medications or alternative therapies, etc., to give the rest of us ideas and hope for the future.

Location: entertainment-oriented groups
Members: 81
Latest Activity: Apr 6

Discussion Forum

So very grateful to be AVM-FREE - PRAISE GOD!!!

Started by Michele_A. Last reply by Paulette Jul 28, 2013. 6 Replies

Hello my dear friends and AVM family!!! Friday, May 4th, 2012 was an AMAZING day for me and will start with Thanking the Lord for HIS divine healing!!! “For through me your days will be many, and…Continue

I am content (for now!)

Started by flower. Last reply by dancermom Jun 4, 2013. 5 Replies

Saw my neuro. He told me the loss of vision I sustained through my brain op is significant and I won't be able to drive. He told me that having children after what I have been through would be very…Continue

I believe in miracles*

Started by Emily. Last reply by Julia Rose Apr 28, 2012. 8 Replies

Hi, I'm Emily. I've never really explained my AVM story to anyone cause no one really understands what it is besides my family. Thats why I was so happy when I found…Continue

4/11/12 Pretty much stress free <3

Started by kristinryann<3. Last reply by Ninibeth Ramirez Apr 11, 2012. 2 Replies

Today my Neuro surgon had me do another MRI and because it showed no issues, he said I will see you in two years. <3 I am medically okay with no more avms! Now I just get wingged of my seizure…Continue

Comment Wall


You need to be a member of SUCCESS STORIES to add comments!

Comment by Birdie on February 5, 2014 at 11:23pm
Exactly 3 yrs after this miraculous AVM nightmare began, I can now proudly say that I am AVM free!!! Please check my page for the full story :):):):)
Comment by Gwen on August 7, 2013 at 8:34pm

We are all so very blessed, and I feel so fortunate. Take a few minutes to help another member... you never know how much your support can change another's life.

Comment by Tony L Sydney on June 2, 2013 at 9:21pm

I am feeling so free today, because I have finally walked away from our local subgroup. No one needs help - they can all look after themselves. I gathered this from the fact that 90% never ever make a comment, or support one another. So they are all doing well. Awesome and inspiring!

Comment by Louisa on February 16, 2012 at 10:21am

Doug...Isn't it a day to celebrate being AVM Free? Congrats!

Comment by Doug Bober on February 16, 2012 at 10:00am

Hi, folks. Today is my 1st Craniversary. I feel very blessed and well!

Comment by Ninibeth Ramirez on February 6, 2012 at 8:30am
Ervim asking for water it is a big step... Good news :-)... thanks for letting us know..
Comment by evrim (wife) on February 6, 2012 at 3:38am

after 40 days from crainiotomy of my husband, he is awake enough to drink a few sips of water. The best thing is he asked for it. :) our first success story. I wish to share more .Have a nice and lovely day.

Comment by Louisa on January 20, 2012 at 7:28am

Wow, Barbara..I didn't know you were flying when you had your brain bleed...

Comment by Barbara H. on January 19, 2012 at 7:57pm

I am feeling a little sentimental tonight. New members always ask me why a profile pic of an airplane. It is not any old is an Eastern Airlines plane. I was working for them when my AVM burst. I was given oxygen all the way thru landing in Miami. I made it to the hospital within the Golden Hour. If I had not been on that Eastern airplane...I would have died.
EAL shut down 21 years ago today. This is my tribute to that grand old airline...

Comment by Louisa on December 27, 2011 at 8:45am

Thanks for sending Kristin....yes, yes, yes, go away AVM's!


Help Us Help Others

Help Ben's Friends

Like, Follow & Forward Us!

Follow Me on Pinterest

To Support, Click an Ad. Or Two.

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit for information on where to call.


  • Add Photos
  • View All

Blog Posts

Walking Again

Posted by John P. on March 18, 2014 at 8:00am 4 Comments

My craniotomy to remove my AVM was early in the first month of the year, but at first I could not walk at all and

many who had the same operation I am sure had the same

problem. After two months in the hospital I was able to

use a…


© 2014   Created by

Badges  |  Report an Issue  |  Terms of Service