A forum to share your sucess stories on any number of AVM issues, such as surgery, medications or alternative therapies, etc., to give the rest of us ideas and hope for the future.
Location: entertainment-oriented groups
Members: 72
Latest Activity: May 11
Started by flower. Last reply by flower May 11. 2 Replies 2 Likes
Saw my neuro. He told me the loss of vision I sustained through my brain op is significant and I won't be able to drive. He told me that having children after what I have been through would be very…Continue
Started by Michele_A. Last reply by Suzy E May 6, 2012. 3 Replies 0 Likes
Hello my dear friends and AVM family!!! Friday, May 4th, 2012 was an AMAZING day for me and will start with Thanking the Lord for HIS divine healing!!! “For through me your days will be many, and…Continue
Started by Emily. Last reply by Julia Rose Apr 28, 2012. 8 Replies 2 Likes
Hi, I'm Emily. I've never really explained my AVM story to anyone cause no one really understands what it is besides my family. Thats why I was so happy when I found…Continue
Started by kristinryann<3. Last reply by Ninibeth Ramirez Apr 11, 2012. 2 Replies 2 Likes
Today my Neuro surgon had me do another MRI and because it showed no issues, he said I will see you in two years. <3 I am medically okay with no more avms! Now I just get wingged of my seizure…Continue
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Doug...Isn't it a day to celebrate being AVM Free? Congrats!
Comment by Doug Bober on February 16, 2012 at 10:00am Hi, folks. Today is my 1st Craniversary. I feel very blessed and well!

Comment by evrim (wife) on February 6, 2012 at 3:38am after 40 days from crainiotomy of my husband, he is awake enough to drink a few sips of water. The best thing is he asked for it. :) our first success story. I wish to share more .Have a nice and lovely day.
Wow, Barbara..I didn't know you were flying when you had your brain bleed...

I am feeling a little sentimental tonight. New members always ask me why a profile pic of an airplane. It is not any old airplane...it is an Eastern Airlines plane. I was working for them when my AVM burst. I was given oxygen all the way thru landing in Miami. I made it to the hospital within the Golden Hour. If I had not been on that Eastern airplane...I would have died.
EAL shut down 21 years ago today. This is my tribute to that grand old airline...
http://www.youtube.com/watch?v=NQRgns9JGuY&feature=share
Thanks for sending Kristin....yes, yes, yes, go away AVM's!
Comment by Kristin Jones on December 26, 2011 at 6:31pm 
I sure do love success stories...and I am one of the most blessed man on earth. It never was easy, and the battles will never go away, but I have not given up...I have taken so many miles, and I keep my attitude good. I feel that there are many others in much worse spots. So I keep a smile and keep looking for the Light and closing aNy Darkness!!! Blessed Be
Jim
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Posted by Ben on May 24, 2013 at 10:00am 0 Comments 1 Like
Dear AVMSurvivors Family and Friends,
Celebrating Awareness Months for specific rare diseases are a great way of procuring attention to our cause. By discussing our condition and helping to educate others, our active participation creates…
ContinuePosted by mamaginof3 on May 9, 2013 at 3:13pm 14 Comments 0 Likes
Posted by Fish on May 10, 2013 at 3:25pm 1 Comment 0 Likes
My husband has HHT . Daughter has been tested but no results yet. Praying God spares my children. I have two granddaughters. I have another daughter who has not been tested. We found the HHT Center in Chapel Hill after years of nosebleeds. He has…
ContinuePosted by Michael on May 2, 2013 at 3:14am 5 Comments 1 Like
Hello there,
how it's for you? In my case, I have the paralysis since last october 2012. Before that I was very active with cross country running, dogsport, and so on. The good thing: In my dreams I had no Paralysis. I run in my dreams,…
ContinuePosted by tdz103m on May 2, 2013 at 5:34am 5 Comments 5 Likes
I don't know exactly when it happened because I slept through May 1, 2012. All day.
May 2, I was able to move around a bit. May 3 a bit more but by May 4th I was feeling in the deepness of it and told my wife to dial 911 and it was into the…
Posted by Armando A. on April 21, 2013 at 8:00am 0 Comments 2 Likes
After being featured on a number of publications,…
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