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SUCCESS STORIES

A forum to share your sucess stories on any number of AVM issues, such as surgery, medications or alternative therapies, etc., to give the rest of us ideas and hope for the future.

Members: 60
Latest Activity: on Tuesday

Discussion Forum

So very grateful to be AVM-FREE - PRAISE GOD!!!

Started by Michele_A. Last reply by Suzy E May 6. 3 Replies

Hello my dear friends and AVM family!!! Friday, May 4th, 2012 was an AMAZING day for me and will start with Thanking the Lord for HIS divine healing!!! “For through me your days will be many, and…Continue

I believe in miracles*

Started by Emily. Last reply by Julia Rose Apr 28. 8 Replies

Hi, I'm Emily. I've never really explained my AVM story to anyone cause no one really understands what it is besides my family. Thats why I was so happy when I found…Continue

4/11/12 Pretty much stress free <3

Started by kristinryann<3. Last reply by Ninibeth Ramirez Apr 11. 2 Replies

Today my Neuro surgon had me do another MRI and because it showed no issues, he said I will see you in two years. <3 I am medically okay with no more avms! Now I just get wingged of my seizure…Continue

Light-headed and "dizzy" issues...any help?

Started by Rachel R.. Last reply by Barbara H. Apr 2. 8 Replies

Hello, all. I have posted this on another discussion page here, but wanted to run it by you guys, too, and see if anyone has any thoughts. I had my AVM removed via a craniotomy July 15, 2011. Mine…Continue

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Moderator
Comment by Louisa on February 16, 2012 at 10:21am

Doug...Isn't it a day to celebrate being AVM Free? Congrats!

Comment by Doug Bober on February 16, 2012 at 10:00am

Hi, folks. Today is my 1st Craniversary. I feel very blessed and well!


Moderator
Comment by Ninibeth Ramirez on February 6, 2012 at 8:30am
Ervim asking for water it is a big step... Good news :-)... thanks for letting us know..
Comment by evrim (wife) on February 6, 2012 at 3:38am

after 40 days from crainiotomy of my husband, he is awake enough to drink a few sips of water. The best thing is he asked for it. :) our first success story. I wish to share more .Have a nice and lovely day.


Moderator
Comment by Louisa on January 20, 2012 at 7:28am

Wow, Barbara..I didn't know you were flying when you had your brain bleed...


Moderator
Comment by Barbara H. on January 19, 2012 at 7:57pm

I am feeling a little sentimental tonight. New members always ask me why a profile pic of an airplane. It is not any old airplane...it is an Eastern Airlines plane. I was working for them when my AVM burst. I was given oxygen all the way thru landing in Miami. I made it to the hospital within the Golden Hour. If I had not been on that Eastern airplane...I would have died.
EAL shut down 21 years ago today. This is my tribute to that grand old airline...
http://www.youtube.com/watch?v=NQRgns9JGuY&feature=share


Moderator
Comment by Louisa on December 27, 2011 at 8:45am

Thanks for sending Kristin....yes, yes, yes, go away AVM's!


Moderator
Comment by Louisa on December 27, 2011 at 8:44am

Comment by Kristin Jones on December 26, 2011 at 6:31pm
I had major AVM rupture 25 years ago which left me partially paralyzed on my left side. I went on to become an interior Designer for a high end firm in Iowa City, Ia after graduating from the university of Iowa in 1997. Now I stay home with my two young sons and stay heavily involved in volunteer work. I'm going to hopefully be on a snowboard later this week and my next goal is to be on ice skates again by the end of the winter. It has not been easy walking in my shoes all of these years despite the fact that I'm very blessed. My saving grace is tht I make my number one priority to challenge myself and live my life as if nothing is holding me back even though what I deal with is more painful than most people will hopefully never deal with in a lifetime......

Moderator
Comment by Swami Jim on November 16, 2011 at 4:28pm

I sure do love success stories...and I am one of the most blessed man on earth. It never was easy, and the battles will never go away, but I have not given up...I have taken so many miles, and I keep my attitude good. I feel that there are many others in much worse spots. So I keep a smile and keep looking for the Light and closing aNy Darkness!!! Blessed Be

Jim

 
 
 

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the appioment went.......

Posted by Celina on May 31, 2012 at 8:59pm 1 Comment

it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.

Starting to understand everything...

Posted by Hannahpoppe on May 30, 2012 at 12:45am 1 Comment

Hi everyone!

I'm a new member here...

I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…

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Of Seizures

Posted by Jaime G. on May 29, 2012 at 7:32am 0 Comments

I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…

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Facebook Feature Supports Organ Donation

Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments

We never realize the value of organ donation, until we're on the receiving end.…



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NUMBNESS

Posted by josh54 on May 28, 2012 at 12:20pm 1 Comment

My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…

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feelin a bit frustrated but hopeful

Posted by Patrice on May 28, 2012 at 5:13am 0 Comments

I haven't written for awhile but i been reading everyone elses encouraging posts. I have ben through a lot in past couple months wth my regular doctors. My surgeon Dr. Robert Siospitanger here in Nashville at Vanderbilt hospital is only doctor who… Continue

Counting Down The Days...

Posted by Sam on May 27, 2012 at 3:30pm 2 Comments

I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.

Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…

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What up with my ear???

Posted by kristi on May 26, 2012 at 3:17pm 3 Comments

I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)

My bruit was my connection to my heart, so I always thought (when I never…

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