
A forum to share your sucess stories on any number of AVM issues, such as surgery, medications or alternative therapies, etc., to give the rest of us ideas and hope for the future.
Members: 60
Latest Activity: on Tuesday
Started by Michele_A. Last reply by Suzy E May 6. 3 Replies 0 Likes
Hello my dear friends and AVM family!!! Friday, May 4th, 2012 was an AMAZING day for me and will start with Thanking the Lord for HIS divine healing!!! “For through me your days will be many, and…Continue
Started by Emily. Last reply by Julia Rose Apr 28. 8 Replies 0 Likes
Hi, I'm Emily. I've never really explained my AVM story to anyone cause no one really understands what it is besides my family. Thats why I was so happy when I found…Continue

Started by kristinryann<3. Last reply by Ninibeth Ramirez Apr 11. 2 Replies 2 Likes
Today my Neuro surgon had me do another MRI and because it showed no issues, he said I will see you in two years. <3 I am medically okay with no more avms! Now I just get wingged of my seizure…Continue
Started by Rachel R.. Last reply by Barbara H. Apr 2. 8 Replies 0 Likes
Hello, all. I have posted this on another discussion page here, but wanted to run it by you guys, too, and see if anyone has any thoughts. I had my AVM removed via a craniotomy July 15, 2011. Mine…Continue
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Doug...Isn't it a day to celebrate being AVM Free? Congrats!
Comment by Doug Bober on February 16, 2012 at 10:00am Hi, folks. Today is my 1st Craniversary. I feel very blessed and well!

Comment by evrim (wife) on February 6, 2012 at 3:38am after 40 days from crainiotomy of my husband, he is awake enough to drink a few sips of water. The best thing is he asked for it. :) our first success story. I wish to share more .Have a nice and lovely day.
Wow, Barbara..I didn't know you were flying when you had your brain bleed...

I am feeling a little sentimental tonight. New members always ask me why a profile pic of an airplane. It is not any old airplane...it is an Eastern Airlines plane. I was working for them when my AVM burst. I was given oxygen all the way thru landing in Miami. I made it to the hospital within the Golden Hour. If I had not been on that Eastern airplane...I would have died.
EAL shut down 21 years ago today. This is my tribute to that grand old airline...
http://www.youtube.com/watch?v=NQRgns9JGuY&feature=share
Thanks for sending Kristin....yes, yes, yes, go away AVM's!
Comment by Kristin Jones on December 26, 2011 at 6:31pm 
I sure do love success stories...and I am one of the most blessed man on earth. It never was easy, and the battles will never go away, but I have not given up...I have taken so many miles, and I keep my attitude good. I feel that there are many others in much worse spots. So I keep a smile and keep looking for the Light and closing aNy Darkness!!! Blessed Be
Jim
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Posted by Celina on May 31, 2012 at 8:59pm 1 Comment 0 Likes
it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.
Posted by Hannahpoppe on May 30, 2012 at 12:45am 1 Comment 0 Likes
Hi everyone!
I'm a new member here...
I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…
ContinuePosted by Jaime G. on May 29, 2012 at 7:32am 0 Comments 0 Likes
I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…
ContinuePosted by Armando A. on May 28, 2012 at 8:02pm 0 Comments 0 Likes
We never realize the value of organ donation, until we're on the receiving end.…
Posted by josh54 on May 28, 2012 at 12:20pm 1 Comment 0 Likes
My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…
ContinuePosted by Patrice on May 28, 2012 at 5:13am 0 Comments 0 Likes
Posted by Sam on May 27, 2012 at 3:30pm 2 Comments 0 Likes
I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.
Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…
Posted by kristi on May 26, 2012 at 3:17pm 3 Comments 0 Likes
I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)
My bruit was my connection to my heart, so I always thought (when I never…
October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
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