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SUCCESS STORIES

A forum to share your sucess stories on any number of AVM issues, such as surgery, medications or alternative therapies, etc., to give the rest of us ideas and hope for the future.

Location: entertainment-oriented groups
Members: 72
Latest Activity: May 11

Discussion Forum

I am content (for now!)

Started by flower. Last reply by flower May 11. 2 Replies

Saw my neuro. He told me the loss of vision I sustained through my brain op is significant and I won't be able to drive. He told me that having children after what I have been through would be very…Continue

So very grateful to be AVM-FREE - PRAISE GOD!!!

Started by Michele_A. Last reply by Suzy E May 6, 2012. 3 Replies

Hello my dear friends and AVM family!!! Friday, May 4th, 2012 was an AMAZING day for me and will start with Thanking the Lord for HIS divine healing!!! “For through me your days will be many, and…Continue

I believe in miracles*

Started by Emily. Last reply by Julia Rose Apr 28, 2012. 8 Replies

Hi, I'm Emily. I've never really explained my AVM story to anyone cause no one really understands what it is besides my family. Thats why I was so happy when I found…Continue

4/11/12 Pretty much stress free <3

Started by kristinryann<3. Last reply by Ninibeth Ramirez Apr 11, 2012. 2 Replies

Today my Neuro surgon had me do another MRI and because it showed no issues, he said I will see you in two years. <3 I am medically okay with no more avms! Now I just get wingged of my seizure…Continue

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Moderator
Comment by Louisa on February 16, 2012 at 10:21am

Doug...Isn't it a day to celebrate being AVM Free? Congrats!

Comment by Doug Bober on February 16, 2012 at 10:00am

Hi, folks. Today is my 1st Craniversary. I feel very blessed and well!


Moderator
Comment by Ninibeth Ramirez on February 6, 2012 at 8:30am
Ervim asking for water it is a big step... Good news :-)... thanks for letting us know..
Comment by evrim (wife) on February 6, 2012 at 3:38am

after 40 days from crainiotomy of my husband, he is awake enough to drink a few sips of water. The best thing is he asked for it. :) our first success story. I wish to share more .Have a nice and lovely day.


Moderator
Comment by Louisa on January 20, 2012 at 7:28am

Wow, Barbara..I didn't know you were flying when you had your brain bleed...


Moderator
Comment by Barbara H. on January 19, 2012 at 7:57pm

I am feeling a little sentimental tonight. New members always ask me why a profile pic of an airplane. It is not any old airplane...it is an Eastern Airlines plane. I was working for them when my AVM burst. I was given oxygen all the way thru landing in Miami. I made it to the hospital within the Golden Hour. If I had not been on that Eastern airplane...I would have died.
EAL shut down 21 years ago today. This is my tribute to that grand old airline...
http://www.youtube.com/watch?v=NQRgns9JGuY&feature=share


Moderator
Comment by Louisa on December 27, 2011 at 8:45am

Thanks for sending Kristin....yes, yes, yes, go away AVM's!


Moderator
Comment by Louisa on December 27, 2011 at 8:44am

Comment by Kristin Jones on December 26, 2011 at 6:31pm
I had major AVM rupture 25 years ago which left me partially paralyzed on my left side. I went on to become an interior Designer for a high end firm in Iowa City, Ia after graduating from the university of Iowa in 1997. Now I stay home with my two young sons and stay heavily involved in volunteer work. I'm going to hopefully be on a snowboard later this week and my next goal is to be on ice skates again by the end of the winter. It has not been easy walking in my shoes all of these years despite the fact that I'm very blessed. My saving grace is tht I make my number one priority to challenge myself and live my life as if nothing is holding me back even though what I deal with is more painful than most people will hopefully never deal with in a lifetime......

Moderator
Comment by Swami Jim on November 16, 2011 at 4:28pm

I sure do love success stories...and I am one of the most blessed man on earth. It never was easy, and the battles will never go away, but I have not given up...I have taken so many miles, and I keep my attitude good. I feel that there are many others in much worse spots. So I keep a smile and keep looking for the Light and closing aNy Darkness!!! Blessed Be

Jim

 
 
 

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Blog Posts

May 2013 Community Newsletter

Posted by Ben on May 24, 2013 at 10:00am 0 Comments

Dear AVMSurvivors Family and Friends,

Celebrating Awareness Months for specific rare diseases are a great way of procuring attention to our cause. By discussing our condition and helping to educate others, our active participation creates…

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confusion as symptoms mount... time for new dr?

Posted by mamaginof3 on May 9, 2013 at 3:13pm 14 Comments

Since last may, the symptoms that sent me to the neurologist in the first place are getting worse. July 11th, the MRI with Contrast found my avm, left frontal lobe. The neurologist I see right now is not concerned about the avm, and only wants to… Continue

HHT Diagnosis or Suspected

Posted by Fish on May 10, 2013 at 3:25pm 1 Comment

My husband has HHT . Daughter has been tested but no results yet. Praying God spares my children. I have two granddaughters. I have another daughter who has not been tested. We found the HHT Center in Chapel Hill after years of nosebleeds. He has…

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Dreams... changing

Posted by Michael on May 2, 2013 at 3:14am 5 Comments

Hello there,

how it's for you? In my case, I have the paralysis since last october 2012. Before that I was very active with cross country running, dogsport, and so on. The good thing: In my dreams I had no Paralysis. I run in my dreams,…

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One year since my bleed, more or less

Posted by tdz103m on May 2, 2013 at 5:34am 5 Comments

I don't know exactly when it happened because I slept through May 1, 2012. All day.

May 2, I was able to move around a bit. May 3 a bit more but by May 4th I was feeling in the deepness of it and told my wife to dial 911 and it was into the…

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Ben's Friends Co-Founder Scott Orn Featured on Thoughtbot Podcast

Posted by Armando A. on April 21, 2013 at 8:00am 0 Comments

After being featured on a number of publications,…

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