I am an AVM Survivor. I am 58 years old, and had a cerebral brain bleed in 2008. (please see "my page" for additional details) It is currently un-treated. I started this group for understanding/discussions of the options offered, and your choice for not having any treatment.
It seems we have only three options; (Note: Following your neurosurgeon's advice to monitor the AVM via MRI on a recommended basis is a given.) # 1 embolization; # 2 radiation treatment, (ie) gamma knife, or other stereotactic radiosurgery procedures; # 3 crainiotomy and or invasive surgical procedures.
All three have their pro's and con's and this is the place to discuss them all.
So,..I welcome each and everyone to post comments, advice, suggestions, discussions, and ultimately the reason why you chose the path you did.
William, each of our cases are as unique as each and every one of us. Your choice of leaving it un-treated has some deep personal reasons. I will not try to convince you in doing what you don't want. For me, I had no choice but to undergo the…Continue
my daughter who is 12 years old is currently in the icu and had an operation because AVM. She is still in critical condition though there's a huge improvement since yesterday less icp spikes ...normal vital signs. I just want to know everything i…Continue
Hi,I would like to share my daughter's story. I am interested in your thoughts about who/how/when WE make the decisions we do regarding not treating ruptured AVMs.Our daughter is 2 years old. Just before her 2nd birthday, she had a brain hemorrhage…Continue
Hi All,My daughter got two rupture 1st one 21st Feb 2013 she suruvived v well and 2nd one after angiogram 21st February 2013 this time her left side little bit weak which is gradually improving and hopefully within 10 days she will get fully…Continue