Comment

Comment by Andrea Fisher on April 24, 2013 at 12:57pm

Anita you are def not alone! I still take my meds and deal with all that comes with everything. My biggest fear is going into a grand mal and 1. being home alone or 2. having one in front of my 9 yr old. So the medicine I will stay on to help prevent those 2 situations.

Comment by Anita Hopson on April 24, 2013 at 10:46am

Oh I stopped taking my seizure meds last year. I only take them if I know I'm at risk. Like if I'm out all day in the sun walking playing with my son blah blah blah. I felt negligent but oh we'll I can't be in bed everyday.

Comment by Anita Hopson on April 24, 2013 at 10:39am

I thought I was the only one who felt that. I feel like the avm is pressed up against my skull sometimes. And the pain comes at the weirdest times like in the middle if a sentence!!!! And then I forget what I was talking about. I literally have to press down on the spot to relieve the pain! Wow thought I was in the boat myself.

Comment by Andrea Fisher on March 15, 2013 at 6:45pm

thank you Dancermom I think I need to def call on Monday and see what the heck is going on! Im stuck in bed 5 out of 7 days a week and so tired. But the tiredness is probably the seizure meds also. Thanks for your help :)

Moderator Comment by dancermom on March 15, 2013 at 2:46pm

Andrea, here is an article about necrosis 10 years after gamma knife: http://www.ncbi.nlm.nih.gov/pubmed/20450102

Phone your doctor and make an appointment about your new symptoms.

Comment by Andrea Fisher on March 15, 2013 at 1:38pm

Hi everyone,
I have an odd question. I'm 2 1/2 years post my 2nd gamma knife. And lately my headaches have been worse than normal (even with the cold weather herein NY),even with taking my medicine to help with them. Plus Im getting more dizzy and hace also blacked out once as well, and more nauenous than ever before. I was wondering if this is a sign that I could now be getting brain swelling?? Is that something that could be happening this late into the gamma?? I don't see my Dr for another MRI until May but I just might be needing to call and get in there about all these new symptoms that are effecting my daily life. Thanks for any advice!

Comment by Bakingstud on March 15, 2013 at 12:13pm

Has anyone else had a bleed 20+ years after the protein beam radio surgery? There does not seem to be any data.....My bleed occurred in Dec 2012 - I was treated at the Berkeley Lab in 1988. Fortunately, I am healing nicely.

Comment by MorgColl on February 27, 2013 at 10:55am

Hi everyone! I am new to this site. I was diagnosed last year in July with an AVM along the thalamus of my brain during my summer home from college. radiosurgery was just done a couple months ago--hoping in another few an MRI will be done that will show good results!! praying for all of you

Comment by cllevin63 on February 18, 2013 at 5:47pm

Comment by Lisa (Mollie's mum) on February 4, 2013 at 3:06am

Hi Maria I am so sorry to read that your AVM has come back, I didn't realise that this could happen????

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