People in their early 20's


People in their early 20's

This is for the people in their early 20's to connect and share their stories and all around just chat.

Members: 74
Latest Activity: yesterday

Discussion Forum


Started by Nicolette Haley. Last reply by Jerrod Black Dec 19, 2014. 2 Replies

Hi, I am new to this. I found this group and thought I would join. Back in February of 2014, my boyfriend had his bleed. He all of a sudden complained of a sharp pain and next thing I knew he was in…Continue

Speech/Writing Issues

Started by Skye. Last reply by Skye Jul 14, 2014. 2 Replies

Hi, all. I'm writing on behalf of my boyfriend Jackson, who had a freaking huge AVM explosion on the left side of his brain on January 1, 2014. He was in an induced coma for a month, during which…Continue

Seizures after Craniotomy

Started by cmd91. Last reply by andsotheysay Jun 21, 2014. 2 Replies

Hi everyone, my name is Caroline and I had my AVM removed Feb. 14 2013 and I've been on Keppra ever since. I'm in college and last month I had my first grand mal seizure during an exam. I'd only had…Continue

Early Detection

Started by Michael. Last reply by Movie_girl Mar 21, 2014. 3 Replies

In my case, I'm glad for my AVM to have been discovered and treated at a young age. Having had these medical events occur early in my life has done two (main) things for me. Looking at the…Continue

Comment Wall


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Comment by Nabillah on February 26, 2015 at 7:21pm

Hi! I'm new here and still learning how this platform works. I'm Nabillah and I have spinal AVM. I've been in a vacuum of medical treatment for 3 years cause I'm sick and tired. Last July the pain's gone worse. My mom has convinced me to go back checking it out and now I'm waiting for my third MRI+DSA results after a while. I still don't know whether I should undergo the surgery, while the pain's going up and up. Is it okay if I just take pain killers? I really don't know what to do.

And I got more questions here. Since I don't know how the group works, does anyone know if the site has some mediators or social workers?

Yours truly,
Nabillah, 19, Jakarta

Comment by Anthony Alcantar on January 13, 2015 at 11:51pm
They my name is Anthony but I go by AJ. When I was 18 I was a cross country runner and during ra race I finished and fell my left side body couldn't move they took to the doctors and discovered my AVM. They took about 3-4 cat scans . I had a 12 1/2 hour surgery to remove the pressure. I went through 13 days in rehab. Now I'm running college cross country and finished 5th for my team in state.
Comment by Shelby Travers on December 14, 2014 at 11:24pm

Just wanted to say Hi and introduce myself! I'm Shelby! 21 year old from Canada who had a 6.5 x 7.5 x 3 cm AVM located in the left occipital parietal lobe removed in 2008 at the age of 14. 6 years post op and I am still learning new things! Grateful there is this support group <3 Am here for anyone to ask questions, seeking guidance, or just someone to talk to! Hope everyone is doing well. Lots of love

Comment by Kala on December 13, 2014 at 6:46am
Does anyone else here have a terrible sleeping pattern? How was it for you guys right after your operations. Does anyone smoke Marijuana for the chronic oain?
Comment by Kala on December 13, 2014 at 6:35am
HI! I am 21 and had my avm removed 17 days ago. 4 angiograms with the operation to follow. It went well which is a blessing but the pain that I have been in ... it's been hell.. my family is starting to get overwhelmed with me my husband's is exhausted. Did anyone experience extreme leg pain afterwards? My avm was in my back took the surgeons 8 hours to diet it out. It was a nasty one that would have paralyzed me within a few days if they didn't operate right then. It's soo hard because it seems like no one rely understands my pain which is now turning into depression.
Comment by Jerrod Black on December 11, 2014 at 11:40pm
Hi, I'm Jerrod, I'm a 13 year AVM survivor. I'm greatful for all whom stood by my side and stands with me in my journey. A little history; had my blood clot at the age of nine, had my world turn upside down. Spent three months in ICU in Mobile, AL; flew to Dallas for them to cut out and place the titanium clips to the capalairis . Spent another three months in Women's and Children's in Dallas. Flew back to Mobile did three years of physical thyropy. Reentered public school walking with no aids. Skip forward 2009 I graduate on time with a diploma and walk across the graduation stage. I'm a mirricle yes. And I have a mother that sat countless hours not knowing if her baby would pull threw. And I have made differences in other people's lives. I was nine when I had my stroke I'm going on 24 and I'm blessed beyound belief to see each passing day thanks to my lord and savior and the doctors he put in my life at that time. I know I wouldn't be here if there wasn't a higher power involved.

Yours truly,
Comment by Penny Hughes on September 27, 2014 at 12:49am

Hi there. My name is Penny. I found this site after I was recommended to join and I am beyond excited to realize that there are others out there dealing with a similar experience as I am. My AVM was discovered and removed in April of 2012 but it has been a hell of a journey - and as far as I can tell, there is still a long way to go. Luckily I am surrounded by people that love me but even with their love, its impossible to understand what a craniotomy does to a person. I am so happy to be apart of this group and I look forward to contributing to discussions.

Comment by Msamberxo on June 29, 2014 at 4:05pm
Skye I agree it is extremely isolating I was 22 when I was finally diagnosed after 7 years of physical and mental pain and searching for a dr who would take me seriously! This page is very helpful to find information or for me it is a place to vent and let go of the daily struggles where I know other understand because most people don't and can't understand what we go through.
Comment by Skye on June 29, 2014 at 1:42pm

My boyfriend had a massive bleed from a huge left-lobe AVM in January. No one knew it was there. He had the full range of issues--right-side hemiparesis, expressive aphasia. He's been recovering very well, but he still has a lot of trouble with writing (by which I mean sentence construction/words, not the physical challenge--although that's hard, too, of course). He had surgery to resect the AVM in April, which was hugely successful (anyone in DFW Texas area, I HIGHLY recommend Dr Anthony Lee). But it would be nice to connect to other young people (and your significant others?) who have been through this, or something similar. It's pretty isolating when the only people around who have any concept of what has happened to you are 80+. Things are a lot different when you're our age.

Comment by Mountfort77 on June 18, 2014 at 10:36am
Hey guys
I dont really know how the group works, so I'm just going to go ahead and introduce myself! My name is Mountfort, I'm turning nineteen in a few weeks so I thought I might as well join this group! I was diagnosed in jan 2013 (brain AVM) and received gamma knife treatement in March 2013. Soooo I felt really depressed for a while and then somehow I started getting better and that was awesome, still is (thought maybe I could help someone feeling depressed too). Was crazy finding this network! Thought I was like the only one in the world with a AVM (hahah), peole usually dont really understand what it is that I have and they're kinda freaked out so they tend to avoid the subject hahah :) I thought that maybe I could help someone, get some advice, and it's just nice to know I'm not the only one going through this.
Love, m.

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