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Comment by Jaanachka on April 24, 2013 at 1:47am

Hello.

I am 21 living in San Francisco where I study illustration at CCA.
Anyway, December of 2012 I had a brain bleed and found out that I've been walking around for 17 years with a massive AVM on the right side of my brain. I've had a cerebral aneurysm on my right side at age 4. Leaving me with partial paralysis. I am no longer paralyzed but I do have weakness on my left side and left hand no longer functions. Anyway, I'm still pondering treatment. Its a really tough choice for me to make. The only options I have are to get multiple radiation treatments(with the chances of making things worse) or just leave it like it has been all these years. Focusing on school and giving my all to illustration and dealing with being in love with someone that you cant be with and other life things has been extremely tough. I'm not sure what to do anymore. I feel really lonely in a way that I can't explain.

Please let me know if you have any kind words of wisdom or anything at all really! ^.^

Thank you kindly,
Jaana

Comment by Michael Reed on April 19, 2013 at 3:53pm

Hello Everyone thank you all for the welcome! I was just curious if anyone is partially paralyzed and what progress has been made. Also curious as to if anyone has found anyone that has found anything about someone being partially paralyzed from an AVM surgery and made a full recovery. Thanks in advance!

Comment by Brian on March 3, 2013 at 2:52pm

You already did! Welcome.

Comment by neurochallenges on March 3, 2013 at 1:39pm

I am 22 and living with a cerebellar AVM and a pontomesencephalic cavernous angioma. how do i join the group?:)

Comment by Birdie on February 25, 2013 at 9:05pm

Hi Joanna, I won't either attend the meet-up... sooo busy in school/work lately... but yes I agree with Brian- definitely start treatment asap before ur avm acts up. Although we can't talk in person, this forum can be used for any sort of discussion. What questions do you have?

Comment by Brian on February 20, 2013 at 6:30pm

Hey Joanna, I won't be at the meet up because I live in Illinois. But I can personally tell you, you don't want your AVM to bleed! So get it treated ASAP! Hope everything is going well in your life.

Comment by Joanna on February 20, 2013 at 1:39pm

Will anyone else be at the Mid-Atlantic meet up at the end of March? I'd really like to talk to some other AVM survivors my age in person...I haven't pursued treatment yet, but I will soon and would appreciate hearing about other young people's experiences.

Comment by Doua on February 5, 2013 at 7:11pm

I've forgotten what it's like to have a normal sleeping pattern :'(