People in their early 20's

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People in their early 20's

This is for the people in their early 20's to connect and share their stories and all around just chat.

Members: 92
Latest Activity: May 1

Discussion Forum

Seeking for someone to talk to

Started by Cmaz. Last reply by Jerrod Black Mar 16. 2 Replies

I can't help but read everybody's story and be jealous. I had my rupture August 8th, 2013. I was 22 years old at the time, I am now freshly 25. I have come a long way considering in the beginning I…Continue

Recovery

Started by Nicolette Haley. Last reply by monica May 14, 2015. 3 Replies

Hi, I am new to this. I found this group and thought I would join. Back in February of 2014, my boyfriend had his bleed. He all of a sudden complained of a sharp pain and next thing I knew he was in…Continue

Here is the story I am telling the lawyer

Started by Jessica. Last reply by monica May 14, 2015. 1 Reply

On the 20th 2014 I woke up early in the morning. I was at my boyfriend at the times house. He left the room and I was starving so I saw some leftover cheesecake and ate some. Just to clarify my diet…Continue

Speech/Writing Issues

Started by Skye. Last reply by Skye Jul 14, 2014. 2 Replies

Hi, all. I'm writing on behalf of my boyfriend Jackson, who had a freaking huge AVM explosion on the left side of his brain on January 1, 2014. He was in an induced coma for a month, during which…Continue

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Comment by felix12 on May 1, 2016 at 1:03pm

Hi my name is brittany. My husband suffered from a brain AVM rupture on July 27th, 2016 at the age of 22. He has had embolization and he had an emergency crainiotomy to trim a blood clot. Unfortunately his AVM is to deep seeded to have it removed by surgery. He had radiation done on march 23rd, 2015. Six months later he was told the radiation had already started to take some effect just not yet fully. We go back in Sept. of this year. He still has trouble accepting everything he has went through and all the support he can get helps. He deals with pains in his head every single day and sometime put him in the bed. His doctors don't want to prescribe him anything that helps. Any advice would be greatly appreciated.

Comment by Katie T on November 3, 2015 at 4:05pm

Hi, I'm Katie and I'm 21. I joined this site after looking online for a support group. It helped knowing I wasn't the only one who had gone through this. I had an extracranial AVM removed from my head in 2012. I am currently undergoing cosmetic surgeries about every 6 months, as there were some issues after my initial surgery, to fix my hair.

I'm here if anyone has questions, or to offer moral support. I wish that I had known about this site before I had undergone surgery, the first time.

Comment by Anthony Alcantar on January 13, 2015 at 11:51pm
They my name is Anthony but I go by AJ. When I was 18 I was a cross country runner and during ra race I finished and fell my left side body couldn't move they took to the doctors and discovered my AVM. They took about 3-4 cat scans . I had a 12 1/2 hour surgery to remove the pressure. I went through 13 days in rehab. Now I'm running college cross country and finished 5th for my team in state.
Comment by Shelby Travers on December 14, 2014 at 11:24pm

Just wanted to say Hi and introduce myself! I'm Shelby! 21 year old from Canada who had a 6.5 x 7.5 x 3 cm AVM located in the left occipital parietal lobe removed in 2008 at the age of 14. 6 years post op and I am still learning new things! Grateful there is this support group <3 Am here for anyone to ask questions, seeking guidance, or just someone to talk to! Hope everyone is doing well. Lots of love

Comment by Kala on December 13, 2014 at 6:46am
Does anyone else here have a terrible sleeping pattern? How was it for you guys right after your operations. Does anyone smoke Marijuana for the chronic oain?
Comment by Kala on December 13, 2014 at 6:35am
HI! I am 21 and had my avm removed 17 days ago. 4 angiograms with the operation to follow. It went well which is a blessing but the pain that I have been in ... it's been hell.. my family is starting to get overwhelmed with me my husband's is exhausted. Did anyone experience extreme leg pain afterwards? My avm was in my back took the surgeons 8 hours to diet it out. It was a nasty one that would have paralyzed me within a few days if they didn't operate right then. It's soo hard because it seems like no one rely understands my pain which is now turning into depression.
Comment by Jerrod Black on December 11, 2014 at 11:40pm
Hi, I'm Jerrod, I'm a 13 year AVM survivor. I'm greatful for all whom stood by my side and stands with me in my journey. A little history; had my blood clot at the age of nine, had my world turn upside down. Spent three months in ICU in Mobile, AL; flew to Dallas for them to cut out and place the titanium clips to the capalairis . Spent another three months in Women's and Children's in Dallas. Flew back to Mobile did three years of physical thyropy. Reentered public school walking with no aids. Skip forward 2009 I graduate on time with a diploma and walk across the graduation stage. I'm a mirricle yes. And I have a mother that sat countless hours not knowing if her baby would pull threw. And I have made differences in other people's lives. I was nine when I had my stroke I'm going on 24 and I'm blessed beyound belief to see each passing day thanks to my lord and savior and the doctors he put in my life at that time. I know I wouldn't be here if there wasn't a higher power involved.

Yours truly,
Tex
Comment by Penny Hughes on September 27, 2014 at 12:49am

Hi there. My name is Penny. I found this site after I was recommended to join and I am beyond excited to realize that there are others out there dealing with a similar experience as I am. My AVM was discovered and removed in April of 2012 but it has been a hell of a journey - and as far as I can tell, there is still a long way to go. Luckily I am surrounded by people that love me but even with their love, its impossible to understand what a craniotomy does to a person. I am so happy to be apart of this group and I look forward to contributing to discussions.

Comment by Msamberxo on June 29, 2014 at 4:05pm
Skye I agree it is extremely isolating I was 22 when I was finally diagnosed after 7 years of physical and mental pain and searching for a dr who would take me seriously! This page is very helpful to find information or for me it is a place to vent and let go of the daily struggles where I know other understand because most people don't and can't understand what we go through.
Comment by Skye on June 29, 2014 at 1:42pm

Hey,
My boyfriend had a massive bleed from a huge left-lobe AVM in January. No one knew it was there. He had the full range of issues--right-side hemiparesis, expressive aphasia. He's been recovering very well, but he still has a lot of trouble with writing (by which I mean sentence construction/words, not the physical challenge--although that's hard, too, of course). He had surgery to resect the AVM in April, which was hugely successful (anyone in DFW Texas area, I HIGHLY recommend Dr Anthony Lee). But it would be nice to connect to other young people (and your significant others?) who have been through this, or something similar. It's pretty isolating when the only people around who have any concept of what has happened to you are 80+. Things are a lot different when you're our age.

 

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