Our kids are eligible for having a wish granted through the Make-A-Wish Foundation. My son Ryan had his wish of going to a professional motocross race granted earlier this month, and he was in heaven! It was by far the best time of his life. He got to meet Ryan Dungey, who's currently in first place on the pro motocross circuit, and even got a sweaty, dirty, signed practice jersey from him!
Make-A-Wish is a wonderful organization who grants wishes to kids with life-threatening illnesses or conditions. It's a common misperception that they only grant wishes to kids with terminal illnesses. I first applied for Ryan when he was initially diagnosed with an inoperable brain tumor, but then when his diagnosis was changed to an AVM, it turned out that he was still eligible.
You can find out more about the Make-A-Wish Foundation by going to www.wish.org. You can nominate your own child or someone else's, and their eligibility is verified by their doctor. Let Make-A-Wish make your child's wish come true. And what's even better, you get to watch the absolute delight on your child's face and forget about all the yucky stuff for a while.
Make-A-Wish also takes donations because granting wishes is not free for them. They're a great organization. Check them out.
Kelly
Tags: Make-A-Wish
Permalink Reply by Diane K on July 30, 2010 at 4:27pm
Permalink Reply by Kelly Nelsen on October 18, 2010 at 8:15am Thanks to you, my daughter will have her make a wish granted on Sunday. She wished for a "game room" bedroom. She is getting a flat screen tv and an xbox. Along with a bunch of games and some accessorizing of her bedroom. Thank you so much for posting and giving my daughter a life long wish of hers. God Bless You! You have forever positively changed the life of a child you will never know. A child that I will make sure knows that she received this opportunity from an extremely kind stranger, who took the time to make a difference in others lives. I am forever grateful to you.
She will be having a craniectomy on Oct 27th, 2010. They will be removing her entire right occipital lobe. I am thrilled she will have an awesome bedroom to come home to for her recovery!
Permalink Reply by Kelly Nelsen on October 18, 2010 at 8:16am Hi Kelly. My daughter Katie is waiting for her wish: a day in New York City with a fashion photographer. She's been waiting awhile, but it's a very special wish. And I agree this is something that is perfect for our kids. My daughter was 15 when her AVM hemmorhaged and I wanted to do something that would be as miraculously good as what happened was unexpectedly not good. Families should contact a local office. You need to have your child's doctors confirm the case etc. and, depending on where you live, it can be a lengthly process. Congrats to your son!
Permalink Reply by Tracey Eyles on October 24, 2010 at 1:15pm
Permalink Reply by Kelly Nelsen on October 27, 2010 at 10:10pm Hi Kelly, They are a great organisation my son just received his wish for a buggy and he is loving it, he also is spending more enjoyable time with his sister as she can fit in too.
Permalink Reply by lauren myers, Ethans mum on May 31, 2011 at 2:16pm Hi, Ethan got his wish to visit disney land paris and will be going on the 8th July. Ethan will be staying for 4 nights with myself my mum and little brother. I will let you all know how it went when we return. Ethan's very excited for going on all the rides.
Permalink Reply by StarieNite on May 31, 2011 at 2:48pm
Permalink Reply by Kelly Nelsen on May 31, 2011 at 3:07pm Lauren,
Paris, huh? That sounds wonderful!! Ryan chose to go to Michigan. Go figure. Once-in-a-lifetime chance to travel the world and he picks MICHIGAN. LOL. He LOVES motocross, though, and there was a professional mx race there.
Part of the excitement of the Make-A-Wish thing is the anticipation of going, isn't it? Take lots of pictures!! :-)
Kelly
Permalink Reply by Kelly Nelsen on May 31, 2011 at 3:08pm StarieNite,
Phineas & Ferb -- that's awesome. My kids LOVE that show. It'll be a great time!!
Kelly
StarieNite said:
Dev picked DisneyWorld and to meet Phineas and Ferb and to skip every line. Waiting to speak with wish grantors.
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Posted by chels925 on June 3, 2012 at 10:37am 0 Comments 0 Likes
Hello everyone. While I do not have a AVM, mine is only a VM. It is in my right cheek. I have been undergoing treatment for it since 2006. My first treatment was in September 2006. I had some complications (I got an infection and went septic). I…
ContinuePosted by Dansky on June 3, 2012 at 7:15am 0 Comments 0 Likes
The first rupture of my AVM brought me to total shutdown you could say. from normalcy to all of a sudden a twist of life.
I move on ... but I cant escape...
I was at work (luckily I was in office, crowded, people are present, the…
ContinuePosted by ramona777 on June 2, 2012 at 3:51am 2 Comments 0 Likes
Hi to all my newfound friends . may not be online much in the next 5 wks but wanted to say to each and every one of you, many thanks for your welcome, friendship and support. be back soon. If anyone can advise me how to join AVM australia? Thank…
ContinuePosted by Celina on May 31, 2012 at 8:59pm 2 Comments 0 Likes
it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.
Posted by Hannahpoppe on May 30, 2012 at 12:45am 3 Comments 0 Likes
Hi everyone!
I'm a new member here...
I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…
ContinuePosted by Jaime G. on May 29, 2012 at 7:32am 1 Comment 0 Likes
I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…
ContinuePosted by Armando A. on May 28, 2012 at 8:02pm 0 Comments 0 Likes
We never realize the value of organ donation, until we're on the receiving end.…
Posted by josh54 on May 28, 2012 at 12:20pm 2 Comments 0 Likes
My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…
ContinueOctober 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
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