Sorry to sound so negative...ha ha ...BUT...Jaclyn had Linear Accelerator in April this year and has now had her 3rd grand mal seizure. She had 2 Gamma Knife radiosurgeries prior to April and never had a seizure in her life. (Well, not grand mal's-maybe small contained ones that were not noticed) She (we) are so frustrated....this time it did happen during a soccer game in the middle of a huge tournament 2 hrs away from home. We were taken off the fields in ambulance and the cat scan revealed no bleed of the avm but did show brain swelling again. So apparently she had swelling already and the exertion from running during soccer triggered this grand mal. Totally sucked b/c this time it was infront of 2 soccer teams and parents. She felt it coming on so she pulled herself out of the game but within minutes she was in a full fledge seizure. Luckily, my husband was on the sidelines helping coach when all this started. I was alerted she was 'down' and shortly after her saying to me 'Omg ..I feel really aweful'...I ran to get medical attention. We were discharged about 11pm that night and luckily had a hotel already booked in advance for the tournament. She is getting stronger as the day goes by but these grand mal's kick the crap out of her. We have an appt this morning with her neurosurgeon at 10am.

Also, I apologize to those who have emailed me @ avmbracelet@comcast.net to order your bracelets and I have not gotten back to you yet. It's been a rough couple of months. I will get back to you today since I am off from work for her appointment.

Thanks for listening and have a great holiday week!

Kim McD-

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I'm going to answer you even though my child did not have linear accelerator treatment. I don't know how different that is from gamma knife, but I believe both of them tend to make the blood vessels "angry" and cause swelling. That's what has to happen for it to work. My daughter, Kasey, had a grand mal 2 mos. after gamma knife when she was overheated watching a horse jumping event in Florida in August. After that the Dr. upped her anti-seizure dosage and we then knew to not let her get too heated up. The good news is that she's never had another one! yay!. I hope that ends for Jaclyn too. Kasey's Dr. determined the correct med dosage by doing a blood test to see how much of the drug was actually in her bloodstream since everybody has different absorption rates. idk, but it seems to be working as it's been almost 3 years seizure free. thank goodness, I must say, for many reasons, of course, but mainly because she is away at college. Don't let Jaclyn get too tired, too hot or too dehydrated. Hopefully that's the last one she'll ever have. :)

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